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microcephalysupportgroup · Microcephaly Support Group - For families of microcephalic children and adults
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7 month old   Message List  
Reply | Forward Message #153 of 765 |
Re: [Microcephaly Support Group] 7 month old

no the surgey is not an option for us my son also has
holoprosencephaly so to put him through the pain of
it, it would not be worth it.the only info i have is
what i found on the web and what our dr said. so I
wish you good luck. can you tell me what kind of
problems your son had we just found out oursond
diagonses and really dont know what to look forward
to. if you can help us i would be greatly apprecitave.
if there is anything you need i am here.

Diane mom to micah lobar hpe and micro

=====
Thank you for your time,
Diane R Hasselbring
Wife of a United States Marine

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Sun Dec 28, 2003 3:07 am

hottmomma_628
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Message #153 of 765 |
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Hi my name is Diane. I have a 7 month old son (micah) with microcephaly. He also has Holoprosencephaly, and Dandy-walkercomplex w\hypoplasia. I also belong to...
hottmomma_628
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Dec 26, 2003
5:23 pm

Hi, Diane. I'm a mother to four children: a five year old, and 16 month old triplets. One of my triplets was born with microcehaly. Regarding your question...
Michelle Dudar
mmdudar
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Dec 27, 2003
4:20 am

hello i have a 3 1\2 yr old son who has micro also and i was just wondering if anybody knows if it could have been corrected with surgery if caught in time i...
tonya cogley
tcogley2003
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Dec 28, 2003
2:39 am

hello, I am Diane. I know the surgey you are talking about have they done any x-rays or an MRI yet to see is the sutures have closed? Our nuro dr said that the...
Diane R Hasselbring
hottmomma_628
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Dec 28, 2003
2:52 am

i did not know that they did a mri on my son when he was 1 and i didnt know about the surgery unitl a couple months ago and i havent had the chance to talk to...
tonya cogley
tcogley2003
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Dec 28, 2003
2:59 am

no the surgey is not an option for us my son also has holoprosencephaly so to put him through the pain of it, it would not be worth it.the only info i have is ...
Diane R Hasselbring
hottmomma_628
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Dec 28, 2003
3:07 am

My son only has microcephaly and he is almost 4. He doesnt talk only just mom and he is behind in everything he didnt walk until he was 2. What I dont...
tonya cogley
tcogley2003
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Dec 29, 2003
11:32 pm
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