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microcephalysupportgroup · Microcephaly Support Group - For families of microcephalic children and adults
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7 month old   Message List  
Reply | Forward Message #152 of 765 |
Re: [Microcephaly Support Group] 7 month old

i did not know that they did a mri on my son when he was 1 and i didnt know
about the surgery unitl a couple months ago and i havent had the chance to talk
to his nero dr is your son going to have the surgery or is it an option for you?
even if it was an option for me i would be scared something would go wrong but
it is something i would think about do you have any other info on that surgery ?

Diane R Hasselbring <hottmomma_628@...> wrote:hello, I am Diane. I know
the surgey you are talking
about have they done any x-rays or an MRI yet to see
is the sutures have closed? Our nuro dr said that the
surgey will only work if the fontanals and the sutures
have closed. on our son the fontanales have closed but
the sutures are not. So i would first ask your dr
about that. i am a at home mom so feel free to contact
me at TDOKLAHOMA@....

Diane mom of MICAH 7 months lobar HPE and micro

=====
Thank you for your time,
Diane R Hasselbring
Wife of a United States Marine

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Sun Dec 28, 2003 2:59 am

tcogley2003
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Message #152 of 765 |
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Hi my name is Diane. I have a 7 month old son (micah) with microcephaly. He also has Holoprosencephaly, and Dandy-walkercomplex w\hypoplasia. I also belong to...
hottmomma_628
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Dec 26, 2003
5:23 pm

Hi, Diane. I'm a mother to four children: a five year old, and 16 month old triplets. One of my triplets was born with microcehaly. Regarding your question...
Michelle Dudar
mmdudar
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Dec 27, 2003
4:20 am

hello i have a 3 1\2 yr old son who has micro also and i was just wondering if anybody knows if it could have been corrected with surgery if caught in time i...
tonya cogley
tcogley2003
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Dec 28, 2003
2:39 am

hello, I am Diane. I know the surgey you are talking about have they done any x-rays or an MRI yet to see is the sutures have closed? Our nuro dr said that the...
Diane R Hasselbring
hottmomma_628
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Dec 28, 2003
2:52 am

i did not know that they did a mri on my son when he was 1 and i didnt know about the surgery unitl a couple months ago and i havent had the chance to talk to...
tonya cogley
tcogley2003
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Dec 28, 2003
2:59 am

no the surgey is not an option for us my son also has holoprosencephaly so to put him through the pain of it, it would not be worth it.the only info i have is ...
Diane R Hasselbring
hottmomma_628
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Dec 28, 2003
3:07 am

My son only has microcephaly and he is almost 4. He doesnt talk only just mom and he is behind in everything he didnt walk until he was 2. What I dont...
tonya cogley
tcogley2003
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Dec 29, 2003
11:32 pm
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