hello i have a 3
1\2 yr old son who has micro also and i was just wondering if anybody knows if
it could have been corrected with surgery if caught in time i have heard of such
a thing but a doctor never actully told me i read it from the internet if
anybody knows lease contact me at tcogley2003@... thank you tonya

Michelle Dudar <Mmdudar@...> wrote:
Hi, Diane. I'm a mother to four children: a five year old, and 16 month old
triplets. One of my triplets was born with microcehaly. Regarding your
question about what to expect from your son's diagnosis, I will tell you this
much: I am still trying to get over the shock and sadness about having a son
that doesn't fall into the "norm" category. I go through bouts where I'm
completely pissed off at the world, but it's not nearly as bad as it used to be.
Depending on your son's severity, he will need your patience and love now more
than anything. It's so darn hard, but you will be able to get through it.
Perhaps you're not mourning like I did. I hope not...it was the hardest time of
my life. Either way, he is what he is, and you just have to move forward and do
the best with what you have. These are all things I have to tell myself all the
time. And don't forget to apply for Medicaid. If you do not qualify
financially (make too much money,) you may apply under the deeming
waiver (Katy Beckett act,) which is a waiver for people/families with special
needs children. If you have been appointed a coordinator for therapy services,
perhaps this person can help you. Where I live, there is a state funded
program, and my coordinator helps me with all my paperwork. Best of luck, and
please write if you have questions/concerns, etc.
Michelle



hottmomma_628 <hottmomma_628@...> wrote:
Hi my name is Diane. I have a 7 month old son (micah) with
microcephaly. He also has Holoprosencephaly, and Dandy-walkercomplex
w\hypoplasia. I also belong to the holoprosensephaly group. My son
has motor delays and has a stiff tone in his back, legs and his arms.
He is now working with a PT. He also has refulx but is eating by
spoon, most comes back up be he is still gaining weight. If anyone
out there know what to expect from any of this please help. found all
this out the 19 of dec.



---------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/microcephalysupportgroup/

To unsubscribe from this group, send an email to:
microcephalysupportgroup-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Do you Yahoo!?
Yahoo! Photos - Get your photo on the big screen in Times Square

[Non-text portions of this message have been removed]



---------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/microcephalysupportgroup/

To unsubscribe from this group, send an email to:
microcephalysupportgroup-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Do you Yahoo!?
Yahoo! Photos - Get your photo on the big screen in Times Square

[Non-text portions of this message have been removed]