Hi my name is Diane. I have a 7 month old son (micah) with
microcephaly. He also has Holoprosencephaly, and Dandy-walkercomplex
w\hypoplasia. I also belong to the holoprosensephaly group. My son
has motor delays and has a stiff tone in his back, legs and his arms.
He is now working with a PT. He also has refulx but is eating by
spoon, most comes back up be he is still gaining weight. If anyone
out there know what to expect from any of this please help. found all
this out the 19 of dec.