Thank you SO much for your post. I have triplets (born Aug 30, 2002,) and one
has microcephaly. I have been more concerned with my son's future than
anything. I hope you don't mind if I ask a few questions. It will help me even
more to be at ease with my son's condition.
1. did your son have hypotonia (low muscle tone)? B/C of the hypotonia, he
isn't sitting very well unassisted (he does it, but not long,) he isn't
crawling--only rolling from side to side, front to back, and back to front, and
he can't hold onto toys very well. I wonder how this will improve over time.
I'm working w/therapists, and they tell me he "will do it," but I wonder long
term how the hypotonia will affect him on a daily basis.

2. did your son have nystagmus? My son has nystagmus, but he sees fine. When
he is anxious or tired, his eyes move pretty fast, but when he is rested, well
fed, and in a good mood, his eyes hardly shake.

3. how old was your son when he graduted from high school? And was he in
special needs classes? I'm kinda terrifyed about having my triplets separated
b/c one has to go to a "special" school.

4. please share with us what kind of job he is doing. I'm very impressed, and
would love to know what kind of potentials our children have.

Thanks again so much for sharing and supporting. I have no one locally I can
turn to, so I have to go online for such things.


atlanta_brennan <atlanta_brennan@...> wrote:
Have seen several post - some worried about life expectancy - some
about "don't know what the future holds."

Let me give you a little comfort. When our son was born 36 years
ago, we were told we had a vegtable and "figure out what to do with
it!" (Very sensative doctor, eh?)

At any rate that was the low point. It's all been up hill since
then. He is now a very health young man who has had a full time job
since he got out of highschool.

I will tell you that Microcephalian is usually compounded with other
disabilities. His only disability is Microcephalia - so that may be
different form your situaton. But, Microcephalia by itself is not
something to say "oh my God we're doomed." All I can say is that
I've been pretty successful over the years, and can't say my life is
any better than his.

He's a great persons and we sure enjoy sharing life with him.

One other comment for younger parents -get involved with Special
Olympics. It will add a demension to your son/daughter's life that
will help emmencely with them being able to tackle life's challenges.
The other thing - just love 'em.


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