---Hi, Michelle,
We found out that BreAnna had microcephaly pretty much at birth she
was hospitalized for two months at birth she is a twin. I have not
been a part of the group before. I have a friend who was asking
about life span and so i decided to do more research but i have not
really found any new info.
thanks for replying
stef
In microcephalysupportgroup@yahoogroups.com, Michelle Dudar
<Mmdudar@y...> wrote:
> Hi, Stef. My son who has microcephaly also has
> profound hearing loss in his right ear. I wonder how
> that happens. My son is a triplet. I went farther in
> my pregnancy than anyone in my entire triplet group in
> my hometown, and I think there are at least more than
> 100 families, so I'm not sure his micro has anything
> to do with the multiples thing. When did you find out
> about your daughter? Regarding life expectancy, I am
> not familiar with shorter life span. Maybe someone
> else can speak up on the issue. Welcome to the group.
> You will get comfort and good support. Out of
> curiousity, since your daughter is six, have you been
> part of a support group at all before this one?
> Michelle
>
> --- stephanie <keith@f...> wrote:
> > Hi my name is Stef, I am new to your group. I also
> > have a daughter
> > with microcephaly , she is 9 years old. very small
> > for her age has a
> > g-tube ,profound hearing loss,developmentally
> > delayed,hyperactive,doesn't sleep well .
> > I have tried looking for info. before on micro. but
> > its all vague.
> > some of the info i have read said that life span can
> > be shorten,but
> > why. if anyone has info on this i would love to read
> > it. the docs.
> > don't seem to know much either
> >
> > I'm rambaling sorry.
> >
> > I would love to hear from someone
> >
> > Thanks take care
> > stef
> >
> >
>
>
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