Hi, Stef. My son who has microcephaly also has
profound hearing loss in his right ear. I wonder how
that happens. My son is a triplet. I went farther in
my pregnancy than anyone in my entire triplet group in
my hometown, and I think there are at least more than
100 families, so I'm not sure his micro has anything
to do with the multiples thing. When did you find out
about your daughter? Regarding life expectancy, I am
not familiar with shorter life span. Maybe someone
else can speak up on the issue. Welcome to the group.
You will get comfort and good support. Out of
curiousity, since your daughter is six, have you been
part of a support group at all before this one?
Michelle

--- stephanie <keith@...> wrote:
> Hi my name is Stef, I am new to your group. I also
> have a daughter
> with microcephaly , she is 9 years old. very small
> for her age has a
> g-tube ,profound hearing loss,developmentally
> delayed,hyperactive,doesn't sleep well .
> I have tried looking for info. before on micro. but
> its all vague.
> some of the info i have read said that life span can
> be shorten,but
> why. if anyone has info on this i would love to read
> it. the docs.
> don't seem to know much either
>
> I'm rambaling sorry.
>
> I would love to hear from someone
>
> Thanks take care
> stef
>
>


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