Hi - I have just found this sight after 8 months. I am a mum with a
beautiful little girl of 14 months named Chiara. She has the longest
eyelashes and big smile and is an inspiration to me. I discovered
at 5 months that she had microcephaly. She has low musle-tone, bad
reflux, cerebral palsy and high visual impairment. I thought it was
a milk intolerance when I went to the hospital with my dad, the
hospital was very blunt, and I thought hey - I haven't even got my
husband with me - how insensitive. I was wrecked my little girl -
what sort of life would she lead, how was she going to suffer not
being able to see, maybe not to walk and the list was endless. My
dad was in disbelief as well - they didn't even explain to me what
microcephaly was.

After a couple of seizures, one very bad in June where she was put in
intensive care she has now had her medication stabalised and seems to
be thriving with her gastro condition.
Now she is 14 months she has 3 meals a day (pureed of course) and her
head is getting stronger, she has rolled over by herself when she was
one but she hasn't done it for a while - along with physio and
portage we should get there soon. I long for the day she can look at
me though. But she is a very happy little angel and she is adored by
all of us - especially by her big brother of 4, Luca.

I am so glad I have found this sight it really is a boost. I will
keep you posted on her developments.