Rebekah is the youngest of 5 sibs. We were told at birth that she had
microcephaly. They gave us the worst prognosis imagined. Rebekah
spoke late around 2 1/2 she had incredible hand eye coordination but
was so clumsy. The neurologist just kept saying she is fine bring her
back in a couple of months. They really don't give you any
information about what to expect. Finally at school age she was a
loner at headstart. Even though she is a loving bright child. Most of
the times too loving, she has never met a stranger and hugs and tells
everyone she loves them. Even in the grocery store. Kindergarten was
a wasted year. 1st grade she progressed but to about beginning
kindergarten level. Still the school dist refused to test her or told
us there wasn't enough delay to justify the spending. We took he to
one of the best childrens hospitals and were told just wait by the
time she is in 3rd grade and suppose to be reading she will have
fallen enough behind and then they will test her. Bull, I took her to
all of the required specialist, occupational, speech and language,
eye doctor, psycologist, psychiatrist you name it we went. Finally a
new neuroligist helped. He told us she had developed physically very
normally, except the small head size, her fine motor and her speech
and language were problems. We retained Rebekah in the 1st grade last
year. She entered second grade this year doing middle of 1st grade
work. Math is still a mystery. But she is reading. We are still not
getting any special services from the school. We have an iep but it
is just for modified homework and class placement. The only thing
really helping her now is that she is in a combined 1st and 2nd grade
class with 10 kids. She is very sly and watches the 1st grade lessons
and practices when she gets home. She will be 9 years old in January.
I know this is long but my husband is in denial about any problems.
And just for your information the best thing the neurologist told us
is to watch out for puberty, she can develop seisures because of the
increased brain activity. Has anyone else heard that?
Thanks for letting me vent. debi (mom to 5)