I will just keep it open and alive until you guys finally talk ;)

--Pam


--- In menwithlupus@yahoogroups.com, "flash_sphere" <flash_sphere@...> wrote:
>
> It's been a while since I visited this board.  I guess men with lupus
> won't easily come out in the open and share their views or experiences
> regarding this disease.  I cannot say I'm way past that notch where I
> have accepted my fate as having it but, I am hoping that I'd live long
> enough for its cure to materialize.
>
> Now, the net is full of both information and list of vitamin
> supplements that may help lessen the weakening effects of this
> disease.  Yet, in spite of such hollow promises, I never once tried to
> purchase any but stick to all 37 maintenance meds my doctors give me.
>  Of course, there are days when (out of my own frustrations) I skip
> out on any of those meds.
>
> My last week's visit to my Renal doctors though made me re-think my
> drug rebellion and am now trying to take every single pill included in
> my daily regimen because of the sudden aggressive activities of this
> disease in my body.  Or so my doctors tell me.  Both Creatinine and
> Protein levels shot up-- enough for my doctors to be alarmed.  So, the
> only reason I know behind this were those days when I skipped my meds.
>
> For anyone who has SLE, try not to repeat my mistake(s).  It's
> unhealthy for us who have it, for life.  I will try to reform my ways
> where my meds are concerned and change my attitude towards my timely
> administrations.  Bitter and icky as they all come, we just don't have
> any choice but to take every one of those pills.
>
> I normally drink orange juice or iced tea where small but bitter pills
> (Prednisone, Plaquenil, Lasix, Losartan, Vytorin, Lotensin, Fosamax)
> are concerned.  The bigger pills go best with water because, either
> they're bland to the taste or merely chalky (Os-Cal, Neurontin,
> Renagel, CellCept).
>
> For a while, this board was assailed by unknown spammers-- advertising
> products unrelated to Lupus nor SLE.  Pam, our Moderator, has been
> warm and generous with her time by keeping the SHIP afloat.  So sorry
> I seldom appear, Pam.  But new members are indeed welcome to come
> share their mind(s).  :D
>
> I hope whoever drops by could just holler around and we'll try to echo
> back.
>
> Peace!
>
> ~Rob
>

It's been a while since I visited this board.  I guess men with lupus
won't easily come out in the open and share their views or experiences
regarding this disease.  I cannot say I'm way past that notch where I
have accepted my fate as having it but, I am hoping that I'd live long
enough for its cure to materialize.

Now, the net is full of both information and list of vitamin
supplements that may help lessen the weakening effects of this
disease.  Yet, in spite of such hollow promises, I never once tried to
purchase any but stick to all 37 maintenance meds my doctors give me.
  Of course, there are days when (out of my own frustrations) I skip
out on any of those meds.

My last week's visit to my Renal doctors though made me re-think my
drug rebellion and am now trying to take every single pill included in
my daily regimen because of the sudden aggressive activities of this
disease in my body.  Or so my doctors tell me.  Both Creatinine and
Protein levels shot up-- enough for my doctors to be alarmed.  So, the
only reason I know behind this were those days when I skipped my meds.

For anyone who has SLE, try not to repeat my mistake(s).  It's
unhealthy for us who have it, for life.  I will try to reform my ways
where my meds are concerned and change my attitude towards my timely
administrations.  Bitter and icky as they all come, we just don't have
any choice but to take every one of those pills.

I normally drink orange juice or iced tea where small but bitter pills
(Prednisone, Plaquenil, Lasix, Losartan, Vytorin, Lotensin, Fosamax)
are concerned.  The bigger pills go best with water because, either
they're bland to the taste or merely chalky (Os-Cal, Neurontin,
Renagel, CellCept).

For a while, this board was assailed by unknown spammers-- advertising
products unrelated to Lupus nor SLE.  Pam, our Moderator, has been
warm and generous with her time by keeping the SHIP afloat.  So sorry
I seldom appear, Pam.  But new members are indeed welcome to come
share their mind(s).  :D

I hope whoever drops by could just holler around and we'll try to echo
back.

Peace!

~Rob

I ran across this site looking for more info on Lupus and Men, is
there anyone still in the group?

--- In menwithlupus@yahoogroups.com, "brownistboyz" <brownistboyz@...>
wrote:
>
> Dear men's...
>

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--- Bob Cabrera <flash_sphere@...> wrote:

> But then again... if you have Lupus and loaded every single day
> with Libido-suppressing meds, "going into action" may never even
> cross your mind.  And I've been like that all 6 years that I've had
> SLE.
>
> Whoever thinks sex is the best thing in life, think again because
> not everyone are lucky enough to keep their STARS shining...
>
> Just quipping around,
>
> Rob
>
>


Wish the steroids didn't make me gain weight or I could switch over
to food as the best thing in life ;)



--
Pam
xbeepx@...
Blog: http://beepbeep.livejournal.com

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Hi there...

I know she is really busy; she doesn't return mine either, lol.

How are you doing?

Hugs,
Pam



--- Mike Whitmore <nsemikew@...> wrote:

> wow been awhile since i have heard from you...hope
> your sis is doing well since she cant bother to return
> my emails
>
>
>
> --- Pam <xbeepx@...> wrote:
>
> > --- In menwithlupus@yahoogroups.com,
> > "calvin_james09"
> > <calvin_james09@...> wrote:
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> > here.
> >
> >
> >
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>


--
Pam
xbeepx@...
Blog: http://beepbeep.livejournal.com

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

wow been awhile since i have heard from you...hope
your sis is doing well since she cant bother to return
my emails



--- Pam <xbeepx@...> wrote:

> --- In menwithlupus@yahoogroups.com,
> "calvin_james09"
> <calvin_james09@...> wrote:
> >
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> >
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> > of ejaculate, but intensity and power of orgasms.
> "IT WILL ABSOLUTELY
> > BLOW YOUR MIND"
> >
> >
> > Get it More Sperm now "Without  Prescription"
> >
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> > Erections like steel - Also increased size
> > Increased sexual desire - Enhanced libido
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> Experience orgasms that go
> > on and on… and on!
> > 5x more sperm - Cover your lover in it
> > Sweeter taste - It improves the flavor
> > Boost your potency & fertility!
> > Unload with impressive volume!
> > Send your confidence off the charts!
> >
> >
> > We are so proud of our amazing pills we are
> offering a FREE trial
> > pack to all our visitors!! Just to prove to you
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> > really are... In fact 70% of our customers come
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> >
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> >
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> >
>
>
>
> This poster is now banned.  Spam is not welcome
> here.
>
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

--- In menwithlupus@yahoogroups.com, "calvin_james09"
<calvin_james09@...> wrote:
>
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> to increase your SPERM by 500%.
>
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> Bigger Load = Bigger Orgasms!
>
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> BLOW YOUR MIND"
>
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>
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> Increased sexual desire - Enhanced libido
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> on and on… and on!
> 5x more sperm - Cover your lover in it
> Sweeter taste - It improves the flavor
> Boost your potency & fertility!
> Unload with impressive volume!
> Send your confidence off the charts!
>
>
> We are so proud of our amazing pills we are offering a FREE trial
> pack to all our visitors!! Just to prove to you how good our pills
> really are... In fact 70% of our customers come back and order a
> longer supply once they see the results... ....
>
> http://free-more-sperm-pills.com/
>
> "Increase the volume of your ejaculation in just days!"
>



This poster is now banned.  Spam is not welcome here.

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to increase your SPERM by 500%.

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Bigger Load = Bigger Orgasms!

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5x more sperm - Cover your lover in it
Sweeter taste - It improves the flavor
Boost your potency & fertility!
Unload with impressive volume!
Send your confidence off the charts!


We are so proud of our amazing pills we are offering a FREE trial
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First off... my name is Robert, and I live in Panorama City,
California. I'm 40 years old now and it has been 6 years since I had
SLE: 3 years of symptoms without knowing what was wrong and 3 years of
living with the realization.

But before I continue, let me tell you this in advance. I tend to
write long. It is so because I want to have my reader picture my
thoughts better. You are free though to cut me short whenever you feel
like it. Only tell me why I should! :P

Anyway, I guess it will take more than a nudge for men to admit they
have this disease. And like what some online articles suggest, 'since
Lupus is more known to afflict women, men would try a lot of things
just to tell themselves "the diagnosis must be a mistake"'. It
certainly takes time to embrace something as serious as this. But
while you're thinking somewhere else and not focusing about this
change in your life, what would you do when the disease finally begin
manifesting its presence?

It's hard to understand it simply, you know. It's a good move to read
a lot about it. Not everyone with Lupus have like-symptoms. But as the
disease progresses in your body, some things that you read from
another are likely to happen with you, one way or another.

I thought I wouldn't experience the so-called "butterfly rash" on my
face, but only 2 weeks back I was cautioned by my primary doctor to
take things easy and avoid prolonged exposures to the sun because I'm
having a mild case of that right now. I've always enjoyed going out in
the sun, as long as I can find big trees to cool myself. What I don't
know is that, even under that shade I am exposing myself to elements
that will affect me later.

I know I have the disease yet, I'm always trying to do normal things
anyway. I guess my idea of "enjoy things now before you can't later"
is often my answer to that. I know a lot of people with Lupus are
often expected to do what their doctors tell them, for their sakes. On
the other hand, I do what I think is a good adventure! Not that I love
playing against fate but, while I can, I would.

I was advised by my doctor to take up biking or swimming, as both can
be beneficial to my well-being. Having osteoporosis due to Prednisone
exposure meant 'no weights or my bones will break'. I have to take
care not getting sprains or other bone/joint-related problems to avoid
being bedridden for life. And I can feel how weak my bones are each
time I do short distance trekking or strutting.

Back in college, I had my time dancing punk-style! Where you can swing
your arms around like a wild top and kick your legs out, hoping no
other dancer gets hurt with your moves. I guess that was when I truly
enjoyed myself. I have always been a lazy lout. No love for sports or
outdoor activities. Except for some  biking around the neighborhood, I
guess that's about what keeps me elated.

I tried basketball but learning playing rules made me lose interest.
I'm more into daydreaming all my life. That and reading JRR Tolkien,
Anne McCaffrey, Star Trek and Eric Van Lustbader stuff. I guess it's
no wonder that the first symptoms of arthritic discomforts began with
my hands.

Then the pain travelled through both arms to my shoulders, down my
back to my hips, and spread to my legs and feet. By then I was like a
robot losing its oil. Every movement was painful and my mind couldn't
understand what was happening. I'm not sure though if my inactive
lifestyle helped awaken this disease!

But you know what? It helps to know others are like you. And right
now, I'm having this itchy problem on both lower cheeks (near my
jawline) that always crop up during the hottest part of summer or the
coolest part of winter. I only use what topical ointments my doctors
suggest I try. Most will not work, of course. And if one does work, it
won't the next time you use it.

Having Prednisone in one's system also prevents other medicines with
corticosteroid elements to work on you, topically. Anything can be
related to this Lupus. What you take can also add up to the overall
discomfort you'll be going through your life. Yet there's nothing you
can do about it.

Sometimes, I even skip my many medicines, out of exasperation. But
mind you, I know that's a bad thing I do for myself. Don't do it, if
you can help it. Lupus will never go away, that's a given. It can only
be suppressed but never cured. I hope one day, the science of medicine
will find a safer way to deal with this silent disease. I hope I won't
need a kidney transplant any time in the future. My doctors are doing
their best to rejuvenate my weak pair and tests results suggests that
I'm in my best form at this time. All are within normal limits, save
for the (getting higher) protein present in my urine. A better diet is
the only answer to this.

Weight gain? In the course of 3 years following my treatments, it's
fortunate that I managed to keep back too much unwanted weight. I only
gained an additional 22 pounds in 3 years' time, from my normal gain
of 170. For my 5 foot 7 inches height, I should weigh 145 pounds. But
I went to 170 because of liquid retention (one of Prednisone's side
effects). Add the 22, so now I've got 192 pounds. One of the reasons
of this weight control is due to my cutting off snack time and eating
half of the meals I usually take. And the diet? A little of everything
to best enjoy what is now.

Fried food and any form of milk gives me tummy trouble so I veer off
from such. I still can't do away with sodium though. That's something
you can't tell Pacific Islanders to avoid. It's been a part of our
kitchens all our lives. :) I don't know much about what you guys have
for healthy eating but I do mine the way I want them. I try to
moderate some of my practices to avoid lasting consequences.

I can go on and on about myself but, what about you guys? It would be
quaint to find others like us sharing their thoughts, huh! Feel free
to open up for a change. It truly helps. Don't let your fears get the
better of you, okay!

Take care and try avoiding Potassium-rich food & drinks. Your kidneyys
will suffer if you can't moderate that. :D

~Rob

--- In menwithlupus@yahoogroups.com, "Pam" <xbeepx@...> wrote:
>
> Welcome to this brand-new group.  Now that there are two of you,
> hopefully you can introduce yourselves and conversation can begin :)
>
> I'm going to be working hard on getting the word out about this group
> over the next few months, so there should be more of you soon enough.
>
> Hugs,
> Pam
>

When you guys get to read my messages, I hope we can connect with each
other thru Yahoo Messenger &/or MSN Live? I don't have an AOL,
although my dial-up service is Netscape by AOL. this is my 2nd time to
reach out to others with Lupus, after registering with
www.lupuscorner.org/. It was from there where I found out about this
other group, and it was created for menwithlupus. Thanks a lot for
creating this board for those others who walk their lives
misunderstood and at time, ignored because of it. :) More power!!!

According to my doctors here in Los Angeles, in the case of Lupus
(some known cases, at least) have an incubation/developmental period
of 15 years. So if you happen to suffer from unexplained fainting
spells years before your diagnosis and negative medicals related to
that experience, Lupus may just be nudging for early attention. And
yes, Lupus can come at any point of your life. In my case, i was 34
when the initial joint-pains began. I was working then. Now, thanks to
Lupus I see my future rather scary and bleak. I have no confidence at
all that somehow, someway... I can still make a difference, in spite
of it!

--- In menwithlupus@yahoogroups.com, Mike Whitmore <nsemikew@...> wrote:
>
> wow it hits at a young age then?? i might have had
> symptoms of this for years and not ever known..has it
> done any organ damage to you?
>
> --- cathalexal <cathalexal@...> wrote:
>
> > I'm 26, male, and suffering.
> >
> > I have been somewhat yet not officially chasing this
> > mess down since late 98. I still don't have
> > a diagnosis. But unofficially my doctor has
> > confirmed UCTD with an inclination to lupus or
> > scleroderma due to my blood tests from back yonder
> > when. We believe it has relation to do
> > with my hand skin condition, but it's unverified.
> >
> > As of late, I haven't had activity of disease, and
> > been doing good. But as it is, auto-immune is
> > very devious. It's prone to attack with absoutely no
> > warning. As such, my hands exploded this
> > week and I couldn't breathe.
> >
> > Hopefully, soon, I shall have a blood test where my
> > doctor can help further a dx and get me
> > some relief.
> >
> > I have a litany of complaints regarding pains
> > encountered over the last half dozen years. But
> > I'll refrain from doing so until I definitely can
> > detail them. I seriously doubt "feeling like I've
> > been runned over by a train" is a qualified
> > description. :)
> >
> >
> >
>
>
>
>
> ____________________________________________________
> Start your day with Yahoo! - make it your home page
> http://www.yahoo.com/r/hs
>

Hi! My name's Robert and I was diagnosed with SLE with kidney
involvement 3 years ago, although the poly-articular (multi-jointed)
arthritis attacks have been with me 3 years before that. The doctor
who saw me here in Los Angeles suspected that the weakening of my
kidneys was due to my many previous experimentation of NSAID drugs in
the Philippines (where I came from).

Back then, on its initial onset, it took 3 months of dealing with
excruciating joint pains before I agreed to see a doctor. the local
internists in manila were quite baffled as to whatever I was suffering
from! I cannot move without pain shooting through every joint in my
body, from my jaws down to my feet, yet without any signs of swelling
nor inflammation. I was just turn 34 then. And out of 8 different
specialists, only one thought of prescribing Prednisone that began at
20mg per day and settled on 10mg daily. That really helped me out!
Thank God for that WQonder Drug. Later on, through research I found
out about the many side effects related to the drug. I half-cared
about that and focused more on the return of physical mobility and
freedom it granted me.

When I migrated here 4 years ago my family told me to quit taking
Prednisone, as it's bad for me and my body. Back then no one knows yet
what was wrong with me. Some believed that probably I was thinking I
was sick but I'm not, or that maybe something is really wrong inside
of me. You see, being the 13th child, I was known to fake my ailments
in the past. "The boy who cried Wolf", to put it mildly. So it took
some time before my siblings did decide to have me checked! 5 months
without Prednisone and before my official diagnosis and emergency
treatment at a UCLA hospital in Los Angeles, California.

Those 5 months of Prednisone-free period cost me my weight, appetite,
unexplainable joint pains that left me close living like a dying plant
with no means of self-powered motion nor mobility. At nights (it
didn't matter whether it was winter, spring nor summer-- I was always
chilling), I had to croak at my wife beside me to turn me on my left
or right side because I can't do it myself. I suffered hairloss due to
taking 300mg Celebrex given by my Mom who thought it might help. I
found out later on that her doctor wrote her the medicine to buy for
me and thought it might work in place of Prednisone!

I couldn't take regular bath because I can't leave my room without
feeling cold and faint. At one time when my wife bathe me, I lost
consciousness for some minutes. I weighed 170 pounds when I first
arrived here but inside those 5 trying months, it fell down to 107! I
was severely anemic by the time my brother drove me to the hospital. I
was swarmed by 6 specialists as soon as word spread about a 36-year
old man who looked 80 because of an unknown sickness! they checked me
up in a separate private room in the vowels of Emergency Section and
tested my range of motion, joints and poured through what medical
records I brought with me.

Then blood sample were drawn and x-rays were done. My brother waited
for me till I was free to go after 6 hours. I was advised to return
the next day for more tests. And that continued on till now. I've gone
through 2 months' administration of 100mg Imuran; 10 months worth of
(IV-based chemotherapy for) Cytoxan and up to 3 grams daily dosage of
Cellcept (Mycophenolate Mofetil) capsules. My daily Prednisone stayed
at 10mg as my standard maintenance dose. Lower than that would mean
not being able to be on my feet longer than an hour. My hips, legs and
feet would then exhibit tell-tale signs of fatigue and unwanted
discomforts I wouldn't bet to go through again.

So now, at 40, I am at my best form (or so say my doctors). Except for
the high presence of protein in my urine, other tests done me are
within acceptable levels. My kidneys are doing better now and all
blood cells also normalized. They're still watching over me though.
Lupus can be one's worst enemy, and they don't want to see me go back
to where they painstakingly tried to reverse.

I am thankful to find my temporary freedom through my prescribed drugs
and the many doctors that supervised my progress. At the moment, I'm
nursing through another complication that almost set me back October
last year: Shingles! I still suffer from itches
(post-herpetic-neuralgia) associated with it so that meant more meds
to counter it were added to my regular Lupus prescriptions!

One thing about having Lupus is: with our autoimmune system weakened,
anything can happen by to compromise our general health. So you better
take care what you do to yourself. Acquiring diabetis through
over-eating is not a welcome note either. Stay away from people with
flu or sniffles. You never know what type of viral mutation will
startup later for you.

I guess I can enjoy the sun far longer than most Lupus patients, but I
try not to overdo it. Hopefully, someday... somehow, a cure for all of
us will come around to permanently free us from all this and enjoy
much fulfilling lives! Take care, everyone!

--- In menwithlupus@yahoogroups.com, "lupusman_2001" <n6vfp@...> wrote:
>
> I'm Alan, age 57 and have had Lupus since 1974, with involvement of
> the kidneys and possibly lupus cerebritus (-5 for spelling). I've
> undergone biopsies, bone marrow extractions, and about every other
> procedure known to man. I've been in 'remission' since 1980 or so, and
> except for minor flares and still being on prednisone (5 mg./daily) am
> doing okay. I've spent weeks in a hospital and spent one hellish week
> in a coma (thnk you Lupus).
>

Hi,

I'm not male but put up this group for guys.  I do have lupus and
have been a lupus support group leader for many years.

Unfortunately many people with lupus do get joint pain.  My own was
quite severe before I was given medication.  I had trouble holding a
spoon and fork, opening doors, getting myself out of bed or in and
out of a chair.  I got stuck in movie theaters and even on toilets.
I also started to lose my speaking voice as the vocal joints were not
working properly, and even today I get some really nasty chest pain
from the joints in the chest wall.

It does have to be treated by a doc who cares!

Best wishes,
Pam





--- "Jaye P." <sk84momtoo@...> wrote:

> My friend George has had lupus for almost 14 years now.  I am new
> to
> the disease and am trying to be supportive.  He is in a flare right
>
> now with severe joint pain in his hands and feet such that I am
> worried whether he can walk.  We were at a dr appt last week and I
> was
> surprised that the dr seemed very nonchalant!  Is this normal??  I
> would like to hear from men with lupus (or their wives/girlfriends)
>
> with any suggestions as relates to this terrible disease.  Thanks
> in
> advance!!
>
> Jaye P.
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>


--
Pam
xbeepx@...  Blog: http://www.livejournal.com/users/beepbeep
Petition on coming energy crisis:
http://www.thepetitionsite.com/takeaction/295370344

__________________________________________________
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i would not know the slightest about the joint
pain...that doesnt seem too threatening especially
when the disease can stop your heart or put you into a
coma...i guess if it is really severe to the point
where the pain feels like you might go into shock i
would say its time to visit the emergency room

--- "Jaye P." <sk84momtoo@...> wrote:

> My friend George has had lupus for almost 14 years
> now.  I am new to
> the disease and am trying to be supportive.  He is
> in a flare right
> now with severe joint pain in his hands and feet
> such that I am
> worried whether he can walk.  We were at a dr appt
> last week and I was
> surprised that the dr seemed very nonchalant!  Is
> this normal??  I
> would like to hear from men with lupus (or their
> wives/girlfriends)
> with any suggestions as relates to this terrible
> disease.  Thanks in
> advance!!
>
> Jaye P.
>
>
>
>




__________________________________________
Yahoo! DSL – Something to write home about.
Just $16.99/mo. or less.
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My friend George has had lupus for almost 14 years now.  I am new to
the disease and am trying to be supportive.  He is in a flare right
now with severe joint pain in his hands and feet such that I am
worried whether he can walk.  We were at a dr appt last week and I was
surprised that the dr seemed very nonchalant!  Is this normal??  I
would like to hear from men with lupus (or their wives/girlfriends)
with any suggestions as relates to this terrible disease.  Thanks in
advance!!

Jaye P.

weeks in the hospital and the coma....were those at a
later age or earlier? what happens during a minor
flare? your in remission with just 5mg of pred a day?
shit im on 60 and 400 mg of plaqiunil...cerebritus is
when it attacks the brain??

also please tell me more about the kidney involvement

--- lupusman_2001 <n6vfp@...> wrote:

> I'm Alan, age 57 and have had Lupus since 1974, with
> involvement of
> the kidneys and possibly lupus cerebritus (-5 for
> spelling). I've
> undergone biopsies, bone marrow extractions, and
> about every other
> procedure known to man. I've been in 'remission'
> since 1980 or so, and
> except for minor flares and still being on
> prednisone (5 mg./daily) am
> doing okay. I've spent weeks in a hospital and spent
> one hellish week
> in a coma (thnk you Lupus).
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

I'm Alan, age 57 and have had Lupus since 1974, with involvement of
the kidneys and possibly lupus cerebritus (-5 for spelling). I've
undergone biopsies, bone marrow extractions, and about every other
procedure known to man. I've been in 'remission' since 1980 or so, and
except for minor flares and still being on prednisone (5 mg./daily) am
doing okay. I've spent weeks in a hospital and spent one hellish week
in a coma (thnk you Lupus).

wow it hits at a young age then?? i might have had
symptoms of this for years and not ever known..has it
done any organ damage to you?

--- cathalexal <cathalexal@...> wrote:

> I'm 26, male, and suffering.
>
> I have been somewhat yet not officially chasing this
> mess down since late 98. I still don't have
> a diagnosis. But unofficially my doctor has
> confirmed UCTD with an inclination to lupus or
> scleroderma due to my blood tests from back yonder
> when. We believe it has relation to do
> with my hand skin condition, but it's unverified.
>
> As of late, I haven't had activity of disease, and
> been doing good. But as it is, auto-immune is
> very devious. It's prone to attack with absoutely no
> warning. As such, my hands exploded this
> week and I couldn't breathe.
>
> Hopefully, soon, I shall have a blood test where my
> doctor can help further a dx and get me
> some relief.
>
> I have a litany of complaints regarding pains
> encountered over the last half dozen years. But
> I'll refrain from doing so until I definitely can
> detail them. I seriously doubt "feeling like I've
> been runned over by a train" is a qualified
> description. :)
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

I'm 26, male, and suffering.

I have been somewhat yet not officially chasing this mess down since late 98. I
still don't have
a diagnosis. But unofficially my doctor has confirmed UCTD with an inclination
to lupus or
scleroderma due to my blood tests from back yonder when. We believe it has
relation to do
with my hand skin condition, but it's unverified.

As of late, I haven't had activity of disease, and been doing good. But as it
is, auto-immune is
very devious. It's prone to attack with absoutely no warning. As such, my hands
exploded this
week and I couldn't breathe.

Hopefully, soon, I shall have a blood test where my doctor can help further a dx
and get me
some relief.

I have a litany of complaints regarding pains encountered over the last half
dozen years. But
I'll refrain from doing so until I definitely can detail them. I seriously doubt
"feeling like I've
been runned over by a train" is a qualified description. :)

Anyone who meets another man with lupus or who has a place to promote
this new group, the link to it is
http://health.groups.yahoo.com/group/menwithlupus .

--- In menwithlupus@yahoogroups.com, Mike Whitmore <nsemikew@y...> wrote:
> Hi,
>
> I'm mike 28 and have lupus glumarianephritis...im
> pretty scared...but optimistic
>

Hi Mike,

I'm Pam and am age 42.  I have been diagnosed with lupus since 1985
and have been a lupus support group leader for many years.  I started
this group because over the years there have been many men with lupus
who asked if there were a group for men!

Welcome to you and our other two members to this new group.

--- In menwithlupus@yahoogroups.com, Mike Whitmore <nsemikew@y...> wrote:
> pam do you have aol?
>
> if not i can create you an account off of mine and you
> can go into the search and find men with lupus that
> have it listed in their profile

I do have aol, although I don't know how to do that kind of search!

Hi,

I'm mike 28 and have lupus glumarianephritis...im
pretty scared...but optimistic

--- Pam <xbeepx@...> wrote:

> Welcome to this brand-new group.  Now that there are
> two of you,
> hopefully you can introduce yourselves and
> conversation can begin :)
>
> I'm going to be working hard on getting the word out
> about this group
> over the next few months, so there should be more of
> you soon enough.
>
> Hugs,
> Pam
>
>
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

pam do you have aol?

if not i can create you an account off of mine and you
can go into the search and find men with lupus that
have it listed in their profile

--- Pam <xbeepx@...> wrote:

> I will be slowly adding links that have to do with
> lupus in the Links
> section of this group,
>
http://health.groups.yahoo.com/group/menwithlupus/links
> .
> Feel free to check these out and/or to add your own.
>
>
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

I will be slowly adding links that have to do with lupus in the Links
section of this group,
http://health.groups.yahoo.com/group/menwithlupus/links .
Feel free to check these out and/or to add your own.

Welcome to this brand-new group.  Now that there are two of you,
hopefully you can introduce yourselves and conversation can begin :)

I'm going to be working hard on getting the word out about this group
over the next few months, so there should be more of you soon enough.

Hugs,
Pam