It's been a while since I visited this board.  I guess men with lupus

won't easily come out in the open and share their views or experiences

regarding this disease.  I cannot say I'm way past that notch where I

have accepted my fate as having it but, I am hoping that I'd live long

enough for its cure to materialize.



Now, the net is full of both information and list of vitamin

supplements that may help lessen the weakening effects of this

disease.  Yet, in spite of such hollow promises, I never once tried to

purchase any but stick to all 37 maintenance meds my doctors give me.

  Of course, there are days when (out of my own frustrations) I skip

out on any of those meds.



My last week's visit to my Renal doctors though made me re-think my

drug rebellion and am now trying to take every single pill included in

my daily regimen because of the sudden aggressive activities of this

disease in my body.  Or so my doctors tell me.  Both Creatinine and

Protein levels shot up-- enough for my doctors to be alarmed.  So, the

only reason I know behind this were those days when I skipped my meds.



For anyone who has SLE, try not to repeat my mistake(s).  It's

unhealthy for us who have it, for life.  I will try to reform my ways

where my meds are concerned and change my attitude towards my timely

administrations.  Bitter and icky as they all come, we just don't have

any choice but to take every one of those pills.



I normally drink orange juice or iced tea where small but bitter pills

(Prednisone, Plaquenil, Lasix, Losartan, Vytorin, Lotensin, Fosamax)

are concerned.  The bigger pills go best with water because, either

they're bland to the taste or merely chalky (Os-Cal, Neurontin,

Renagel, CellCept).



For a while, this board was assailed by unknown spammers-- advertising

products unrelated to Lupus nor SLE.  Pam, our Moderator, has been

warm and generous with her time by keeping the SHIP afloat.  So sorry

I seldom appear, Pam.  But new members are indeed welcome to come

share their mind(s).  :D



I hope whoever drops by could just holler around and we'll try to echo

back.



Peace!



~Rob

I will just keep it open and alive until you guys finally talk ;)



--Pam





--- In menwithlupus@yahoogroups.com, "flash_sphere" <flash_sphere@...> wrote:

>

> It's been a while since I visited this board.  I guess men with lupus

> won't easily come out in the open and share their views or experiences

> regarding this disease.  I cannot say I'm way past that notch where I

> have accepted my fate as having it but, I am hoping that I'd live long

> enough for its cure to materialize.

>

> Now, the net is full of both information and list of vitamin

> supplements that may help lessen the weakening effects of this

> disease.  Yet, in spite of such hollow promises, I never once tried to

> purchase any but stick to all 37 maintenance meds my doctors give me.

>  Of course, there are days when (out of my own frustrations) I skip

> out on any of those meds.

>

> My last week's visit to my Renal doctors though made me re-think my

> drug rebellion and am now trying to take every single pill included in

> my daily regimen because of the sudden aggressive activities of this

> disease in my body.  Or so my doctors tell me.  Both Creatinine and

> Protein levels shot up-- enough for my doctors to be alarmed.  So, the

> only reason I know behind this were those days when I skipped my meds.

>

> For anyone who has SLE, try not to repeat my mistake(s).  It's

> unhealthy for us who have it, for life.  I will try to reform my ways

> where my meds are concerned and change my attitude towards my timely

> administrations.  Bitter and icky as they all come, we just don't have

> any choice but to take every one of those pills.

>

> I normally drink orange juice or iced tea where small but bitter pills

> (Prednisone, Plaquenil, Lasix, Losartan, Vytorin, Lotensin, Fosamax)

> are concerned.  The bigger pills go best with water because, either

> they're bland to the taste or merely chalky (Os-Cal, Neurontin,

> Renagel, CellCept).

>

> For a while, this board was assailed by unknown spammers-- advertising

> products unrelated to Lupus nor SLE.  Pam, our Moderator, has been

> warm and generous with her time by keeping the SHIP afloat.  So sorry

> I seldom appear, Pam.  But new members are indeed welcome to come

> share their mind(s).  :D

>

> I hope whoever drops by could just holler around and we'll try to echo

> back.

>

> Peace!

>

> ~Rob

>