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I had to experiment to a wide variety of anti-inflammatory medicines in the past, just to help alleviate the immobilizing pain I was undergoing for about 2 years... and I guess, those self-medications that I did only worsened my condition and further battered my weakening kidneys by shrinking both to almost half their sizes.
I went through 2 kidney biopsies; numerous bone and joint x-rays; IV-based chemotherapies; closely-supervised blood and urinalyses since I was correctly diagnosed by internists at UCLA-Olive View Medical Center (Sylmar, CA), including visits to their Physical Therapy Clinic so I could regain my mobility and independence from crutches and my cane. I lost weight and was anemic as well, so I had to slowly try other diets just to rebuild what I lost and try my best in keeping unwanted weight off. But then, that's another matter you'll soon be hard-pressed, keeping! :)
Right now, I'm on a wide variety of drug combinations that help suppress the disease and also counter the varied side effects given by such as well! There are times when I get really tired of taking them and skip my doses but that move only gave this condition the extra boost to further assail my already severe case.
My advice is to go get a 2nd and 3rd opinion from different specialists so that you can then put to rest what is ailing you. You're lucky to have met an uncle who had this disease! I don't know anyone from both sides of my family to have had this disease so I am lead to believe that I was the first.
It is indeed enlightening, once you find out what's up and then you will try your best to stay clear from anything that may only cause more complications to your fragile body. Good luck and I hope you'll find your answers soon.
Yours,
~Robert
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