I will just keep it open and alive until you guys finally talk ;)

--Pam


--- In menwithlupus@yahoogroups.com, "flash_sphere" <flash_sphere@...> wrote:
>
> It's been a while since I visited this board. I guess men with lupus
> won't easily come out in the open and share their views or experiences
> regarding this disease. I cannot say I'm way past that notch where I
> have accepted my fate as having it but, I am hoping that I'd live long
> enough for its cure to materialize.
>
> Now, the net is full of both information and list of vitamin
> supplements that may help lessen the weakening effects of this
> disease. Yet, in spite of such hollow promises, I never once tried to
> purchase any but stick to all 37 maintenance meds my doctors give me.
> Of course, there are days when (out of my own frustrations) I skip
> out on any of those meds.
>
> My last week's visit to my Renal doctors though made me re-think my
> drug rebellion and am now trying to take every single pill included in
> my daily regimen because of the sudden aggressive activities of this
> disease in my body. Or so my doctors tell me. Both Creatinine and
> Protein levels shot up-- enough for my doctors to be alarmed. So, the
> only reason I know behind this were those days when I skipped my meds.
>
> For anyone who has SLE, try not to repeat my mistake(s). It's
> unhealthy for us who have it, for life. I will try to reform my ways
> where my meds are concerned and change my attitude towards my timely
> administrations. Bitter and icky as they all come, we just don't have
> any choice but to take every one of those pills.
>
> I normally drink orange juice or iced tea where small but bitter pills
> (Prednisone, Plaquenil, Lasix, Losartan, Vytorin, Lotensin, Fosamax)
> are concerned. The bigger pills go best with water because, either
> they're bland to the taste or merely chalky (Os-Cal, Neurontin,
> Renagel, CellCept).
>
> For a while, this board was assailed by unknown spammers-- advertising
> products unrelated to Lupus nor SLE. Pam, our Moderator, has been
> warm and generous with her time by keeping the SHIP afloat. So sorry
> I seldom appear, Pam. But new members are indeed welcome to come
> share their mind(s). :D
>
> I hope whoever drops by could just holler around and we'll try to echo
> back.
>
> Peace!
>
> ~Rob
>