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Reply | Forward Message #14 of 33 |
Re: [menwithlupus] Help!!

Hi,

I'm not male but put up this group for guys. I do have lupus and
have been a lupus support group leader for many years.

Unfortunately many people with lupus do get joint pain. My own was
quite severe before I was given medication. I had trouble holding a
spoon and fork, opening doors, getting myself out of bed or in and
out of a chair. I got stuck in movie theaters and even on toilets.
I also started to lose my speaking voice as the vocal joints were not
working properly, and even today I get some really nasty chest pain
from the joints in the chest wall.

It does have to be treated by a doc who cares!

Best wishes,
Pam





--- "Jaye P." <sk84momtoo@...> wrote:

> My friend George has had lupus for almost 14 years now. I am new
> to
> the disease and am trying to be supportive. He is in a flare right
>
> now with severe joint pain in his hands and feet such that I am
> worried whether he can walk. We were at a dr appt last week and I
> was
> surprised that the dr seemed very nonchalant! Is this normal?? I
> would like to hear from men with lupus (or their wives/girlfriends)
>
> with any suggestions as relates to this terrible disease. Thanks
> in
> advance!!
>
> Jaye P.
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>


--
Pam
xbeepx@... Blog: http://www.livejournal.com/users/beepbeep
Petition on coming energy crisis:
http://www.thepetitionsite.com/takeaction/295370344

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Sat Jan 14, 2006 11:05 am

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Message #14 of 33 |
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My friend George has had lupus for almost 14 years now. I am new to the disease and am trying to be supportive. He is in a flare right now with severe joint...
Jaye P.
sk84momtoo
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Jan 10, 2006
3:02 pm

i would not know the slightest about the joint pain...that doesnt seem too threatening especially when the disease can stop your heart or put you into a ...
Mike Whitmore
nsemikew
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Jan 10, 2006
6:19 pm

Hi, I'm not male but put up this group for guys. I do have lupus and have been a lupus support group leader for many years. Unfortunately many people with...
Pam
xbeepx
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Jan 14, 2006
11:06 am
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