I go to Methodist in Indy tomorrow at 1pm....Lori thanks so much for your mail...I would love to hear more if you feel like it ! Jane [Non-text portions of...
Hi all, I am writing this to lots of people and look forward to input of any kind. Here's how my appt today with the neurosurgeon went. First of all we waited...
... From: Dennis/Jane Arnholt To: toypoodlefun@yahoogroups.com Sent: Friday, October 16, 2009 8:42 PM Subject: Jane's appt Hi all, I am writing this to lots of...
Hi Jane, How big is your tumor? If it's not very big, doctors like to take the wait and see approach, if it's not causing any issues. Also if it's not to...
Zolt, my tumor is a little over 2cm and is on the right optic nerve and on the carotid artery. I am anxious to see my opthalmologist this Tues....he knows my...
hey everyone, its so fun to see my neuorologist and neurosurgeon fighting over what is causing my seizures. the surgeon disagrees that it is the surgery for...
I am somewhat disturbed to read so many posts from fellow M's regarding the medical care, or lack thereof, that they are getting, including the attitudes of...
Here is a statement on a Website that gives you the answer: "Some causes of seizures include brain damage due to trauma, tumors or other brain lesions,...
I don't remember if I told you, but my tumor is 2.5 cm and he said it is pressing on my optic nerve. I am seeing my local opthalmologist Tues at 8:15. hugs ...
Having just gone today to the National Brain Tumor Society's SoCalWalk felt I needed to comment on this thread especially...after having partial removal of my...
The Doctors have determined that I to am having seizures. I think I passed out one day, the neurologist thinks it was a seizure and the dogs were the only...
Here is a good explaination on the numbness as being seizures. To read the full article go to http://www.epilepsy.com/epilepsy/seizure_simplepartial Sensory...
lori, hmmmm doubling migraine meds to take care of seizures, thats like doubling your asprin dosage to take care of hig blood pressure. doesnt make much sense....
I drfinitely have a couple of different kinds of seizures. 'Specially the one where you smell something that is not there. I am always smelling smoke and...
Hi all, Jane here. I am the new member in IND that posted last week about the neurosurgon from hell visit, remember? : ) I saw my opthalmologist today, I...
Hello I had one on left optic nerve but unfortunately it damaged the nerve, compressed the nerve and I am blind in that eye now. I see a dr at Johns Hopkins...
Mine was impacting both optical nerves and caused blind spots in both eyes - having vision problems is why I originally went to my optometrist.... she realized...
Hi Jane, Mine is on the right side. I was having double vision and a nuero opthamologist had me get an MRI. Kathy ________________________________ From:...
I had a craniotomy in June 2005. They were not able to remove the whole tumor so I had Gamma Knife in August 2005. There was regrowth in 2008 so I had...
Thankyou for admitting me to this group. I had surgery to remove a meningioma that was compressing my 5th cranial nerve, that runs across the upper jaw. I...
Welcome Meg!! I sure hope they have found a med that will keep you pain- free! There is nothing quite like nerve pain. Are you on Neurotin or Gabapentin? All...
Does anyone have nerve pain in their legs? My tumor was on the right side, with left side weakness as a symptom. Ever since the surgery last November, I...
Hi I had my last surgery in 2002 and i am left with trigemial neuropathy and i would not wish it on my ex husband HA! HA! [we need a little humor].But...
I am on gabapentin and Tylenol. My primary doc is pretty conservative and since gabapentin has the fewest side effects, left me on it. I really don't think it...
I have it too. My docs (after 6 years of this) just told me there are no good options left for my TN. They say even morphne type drugs won't help this type...
Hello Annette, Â Â 6 years is a terribly long time to be in so much pain! What have your doctors done to try to find a cause for it? I was having severe pain...
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