I am a new member to the meningioma group. I had a meningioma taken out last summer (2008). I had brain swelling and spent a lot of time in ICU. I am still...
Unfortunately, I cannot get other opinions, because we live in Central California, and only UCSF and UCLA and another doctor in So Cal (don't remember the...
I probably should have put my background on here, too. I have had scoliosis since a teenager, too. I had back surgery as a teenager (1974). Recently, I had...
Hi everyone, I really appreciated hearing from you, one person of whom shared her experience with gamma knife for her M. I hope to hear from more people who...
HI Carol, I haven't had my surgery for my M yet (jan 28th) so I can't speak from direct experience yet. It sounds like your recovery has not been typical. If I...
Are you a vet. I had the best care in the world at Madigan army hospital. cheers Gayle To: meningioma@yahoogroups.com From: uk_la_ca@... Date: Sun, 4 Jan...
Unfortunatly there's no one to take me to SoCal. ... from direct experience ... you, I would really make ... with you to SoCal, maybe ... you? Sounds like you ...
Carol, I know what it is like to not have anyone available for such situations, I have the same problem. Unfortunately I am on the east coast (PA), but if I...
Dear Carol, I got this contact information below from dear Al Musella in NJ?(he lost several of his own family members to bts years ago)?he provides us free of...
My name got mixed up with the other Carol I think in CA. I don't mind because I read everyone's comments anyway, but I don't know if the other "Carol" is...
Hi, Carol. This is Nancy from MI. I think I am the one with the foot of snow. I live in Jackson. Where do you live? I had my surgery done at Harper in the...
Hello everyone: I haven't posted for a while, but am just wondering about the various meds people have been prescribed. I have been on Keppra for the past 3+...
I have been on Lamictal five years now after having problems with Tegretal family and I have not had any problems and they just came out with a generic for...
I took Keppra for three months. I turned into Jekyll-Hyde personality who wanted to harm people. I am now on Lamictal & Topamax mix with no side-effects,...
No other generic seizure med worked but this one does and as I have no prescription insurance as long as the generic works for me I will use it. Every case...
Who is Nicholas Butowski, MD? Is he from California? San Francisco and LA are both 4 hrs. away, and Bakersfield is only an hour away. Yea, I have gotten NBTF...
Carol and Suz.... I know that there are church groups and other similar organizations that you can call for assistance getting to a doctors appointment. Try...
Dear Karen, I was on 6 or 7 (I lost track) different anti-seizure meds, each with its own very serious side effects. My last stand was going to be a switch to...
Thank you Renee, I will check with one church that I attend when I can. I always feel a bit uncomfortable with asking a church for help if I am not a member...
It gives me hope to help me--I'm so isolated. I will try to contact one of the local organizations. Maybe there's a ABTA organization locally. (?) I also...
Dear Jan McCormack, I haven't heard much from you in many years since you used to be a regular with us on the JHU meningioma list and I remember how thrilled I...
Hi Karen and all, I've been on Keppra since before my M was diagnosed, am now over 2 yrs post-resection and dose was upped to 1250, 2x's/day right after...
Never mind about the other Carol and the mix up, I just realized what happened,boy do I feel stupid! Must have had a brain fart! Anyway Nancy I am from The UP...
Has anyone heard of severe allergies or an allergic reaction to something such as to mold or black mold? I have made a pretty good connection to such a...
I want to clarify what I was trying to say...my apologies...meds and tired from work has my brain a bit jumbled tonight. I was wondering if anyone made a...
Hi Suzette, I am not sure if we met before on here But I have TN and a tumor on the trigeminal nerve/ pons. I have had radio surgery on mine. Anyway a tooth...
I read stuff from the website online, not from personal e-mail. So, I didn't reply to the e-mail from Anne Breen. (I deleted it--trash) Then when the...
DEAR CAROL. THANKS FOR DOUBLE CHECKING ON ME AND FINDING the UCSF Hospital Contact STUFF?I SENT YOU HON To me, thats a good sign that YOU will double check...
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