Just found this list & signed on. Have had a meningioma (2 actually, but one is a trouble-maker) for about 5 years. Location: cavernous sinus. Had stereotactic...
Hi, I wonder if anybody has experienced pulsatile tinnitus. My meningioma is thin but spread out over large area, extending all the way to the left ear canal,...
-What bad things have you heard about the dye? I have the same situation - cavernous sinus meningioma, sterotactic radiation done, am now at 3rd follow up...
There are supposed to e side effects from people with Kidney disease. There are some articles if you google. As far as I know you have to have contrast for...
Well, it seems like almost every year there's a new FDA warning about gadolinium. It's definitely no good if there are kidney problems.... and that it can take...
Well bless you ROSE! In all the years before and after my M removal (right parietal lobe, lemon size, two dural tails, removed 2-21-03, residual tumor on blood...
Hello all, It's been awhile since I have posted, hope someone here can lead me in the right direction on behalf of my sister-in-law. As for my own background,...
Dear Nancy, So glad to hear you are doing well and getting regular follow-up MRI check ups three years post-op. ?From my own experience, I believe the longer...
Hello everyone. I had my first surgery for a meningioma in 1995. It was a skull based tumor, they said in the worst possible place it could be because it was...
I am not on any meds at this time. I stopped my meds because they did not do enough good to put up with the side effects they caused. I have regular MRI's to...
Your situation sounds similar to mine. I had a craniotomy in 2005. They were unable to get the entire tumor so I had gamma knife. The side effects were...
Ok, I'm probably going to be on anticonvulsants for the rest of my life and so will most of the people with Meningioma. I went 30 years without the Meds and it...
Kathy....what kind of side effects did you have from the gamma and cyber knife treatments? All I had was some swelling around my eyes that started going away...
I forgot to mention that I had the Trilogy treatment which is the newer version of the Gamma and cyber knife treatments...but basically the same. With the...
The side effects were almost complete paralysis of the left side of my body and the right side of my face. It took 5 months of therapy speech, occupational and...
ok...I don't mean to sound stupid here but need to ask again.....are these side effects from the actual gamma knife treatment and the cyber knife treatment or...
The doctors don't know why this is happening. They can give me no explanation at either hospital. One doctor said that he heard of it happening with a certain...
Unfortuneately, I don't know of any. If I come across anything, I'll post it. I am thinking of going to the Meningioma Awareness Day conference in Boston. ...
Dear Anne, How very kind of you to respond, and so quickly :) You probably don't recall as there are so many you correspond with on here, but I will never...
Hi, Kathy, I am in SC. I had my first surgery at Emory University in Atlanta. At the time, I had the option of going to the Mayo Clinic or Emory. They said I...
Me too! (Boston) ... post it. I am thinking of going to the Meningioma Awareness Day conference in Boston. ... know. I am in Fairfield county. ... They were...
This is for mebe 19752.....sorry, I don't know your name..... I also had my surgery at Emory in Atlanta, GA.....I had two tumors removed, one at the base of my...
WOW, I also had Dr. Barrow. But I did not have gammaknife there. I had that done at Baptist Medical Center, Wake Forest, NC. Dr. Tatter is my doctor there and...
Yes, I live in Ga, just outside of Atlanta.....about 20 - 30 minutes from Emory. I was referred to Dr. Barrow as one of the best there is. There is a book...
My dear Meningimates, I have been reading your?emails about your short and longterm side effects of brain tumor treatment and your mental recovery status with...
Thank YOU Anne, for everything you said. How true it is. You know that was something I always wondered after my first surgery, after I became emotionally...
Hello Kathy, I'm in Tucson Arizona, and I contacted the social workers at the University of Arizona Medical Center and University Hospital to help me start a...
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