Hi everyone. I am new to this board. My mother was just diagnosed with a memingioma. It looks like surgery will be necessary, but I don't have much more...
Hello - I'm sorry to hear about your news. My daughter, now 18, was diagnosed with an optic nerve sheath meningioma in 2003 when she was 13. We went to Mayo...
Thank you for the responses so far, I really appreciate it. I also want to apologize because I just saw that I misspelled "meningioma". This is all so new and...
Hi Janine, In the Maryland area, Johns Hopkins in Baltimore has many neurosurgeons who are tops, including Dr. Brem. I went just this week to a Dr. Quinones...
Hi, people! Once more, I'm needing your help. As I told you ago, a person in my family had a meningioma (falx and parasagittal 6 cm in right hemisphere). She...
My surgeon was also Dr. Brem who is the director of the Neurosurgery department at Hopkins. They have a great staff and provide continuous support throughtout....
Haven't really posted in a while, but I just had a memory about staples. Back in 1980, I had surgery in my knees to stop me from growing (Long story)and they...
Hi Im new to this group I had a meningioma removed 3 yrs ago. Lately I have been having ocular migraines, this is where I see lighting bolts in my eyes. It...
Thanks for the info Brad ... From: zo To: meningioma@yahoogroups.com Sent: Friday, July 11, 2008 8:42 PM Subject: Re: [meningioma] Ocular Migraine Welcome to...
Thank u Zo for the insite regarding ocular migraines. I thought I was going insane until I pulled up that link you attached. I had mu Meni removed back in...
Here are two very famous, good, doctors: Michael Sisti at Columbia Presbyterian in NYC - Webster Pilcher at Strong Memorial in Rochester, NY. Also - Cleveland...
I Too, had these symptoms after my M was removed last year. I was told by my neuro doc that it sound like a migraine aura, but because I never got a migrain...
Hi I live in Pa too. I just wanted you to hear my story incase you can draw any valueable information from it. I'll keep it brief and non-descriptive. In...
Well mine has not grown in years and until it becomes a problem i will leave it alone too Joan Allen <haikuplum@...> wrote: Hi I live in Pa too. I just...
Hello there, Wow, i'm glad i sent that link :) When i first noticed auras happening, it was a total shock and not knowing anything about what they were...
Mine was very small too, but near the optic nerve and carotid artery. I had no symptoms, but even tho it is slow growing, I was advised that due to a youngish...
By the way, not everyone's meningioma is tiny. Some are discovered because of extreme symptoms. The poster's mother was told she needed surgery. Maybe she...
... In my case, the meningioma was approximately the size of a standard slice of bread, and it was causing symptoms that I could not co-exist with. Removal...
I had heard about the retinal problem and that scared me, but my ophthalmologist agreed with my neuro that it was migraine aura. And luckily I haven't had one...
Hi. First, I need to apologize for not participating as I should, but I've been down with aura & migraines more than I've been up. Now I know it IS aura. My...
Greetings, The Brain Science Foundation has just announced that it is offering a limited number of scholarships based on need, to help cover the cost of...
Update on Meningioma Awareness Day 2008! Greetings, The Brain Science Foundation has just announced that it is offering a limited number of scholarships based...
Just found this list & signed on. Have had a meningioma (2 actually, but one is a trouble-maker) for about 5 years. Location: cavernous sinus. Had stereotactic...
Hi, I wonder if anybody has experienced pulsatile tinnitus. My meningioma is thin but spread out over large area, extending all the way to the left ear canal,...
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