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Topics   (List as Individual Messages) Messages Latest Post

Hi everyone! I'm still here, following the posts on the group. It's almost over for me, I'm off the dilantin and haven't had any seizures. The latest MRI...
2 Apr 15, 2006
10:55 am

Carmen Rickard
rickardcarmen
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I plan on asking my NS this question in a few weeks but thought I'd bounce it off my M friends first. With summer fast approaching, we are planning a trip to...
7 Apr 12, 2006
4:42 pm

Jill Sheldon
sunnydayladyca
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Hello All My NS has just written to me to say that he agrees with my request for a second opinion. I've been told there is nothing they can do with my M, too...
6 Apr 12, 2006
1:22 pm

Carmen Rickard
rickardcarmen
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Hi. I am new to the group. I am from NW suburbs of Chicago, married with 3 kids. I was diagnosed with a small (1 cm) left parietal Meningioma. Although it is...
27 Apr 4, 2006
11:28 pm

Deby Inguaggiato
mrstravler
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Welcome to Cheryl, Sharon, and Anyone Else who's new. A really good book that helped me through my hospitilization and afterwards was this one, I highly...
1 Mar 31, 2006
6:36 am

134emily
emilyduffyuu
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Hello all, I am Cheryl and I found out I have a 99% chance Meningioma tumor about the size of a golf ball in the midline frontal lobe. Acutally in the MRI...
7 Mar 31, 2006
12:54 am

Jill Sheldon
sunnydayladyca
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Thanks to everyone who responded. I guess everyone is busy. Margret Lankford mamalank@......
4 Mar 28, 2006
11:33 am

joyce sarno
dzyy007
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Hey all! Thanks to everyone who offered advice and support about finding a ns in Nashville. We have an appointment April 14th with Reid Thompson at...
4 Mar 27, 2006
4:49 pm

rebecca-m
luvin_ky
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Does that mean no one has any questions?...
71 Mar 24, 2006
7:54 pm

Deby Inguaggiato
mrstravler
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Hi I don't know if it is related to the tumor but I have muscle stiffness and I'm very achey. I've been tested and they could not find anything wrong. I...
5 Mar 24, 2006
1:58 pm

Kaye Joyce
kayetablerjoyce
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Hey all.. thanks for encouraging words. I gave blood today for my surgery and am ready and positive. I Thank god for every day and wont take anything or one...
4 Mar 23, 2006
8:52 pm

Margret Lankford
mamalankford
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Hi I am new to the sight and everything is happening so fast. I am scheduled for my surgery the 7th of apr. I found out about m Meningioma on the 3rd of March....
11 Mar 23, 2006
5:59 pm

rebecca-m
luvin_ky
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Hi They were not able to resect all of my tumor. When I ask my NS how much he took he said 70%. Now a year later he is saying he took 30%. I'm totally baffled...
3 Mar 22, 2006
1:19 am

Deby Inguaggiato
mrstravler
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Kaye, welcome to the group. I had a different location and type of tumor. I did gamma knife which is a type of radiation. Its been almost 2 years and I have...
1 Mar 18, 2006
7:39 pm

Margret Lankford
mamalankford
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I just read my message and realized I said 4 mm, it's 4 cm....
1 Mar 18, 2006
12:07 am

multi122000
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I am a new member with a 4mm M in the right temporal lobe. I am scheduled for surgery in June. The only symptom I have is a slight earache but this has been...
1 Mar 18, 2006
12:03 am

multi122000
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I cannot comment on veracity of seizures in an Apostle, but TREPHINING is a techniqque of drilling a hole in the skull with a sharp instrument. It has been...
1 Mar 17, 2006
4:36 pm

shilysca95@...
pmzeltze
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Every couple of months, I post, asking if anyone has had their M in this location. I've been unable to find anyone. I was told it was a rare location, but, I...
8 Mar 17, 2006
2:30 pm

rebecca-m
luvin_ky
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Agree!! I quite reading "Atonement." It started ok but after awhile....YAWN. On to more interesting stuff. I LOVE any of James Webb's historical novels. Try...
2 Mar 17, 2006
2:30 pm

rebecca-m
luvin_ky
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How did they discern that the apostle Paul had a tumor or a seizure? Where did this information come from. Interesting if true. I didn't think that they had...
4 Mar 17, 2006
2:23 pm

Edda R. Pittman
eddarp
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Becky, I got the whole group of Dollanganger books to read. My library has all but one. I shall try the Des Moines libraries. I told you about Laurell...
1 Mar 15, 2006
9:56 pm

Margret Lankford
mamalankford
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I am just a bit confused about what is going on. I have a meningioma on the right lobe of my brain - about the size of a pea - maybe bigger by now.... I went...
14 Mar 15, 2006
5:06 pm

Jill Sheldon
sunnydayladyca
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Hi. I'm a new member to the group. I just spent some time reading some of the old messages to bring myself up to speed. A little about me: I am a 40 y.o....
10 Mar 15, 2006
4:09 am

melloreb
calirn49
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Someone mentioned this earlier, I actually have it on my office wall, seeing how I work with kids with disablities. It was written by Emily Perl Kingsley who...
2 Mar 14, 2006
9:20 pm

Corine Dullemond
dullemond2000
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Is it hard to get books on "tape" where you live? Personally, I'd never keep listening past the first DVD if the story was boring. We have a pretty good...
1 Mar 14, 2006
6:10 pm

noelamy@...
amybertman
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Becky, I finished the V.C. Andrews book! I had read several and I had to get this one on tape as the library didn't have it on paper. I used to get books on...
2 Mar 14, 2006
2:40 pm

rebecca-m
luvin_ky
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Since January of 2006, the Braingels Fundraising Project has raised $1100 for 501 (c)(3) organizations supporting brain tumor patients and their families. As...
1 Mar 11, 2006
3:09 pm

Patricia Williams
trisha4080
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Hi Jill, who was your NS at UCSF? I had Dr. Lawrence Pitts, and Dr. Lawrence Lustig...my two Larrys. :-) They both had very good bedside manner (especially...
7 Mar 9, 2006
8:35 pm

134emily
emilyduffyuu
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Thank you for updating us; have been thinking of you both. Here's to continued progress for Joe; you are both very courageous and in my thoughts and prayers. ...
1 Mar 7, 2006
1:30 pm

nancynoreen
fiainros
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(Message 2572) This is the number of the message way back after Joe's Surgery.. Hi All., It has been a long while since I have posted. So much has been going ...
2 Mar 7, 2006
7:26 am

134emily
emilyduffyuu
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