Claudia, Your first paragraph speaks volumes. Suddenly, some of the life issues I had just don't seem that bothersome anymore. I live my life like my 6 year ...
I've had many people tell me this as well. I never heard of a M until I was diagnosed and suddenly people started coming out of the woodwork sharing their...
Sharon, I can so relate to the stairs issue. In fact, I just fell down the stairs two days ago! I was diagnosed on 1/11/2005 and I'm on watch and wait. My M...
I am a quiet and NEW member here, and I have started to have the "Drunk" Feeling too. My surgery is set for the 10th of April, so I hope all this will go away...
Yes Kathy I am in East Haven just the other side of New Haven and I work in West Haven. We are not that far apart. Nice to have someone in the state. Deby ...
Becky: I think that is a normal reaction. Just hearing the words brain tumor will make you think of your own mortality. And what the people around you would...
I had someone at work tell me yesterday that it seem to be going around that a lot of people have brain tumors. We have gotten close over the last year, his...
On the Kidney Foundation I don't know what happened with your friend, but a very close family friend of ours husband had his kidneys fail. the foundation was...
Sharon, I can relate to many of the things you said. I have been "without" my "M" for 10 years and 4 months. I say without, meaning while it was removed...
This happened about 15 years ago....things could of changed some. Poor girl's hubby left her and her son high and dry and they ended up on aid, that was her...
Thankfully things have changed since then. That poor girl I hope things turned out well for her after all. Her husband should be shot. Just my opinion. But...
... HI DEBY JUST A LITTLE BIT ABOUT MY M I HAD MY FIRST IN MAY 1996 OPERATED IN STAMFORD HOSPITAL SOME HOW BANGED MY HEAD DURING SURGERY AND REQUIRED SEVEN...
Hi Kathy: Sounds like you have been through a lot over the last few years also. I started not feeling right after my son was born. That was 14 years ago in...
Hello All My NS has just written to me to say that he agrees with my request for a second opinion. I've been told there is nothing they can do with my M, too...
Hi Carmen. My NS is @ UCLA, in Los Angeles. He often travels abroad to do surgery. I will email him to see if he knows of another NS near you. Best, Cathy ...
Carmen, Have not heard back from my NS so I'm thinking that he doesn't have anyone to recommend. He generally responds quickly. So sorry about that. Cathy ...
I plan on asking my NS this question in a few weeks but thought I'd bounce it off my M friends first. With summer fast approaching, we are planning a trip to...
Hi Rebecca, I rode a very fast rollercoaster at Disneyland about two months prior to my surgury and I thought my head would come off my neck. I deeply ...
I'm such a bad influence... Having been a previous "adventure junkie" with skydiving, scuba diving and wanting to hunt in the jungle for samples of Ebola...
My kids and I were really into roller coasters. We even planned a vacation around them. I rode the Millenium Force at Cedar point six months prior to my...
... I have been to Dr. Hockburg at Mass General. It is rated as the #2 brain tumor center in the US. he was very thourough. I truely hope the best for you....
I have not been on a roller coaster but this made me remember something I thought about a few months ago. I thought I might have to fly to TN to be with my...
Hi Joan Thanks for this info and your kind message. I have got a few names now so fingers crossed, one may be able to do something. Carmen ... I have been to...
i have flown and not had any difficulties. i flew 2 months after my surgery and all was OK. when i run or jump up and down a bunch sometimes i get exersion...
Hi everyone! I'm still here, following the posts on the group. It's almost over for me, I'm off the dilantin and haven't had any seizures. The latest MRI...
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