Hi TOM, I AM SORRY TO HEAR ABOUT YOUR PROBLEMS IN YOUR FAMILY. yOUR BROTHER MAY KNOW MORE THAN WHAT OTHER PEOPLE THINK. HE MAY NOT KNOW HOW SERIOUS, BUT HE...
Hi All, A number of people have asked if they could come to just part of the weekend. I had hoped that people could experience the whole weekend together, but...
Tom, How shocking that both you and your brother have had brain problems so close together. Your family must be reeling. You are in a unique position to try...
Hi, is anyone out there? I've been glued to the TV and watching the poor people in New Orleans,Biloxie and other places. I want so badly to do something. I...
<<Snip>>Hi, is anyone out there? I've been glued to the TV and watching the poor people in New Orleans,Biloxie and other places. I want so badly to do...
Margret, I live in eastern Texas near the Louisiana border. We have many of the people who have been evacuated from New Orleans and Mississippi. I just took...
Yes. I feel the same way. I live in a mobile home. no room. I live on
Soc. Security. no money. I am having my tumor surgery on Thurs 9-8. no
time. I...
Hello, Well Joe had compliations with the Tumor. The meningioma was wrapped around the main blood vessel, it burst. She said that it was sqeezing the vessel....
Oh Gal, I am sooo sorry to hear that Joe had the complications. I guess that if one has to have a stroke, in the surgery room is the place. The doctors and...
Gail: I'm so sorry to hear about the complications. I'm relatively new to this whole thing, only being Dx a month ago myself, but am nonetheless sorry to hear...
Jeannie: I'm getting my second master's right now. I finished my first one last year and it was in English/Rhetoric. Now I'm going for a linguistics degree,...
Gail, I hope Joe's healing progresses quickly and fully. It's a shame you can't find a place to stay closer to the hospital than a 3 hour drive. Did you ask at...
A dear relative of mine has been recently diagnosed with a brain tumor. Her hearing had been getting worse and after an MRI, a tennis ball sized tumor was...
I hope Joe is better and was touched by your letter and your love for your husband. My surgery is scheduled for this monday and its nice to get a heads up on...
Melissa, just being around to listen is a big help. You could fix a casserole for the family some night. See that everyone makes their own appointments. A...
Valerie, don't freak about the stroke. It is not the usual happening. Actually, I've been on here about 18 months and Joe is the first stroke victim I...
Margaret, what will it be like after the surgery, do you think i will need help at home afterwards and for how long? can you drive if youre on dilantin? will i...
... My girlfriends sister-In-Law lives in Sringfield Mass. I can stay there with her. that would be an hour + ride but it's better than 3.. I thank you for all...
Melissa, Your friend is lucky to have someone like you who will be there for her. It sounds like her tumor is in the same area that mine was. I was diagnosed...
Valerie, I had gamma knife and the worst part was getting the head harness attached by screws to my head. I had very good pain management care and actually...
Thank you Margret for replying. I will make sure she knows we are thinking about her and praying for her. I won't be able to make it to see her since she is...
Jeannie, it sounds like you have a great support system! I think my relative does too, this has made us all come together for her. Some of her family is...
I had my surgery on Thurs 8/9 and it was a great success. BElieve it or not, I am writing to you from my hospital bed. I have a patient station thats a...
Have any of you who have had a Retrosigmoid crainotomy experienced a big numb area on your skull? If so, how long did it stay numb and did you get skull...
I had my crainotomy nearly 10 years ago -- December, 1995. I still have almost no feeling on the left side of my head where they did the incision and drilled...
I have had 4 crainis and with each one experienced the same thing. My head is still numb on that side. One thing I had was the feeling like something was ...