I have created this site as yet another way for us to communicate with each other. Some people may find this format easier to use than the ones on the web...
alanherendich@...
Sep 12, 2001 8:03 pm
2
Hi Allan- Good to see another place for us on the net! Keep up the good work. Sam...
sdillaha@...
Sep 16, 2001 12:23 am
3
Hi! I was recently diagnosed with a right parietal meningioma, 3.5cm, which was discovered "by accident", i.e., asymptomatic. The docs said I didn't need to...
cyndeesings@...
Sep 26, 2001 3:22 pm
4
Enter your vote today! A new poll has been created for the meningioma group: Would you attend a Meningioma conference in Big Bear, California in May, 2002?...
meningioma@yahoogroup...
Sep 28, 2001 4:50 pm
5
Hi Everyone. I'm waiting for all you chatters to get on-line!! I'm in the UK so I think we're about 5 hours ahead, but i'll keep checking, especially on...
Helen
helen-tash@...
Oct 8, 2001 9:08 pm
6
... I'm ... time ... Hi Helen do you have a meningioma? I had one removed last year the size of a grapefruit and now its back already. I'm not sure what I'm...
blessedangel65@...
Nov 8, 2001 6:18 am
7
... Best ... I had one removed last year that was the size of a grapefruit. I was having symptoms but they never did a cat scan on me. I had a horrible ...
blessedangel65@...
Nov 8, 2001 6:23 am
8
Sorry to hear about the regrowth! It's scary enough to have to go through surgery once! When you said you died on the table during the first one, did you ...
Hi Thanks for your message - I've not been on line for a week or so, so just got it tonight. Yes i have one too, it was discovered in April, but i've recently...
Helen
helen@...
Nov 16, 2001 9:40 pm
10
Hi, I am new here. Helen, your symptoms sound very similar to mine. My meningioma was diagnosed in May, 2000. I experienced headaches, facial numbness and...
Hi all, We have a few new members, so I would like to try and set up a time to meet in the chat room. I don't know what is a good time for anyone, so I'll...
DEAR GROUP, SPEND AS MUCH TIME RESEARCHING AS AM ABLE TO. THANKS TO ALAN I AM NOW HERE. ANYBODY OUT THERE HAVE MID CEREBELLUM SURGERY? NEWLY DX. 9/22/01 WITH...
cruisemelodee
cruisemelodee@...
Jan 1, 2002 3:29 pm
13
Fellow members, I joined this group trying to access this site for information on meningiomas because about a year ago my boyfriend told me he had been ...
captivating31210
captivating31210@...
Feb 5, 2002 5:28 pm
14
I have never heard of them going in through the ear like that. I personally know of one person where they went in through the nose and removed the tumor.I...
Well, I have to say that his story does sound a little fishy to me because number one, I'm also a nurse and number two, I had a left frontal meningioma removed...
I would like to join your group and begin posting to and reading your message board. My husband was recently diagnosed with a meningioma of the occipital lobe....
... Hi Deb, Welcome to the group, you're here! Your message went to all the members of the group. Our numbers, as a group, have been slowly growing. It...
Hello my name is celeste and I was diagnosed in 1998 with my tumor and had been treated for mini strokes before then because they thought my were related to...
Hi Celeste, I am Karen and my symptoms were numbness in my face initially, headaches and nausea and depression. I am a little off balance with heal to toe...
I was recently diagnosed with a begign meningioma, posterier fossa. Expected surgery date is in late May. 1. Do people tend to totally recover, returning to...
golnoack
lnoack@...
Apr 14, 2002 9:31 pm
21
... Hi Lenny, Welcome to the group. I'll try to answer your questions as best I can. I'm sure there are other members of the group who will be able to give...
Thank you so much for your kind welcome! What a blessing it is to have found this group. I apologize for not having responded more quickly, but shortly after...
First, Alan, THANK YOU for such an informative response to my original post. You're the first one to tell me, directly, a bit about life AFTER surgery. As...
golnoack
lnoack@...
Apr 20, 2002 3:15 pm
24
... Hi Lenny, Yes, just knowing what you have to deal with is to some degree comforting. We went for a couple of years with Robin's symptoms slowly getting...
The reason I think symptoms are different in people even with meningioma's in the same location is because if you compare...oh say our feet or our fingers, ...
My husband was diagnosed suddenly with large (peach-sized) tumor on 3/28. Everything went so quickly. His surgery was 4/2. They got it all. He started...
My sister had her surgery on the 18th of April and she is doing wonderful. Her tumor was worse then what we had thought, and the surgery was more complicated,...
... Hi Kate, It sounds like your husband is doing good. It's great he can be so active. He may find that it's a lot harder to keep up the pace he was used to...
Alan, I read your message to Kate explaining a seizure. Last month I was working in the yard and came in to take my coat off and I could not get my arm to ...
... Dear Greg, I'm going to refrain from saying anything about your doctor, (is he your primary care physician, neurosurgeon, or?), but I would suggest talking...
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