My name is Tammy ( StOrMy_ChOaS ) and my dad was diagnosed with a GBM Stage 4 Brain Tumor in July 2004 and had it removed on August 11th 2004. He was doing...
Dear Tammy, I am so touched by your story. I too have a meningioma, it has caused me some of the same problems as your father, but it sounds like he has more...
Thanks for the support you all so generously gave me! I had a lovely - and quiet - holiday. I'm still doing very well - I have my last (I think) follow-up with...
I was diagnosed with a meningioma on May 4th of 2004, on the 18th I had surgery to have it removed.My surgery went well and they beleive they got all of the...
Dear Group, I have yet another question to add to the postings. My mother, to add to all of her other health problems, was recently diagnosed with a meningioma...
Oh, Shelly, I am so sorry to hear that yo are having troubles. You did not say how large your m. was. If it was large, I would think maybe time will help....
Hi, Melodie. I am fairly new to this site, and have had some problems keeping up with it, since my teenagers need the computer after school most days. I will...
Tammy, I am sorry about your dad and his increasing problems. It is great that you are able to take care of him. As a hospice nurse myself, please talk to...
Hello all, I have been reading this list for some time now... Thank you all for your helpful insights and suggestions. I have a question about the IMRT...
Hi Rebecca, I have a meningioma on the left trigeminal and pons inside of Meckles Cave. To control my pain the following meds are used 400mg of Tegretol 3 x...
Dear Karen, Thank you so much for your reply. I will ask the neurologist about those meds when we go back on the 11th. If you don't mind my asking, how are the...
Hello Karen, I am very curious about your meningioma. I have one on my left side pressing on the pons and affecting my 5th cranial nerve. I have only...
Hi Sharon, I am home 24-7 with my dad, so I never miss seeing his nurse.
She is a sweetheart. I think she is coming tomorrow. So tonight I am going
to write...
Hi Ed, My original symptom was left side face numbness, corner of eye, left nostril, side of tongue, upper palate and lower left gum in Sept of 2001. My...
Hi Rebecca, Yes the laxative is because of the other medications. LOL dont forget it, it is very important. I was in horrible pain. The pains come now rarely...
I have a question, so there are 3 of us on here now with a trigeminal meningioma on the left? Karen ... -- I dropped a tear in the ocean, and when I find it I...
Dear Karen, Thanks again for responding. And to answer your question, yes, my mother's meningioma is on her left trigeminal nerve. The poor thing is still in...
Hi Rebecca, I have balance issues, like when I put on a pair of pants have to hold on and do one leg at a time, remember how we used the curb for a tightrope...
Hello, everyone - I had 2 seizures on 11/17/04, which led to the discovery of a small (2.5cm) benign menigioma, which was removed via craniotomy on 12/1/04....
Kate, I think you should go back to work because it will help you see yourself back in the 'real world', although is there any way you could just do 3 days a...
Kate, give yourself a little space. You have a lot of stress in your life right now. Dealing with brain injury(which is what meningioma is) is stressful...
Kate, give yourself a little space. You have a lot of stress in your life right now. Dealing with brain injury(which is what meningioma is) is stressful...
Kate, For the crying you could look at the Bach Flower Remedies? Do you know them? You could start with the Rescue Remedy and then look at the others to decide...
Margret, I like that 'take time to smell the roses...' :) Where are you guys based? I thought it was the middle of the night in the US? (It's nine in the...
Did you just find out you had the M? If so, I waited 17 mths before doing anything! I now had the M out Mar24 2004. I am just great. I am in the U.S. ...
Karen, I would be very interested in a copy of Ann Breen's list of questions to ask the neurosurgeon and radiation oncologist. I go in for consult Jan 12 and...
Hi, Judy - I had a seizure at work on 11/17/04, went to the emergency room, then to the hospital, where I had ETKTM (Every Test Known To Man) - and they...
Clare - thank you for your sensitive *and* sensible answer! The driving thing is just a nightmare. I called the DMV (Dept. of Motor Vehicles) around the middle...
Dear Meningimates, (my affectionate term for all of us) Please look up the ABTA centrally located in Chicago at www.abta.org Call and ask for all their free...
Concerning going back to work -- I had my M removed 9/2/04 and am still not stable enough to go back to a "regular" job, but needed to make a living. SOOOO, I...
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