Hello all...my surgery was nearly 5 years ago and I am still having headaches, balance issues and memory problems. My M was relatively small and the Drs say it...
Note: forwarded message attached. ... Do you Yahoo!? Yahoo! Small Business $15K Web Design Giveaway - Enter today [Non-text portions of this message have been...
I watched a very young beautiful girl make her hat this evening for BT awareness. I was interrested as to how she would decorate it. She drew her very large...
An old friend just called to say her mom has been diagnosed with a meningioma. The neurosurgeon who performed my surgery is no longer practicing. Any...
I just had surgery at the Beth Isreal with the cheif of neuro surgery who was fabulous. His name is Dr. Julian Wu. He specializes in Meningioma.m His ...
Hi Paul, I recently researched on the web for "Olfactory Groove Meningiomas" (my diagnosis) and came upon "The Cranial Base Center" located in Massachusetts...
Actually I am in Tampa and was also told about Dr. Marcos in Miami so he must be good. A friend of my father's knows Dr. Marcos. I haven't been able to get...
Hello, Alan I have just been discharged from hospital in UK following post-mastoid craniotomy and removal of posterior fossa meningioma - originating in the ...
Hi Trish, I don't know where my mind has been lately(ha, ha) but some how I forgot where this website was, I'll be sure and make a favorites page. Anyway,...
Well, Kim, you sure have done your homework! That's fantastic! You're a perfect example of someone who has used resources to (1) understand what is happening...
For me with a tumor that won't go away despite two surgeries and a IMRT session it just will not stop growing. So I am relying on prayer and develping my...
Hello Jon...thanks for your response. I'm sorry to hear that yours won't stop growing. I too have tried pt but it didn't help all that much. I went back to ...
Hello, I have been reading the posts on this list for a while. I found out I had a meninginoma "officially" on March 24th. Last Thursday I saw a neurosurgeon...
Hi Tori, Don't give up! getting other NS's opinions. I found that there are a lot of NSs out there that are familiar/educated one or more particular tumors,...
Hi Tori, It is unfortunate that so many in the medical field lack the skill to deliver important information. The first neurologist I met, the night my M was...
Hello Tori. What you are going through seems fairly typical to me. Concern and compassion in doctors is about as comman as found in the general population, ...
Thank you all for your suggestions. At least I now know there are good ones out there. I am already doing most of your suggesdtions. I have gotten copies of...
Tori, have you considered gamma knife surgery. No incision....just? radiation. My gamma knife proceedure is scheduled for May 7. I have a pre proceedure...
Margret, Well I honestly do not know what they have planned. From what I have learned here and on the internet I assume they are going to do a craniotomy...
I just finished Stereotactical Radio Surgery, the poor man's Gamma Knife. It took almost forty minutes and the nurse congratulated me on not moving. Actually...
well, you are down one treatment? how many --or rather how many total cGy's will you be receiving? i had 25 txr to total about 5400 cGy's. i lived in...
Hi all: I have one daughter, and when I was 8 months postpartum in 9/02 I was diagnosed with a meningioma the size of a tangering. I have since had 2...
Susie I am in florida and had surgery in tampa also. Who was your NS? Just curious Thanks Lyndie [Non-text portions of this message have been removed]...
Lyndie, My surgeon was Dr. Harold Colbassani, Jr, at Mease Dunedin Hospital. Susie Foster raising brain tumor awareness ... From: meningioma@yahoogroups.com...
Yeah, As soon as I was fastened to the table, I started thinking about what would happen if I got some saliva running down my throat and I had to chough. Never...
Hello! I do not know exactly what you are looking for. I am from Boston and My Dr. is Julian Wu from the Beth Isreal Hospital. He is cheif of neuro surgery....
I don't do this very often, but I need to vent!!!! Two things have come up for me recently and I'm curious to see if other people have the same situations...
I check in to see how the polls are going and I'm finding this one very interesting. This is still an open poll. If you haven't voted in it yet, just visit: ...
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