Hello all. I am working on trying to create/re-create/grow the brain tumor
support group that initially started at the Cancer Wellness House.

I've been trying to locate as many patients as I can in the SLC area or in
the state of Utah. If you know of others, will you ask them to email me?
Thanks!

(Anne, would you mind asking the JH list as I can't seem to get back on? Thx
so much)



I'm working with the Cancer Wellness House to really get a handle on what
kind of help/support would be most useful to those in the area. Do you mind
if they call and talk you through some questions so that we can work on
those issues for you? We are also wondering if it might be best if it was
elsewhere?

I really appreciate working together so that we can be of support to each
other through this awful disease.

Thanks

Nidia

Nidia.mcmul@...





Nidia McMullen

-

Brain Tumor Advocate, Caregiver

Daughter of Monique

Skullbase/brainstem Meningioma

d/x 1977

s/x 1977, 1981, 2000: After first 2 s/x- headaches, paralysis on right side,
nerve confusion on both sides

rads 1977

Post s/x 2000: had stroke resulting in paralysis/quadriplegic, shunt put in
for hydrocephalus & bleed in surgical area 1 week post-op, then at 1 month
post-op: tracheotomy, peg tube and portal-catheter for IV direct access

Currently at South Davis Community Care Hospital in Bountiful, UT; on
regulating vent with CPAP throughout day and night, mouths her words (so
we've had to become good lipreaders), currently battling breakdown:1 sore on
bottom that is slow to heal so unable to get up very often to prevent
re-opening wound, current therapy is restorative (ie. splints for hands and
feet and range of motion), has full cognitive abilities, fighting
depression.

Enjoys visits from 3 children and 5 grandchildren and visits from friends,
enjoys movies(watches movies 24/7!) and books on CD or being read to, and
enjoys getting mail.

She loves to play UNO & she always wins!

Monique Rodriguez c/o South Davis Comm. Hospital, 401 South 400 East, Room
208, Bountiful, UT, 84010. We are very proud of our Mom and Grandma, the
ultimate adventurer!







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