meningioma : Message: Re: [meningioma] Anyone get headaches based on weather changes etc??

Mine was in left temple behind my left eye, meningioma grade 2 in surgery in
1986
recurrence in same location still grade 2 in 2000
2nd surgery to debulk in 2000

I had a few terrible sharp painful headaches for a few months, mostly monthly
wi/period before I was first diagnosed
i had no more headches at all for 14 years after my first surgery,
now I do get a heavy head feeling since my second surgery in 2000
but not the sharp sudden pain, just a dull ache

GBYAY Anne McGinnis Breen
See my smiley face winking at you? &;>)
Keep your faith, cherish your reason, treasure your mind, hold to your own good
purposes...and be not afraid.
If you would like to visit my journal pages to read more about me and other grey
matters of great importance to me go to
http://journals.aol.com/anne91547/anne-mcginnis-breens-articles/

-----Original Message-----
From: zo <zo8166@...>
To: meningioma@yahoogroups.com
Sent: Sun, 1 Jun 2008 1:03 pm
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??

I don't remember, all i recall is that it was up there. My tumor covered the
left parietal area as well as the rear area of the frontal lobe. My midline
was pushed over to the right by 9 mm. After the surgical removal, i've been
blessed with not having headaches, back to the way I remember it us to be.
My Meningioma was a type II on the WHO types.
Cheers,
Zolt

----- Original Message ----
From: Breezy <crunchies4eternity@...>
To: meningioma@yahoogroups.com
Sent: Sunday, June 1, 2008 8:06:15 AM
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??

did you get headaches only on one side where the tumor was or both sides?

 

--- On Sat, 5/31/08, zo <zo8166@yahoo. com> wrote:

From: zo <zo8166@yahoo. com>
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??
To: meningioma@yahoogro ups.com
Date: Saturday, May 31, 2008, 9:39 PM

The more severe ones were migraine headaches with an aura that happened
ahead of the migraine.  The aura for me looked like a jagged lighting bolt,
that started on one side of my peripheral vision and slowly drifted to the other
side.  The headaches without the aura were more tension type headaches with
neck stiffness.  My tumor was quite large when it was found and in one of
the finding from an mri, the surgoen noted that there was a brainstem
compression and counterclockwise brainstem torsion.  So that would explain
my stiff neck.
Zolt

----- Original Message ----
From: Breezy <crunchies4etern ity@ yahoo.com>
To: meningioma@yahoogro ups.com
Sent: Saturday, May 31, 2008 3:58:17 PM
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??

what kind of headaches did you get??

&nbsp;

--- On Sat, 5/31/08, zo &lt;zo8166@ yahoo. com&gt; wrote:

From: zo &lt;zo8166@ yahoo. com&gt;
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??
To: meningioma@yahoogro ups.com
Date: Saturday, May 31, 2008, 1:51 PM

Hi all,
I would just like to comment on Anne pharse down below, "Please do not think
either will absolutely cure all your headaches",& amp; nbsp; maybe i'm the
exception but before my tumor i never got headaches.& nbsp; It was only
while i had my tumor did i start getting headaches and after the removal i have
not had the types&nbsp; of headaches i had experience with the tumor.. I
have&nbsp; had one or&nbsp; 2 headaches since my surgery, almost 2 yrs
ago, but i think it was more associated with the medicine i was taking, after
the doc&nbsp; increasing the medicine i was taking.& nbsp; Now i am off
all meds and my seizures have pretty much subsided& nbsp; to the point
where&nbsp; they are very small, or none at all.
Zolt&nbsp; &nbsp;

----- Original Message ----
From: "anne91547@aol. com" &lt;anne91547@ aol. com&gt;
To: meningioma@yahoogro ups.com
Sent: Friday, May 30, 2008 6:47:57 PM
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??

I know I will upset some of you, and I do apologize in advance, please just
delete if you find this offensive

Gamma knife does not "remove the tumor", it does not "trick the tumor into not
growing"
although it may shrink the tumor a bit initally and reduce intracranial pressure
temporarily at least,
like cooked meat is smaller than raw meat.
But burning radiation may also cause swelling, edema&nbsp; or "hot spots" as
they like to call them.
Cutting surgery may also cause swelling and temporary wound redness, but the
incision forms scar tissue&nbsp; that heals&nbsp;
And then you need to take other drugs to reduce the swelling, wound
infection& nbsp; or necrosis "dead tumor cells"

These expressions are simply ("ufamisims" &lt;-sounds like) euphemisms
A euphemism is a way of saying something that sounds good or pleasing to the
ear, it is also a good way of avoiding saying something that sounds offensive or
unpleasant
A euphuism& nbsp; (a form of artificial elegance of language, romancing the
viewer) can create a feeling of euphoria, like a feeling of healthy well being
or elation, but a feeling may only be temporary or fleeting and it is not based
on the facts, so do not be fooled.

I am going to be graphic and honest my dear sweet friends, so you know what the
doctors are saying in plain english
Please lets try to be more accurate and&nbsp; realistic so we don't fool
ourselves or anyone else here, ignorance is not bliss when it comes to getting
the best quality medical care,
It might work in some areas of finance, like marketing, investing in real
estate&nbsp; or gambling on house prices these days,&nbsp; but generally
cheaper is not better
Unless you are a health insurance plan or small local hospital accountant
looking for the best medical investment or most cost effective medical
treatment, and outpatient care is cheaper and much faster, Americans like quick
fixes, so we might buy it, that's what they are counting on

The two brain tumor treatment choices we currently have are both truly invasive
of our brain space, they both have to go past and may injure healthy brain to
get to the tumor location
They&nbsp; either& nbsp;"cut or burn" the abnormal cells of the tumor
removing raw meat or overcooking burnt meat.&nbsp; & nbsp;

I am simply warning you, like an unpopular whistleblower, or a grim granny, that
radiation necrosis and the late sequelae of cumulative life time radiation
exposure are words you will not find much about&nbsp; in the introductory
hospital literature or glossy marketing brochures of other commericial business
websites that want to sell you their own product. Radiation is a modern medical
tool that maybe very effective in some cases, especially for other body parts
that you can live without,
but please think carefully and do your own homework, or have someone else you
trust guide you before you sign up for what looks like a quick fix.

Please google and read the full story of Kathi Goerzten, a popular Seattle TV
news anchor woman who has had three brain surgeries and two forms of modern
brain radiation in the last ten years to treat her golf ball sized meningioma
before you decide on your treatment choice, especially& nbsp; if the doctor
recommends either type of treatment immediately, before you have time to
consider your own options and get another independent second medical opinion
before you let anyone but the best, operate or radiate on your precious brain
cells.&nbsp; As you can see no one is rushing to operate or radiate Sen
Kennedy's brain, you have weeks or a few months to consider your options,
especially if it "looks" benign to your doctor on MRI, or it hasn't changed in
three months on MRI then you have more time to consider your options, some
people "watch and wait" fpr a few years,&nbsp; if their doctor does not
think it is growing and&nbsp; you do not
have&nbsp; any serious
life threatening
symptoms. &nbsp;& nbsp; &nbsp;

Your brain contains the essence of you, and all that you will be able to do in
the future, this is much more important than buying a new car, or a new house.
how much time did you spend buying a house or a car? Either way,even if you buy
brand new or used, there is no absolute guarantee that you will be happy with
your choice, &nbsp;& nbsp; &nbsp;

I believe neuroscientists who study brain radiation necrosis and acquired brain
injury after the fact,&nbsp; can be more direct and more honest than any of
our modern medical doctors
I believe brain surgery is an art and a science that has been around a lot
longer than brain radiation treatment. and any promises of cure, are still just
that promises.& nbsp;
And promises made are often broken, there is no known cure for our abnormal
benign tumor cell growth yet.

Some of us experience long remission of symptoms and feel much better after
either treatment modality, and some of us do not, and quite frankly, almost 40%
of all brain tumor patients often end up eventually having both treatments
during their own lifetime in current western medical practice. The only way to
know for sure what specific type and grade of tumor you are dealing with, is to
have surgery or a needle biospy first, like Sen Kennedy did, then the best
future &nbsp;treatment plan for radiation or chemo can be figured out based
on the neuropathology report, some people like Kennedy is getting separate
multiple opinions to check on that too, if their health insurance will pay or
they decide it is that important to them.&nbsp; . &nbsp;& nbsp;

Please do not think either will absolutely cure all your headaches.

I believe we each know our own body better than anyone else and we each have to
find a doctor we trust and a brain treatment we can learn to live with

In other world cultures today, some combination of alternative and complimentary
medicines are also used along with modern western medical practices to heal the
whole body, mind and spirit.& nbsp; I wish you all long healthy lives of
good fortune, and I hope you will not stop looking for whatever it is you need
to live well, until you find the best medical care, spiritual healing and peace
from within...

(a skilled brain tumor removal expert who does at least 50 a year, not mostly
back or spine surgery, and has a good back up neurosurgeon to help him out, if
the hours of surgery become&nbsp; longer than any one person can responsibly
perform& nbsp; and/or a skilled radiation oncologist and radiation team of
technicans& nbsp; who do at least 50 benign brain tumor cases a year and
have an established record, the mistake on brand new radiation equipment at one
hospital went on for a full year undetected by the doctors and local technicans
there) plus&nbsp; a well trained staff of other experienced
neurology/oncology practitioners and technicans& nbsp; &nbsp; Carefully
consider Location, location, location,& nbsp; just like buying real estate
location and size of the tumor in your brain
location of the best doctors and skilled intensive nursing staff in
neurology/neurosurg ery&nbsp; and neuro ICU&nbsp;
and location of a major regional brain tumor treatment center, like a university
setting teaching hospital or major medical facility
&nbsp;
&nbsp;
As a result of this lump in your head, it&nbsp; might seem like a huge
mountain ahead of you right now,&nbsp; and hopefully it will soon seem more
like a mole hill, when you look back once you have decided which way to go,
straight up and over or all the way around it. There are many paths on the
journey called life, we each choose most of them freely ourselves, as it should
be as long as we are informed and well educated medical consumers and self
advocates.& nbsp; &nbsp;

GBYAY Anne McGinnis Breen
See my smiley face winking at you? &amp;;& gt;)
Keep your faith, cherish your reason, treasure your mind, hold to your own good
purposes...and be not afraid.
If you would like to visit my AOL journal pages to read 28 questions to ask your
medical team (and probably 150 things to consider) more about me and other grey
matters of great importance to me go to my archives at &nbsp;
http://journals. aol.com/anne9154 7/anne-mcginnis- breens-articles/

-----Original Message-----
From: Candy Clark &lt;vfwdiva@ bellsouth. net&gt;
To: Breezy &lt;crunchies4e tern ity @ yahoo.com& gt; ;
meningioma@yahoogro ups.com
Sent: Fri, 30 May 2008 8:20 am
Subject: Re: [meningioma] Anyone get headaches based on weather changes etc??

I had the Trilogy treatment which is much like the Gamma knife treatment and I
was told that there was a 93 - 98% chance that it would work. And, no, it is not
complicated. It is more time consuming than anything. They put either a mask or
a frame on your head to make sure you can not move your head during the
treatment... then you just lay there and let them do their thing. You feel
nothing during the treatment.
----- Original Message -----
From: Breezy
To: meningioma@yahoogro ups.com
Sent: Friday, May 30, 2008 10:58 AM
Subject: RE: [meningioma] Anyone get headaches based on weather changes etc??

Gamma knife if really effective?? is it complicated? ?

--- On Fri, 5/30/08, Janie Swogger &lt;ptweezer@ hotmail. com&gt; wrote:

&gt; From: Janie Swogger &lt;ptweezer@ hotmail. com&gt;
&gt; Subject: RE: [meningioma] Anyone get headaches based on weather changes
etc??
&gt; To: meningioma@yahoogro ups.com
&gt; Date: Friday, May 30, 2008, 9:27 AM
&gt; I have a meningioma left frontal lobe, and have headaches a
&gt; lot. They stopped after I had the Gamma knife. Which by
&gt; the way does not remove the tumor as someone mentioned
&gt; below. It does trick the tumor into not growing. It's
&gt; a form of radiation. Anyway, the headaches returned and now
&gt; my Neurologist put me on Topamax and it has helped a lot for
&gt; my headaches. Although I never put the connection to the
&gt; weather and the headaches,maybe because of all of the other
&gt; pain I have as well. LOL!
&gt; PtWeezer
&gt;
&gt;
&gt; To: meningioma@yahoogro ups.comFrom: dswhdl@yahoo. comDate:
&gt; Fri, 30 May 2008 06:43:42 -0700Subject: Re: [meningioma]
&gt; Anyone get headaches based on weather changes etc??
&gt;
&gt;
&gt;
&gt;
&gt; Ditto here. Mine started prior to my pituitarysurgery and
&gt; for a time stopped after that surgery onlyto start back up
&gt; again. Now I am on W &amp; W for the M..Debbie--- renee
&gt; &lt;rmorrow722@ yahoo. com&gt; wrote:&gt; Hey
Breezy...& gt; I
&gt; get them all the time when the pressure changes. &gt; I call
&gt; myself a very reliable weather person - I can&gt; usually
&gt; tell when a front is coming through and&gt; going to storm.
&gt; Weird huh? I think it is due to&gt; having a craniotomy. Not
&gt; sure on that for&gt; sure...but I think it is a thing that
&gt; should be&gt; studied !!!&gt; &gt; Breezy
&gt; &lt;crunchies4e tern ity @ yahoo.com& gt; wrote: &gt;
Anyone
&gt; here get headaches when a&gt; storm is coming like a
&gt; thunderstorm? ??&gt; &amp;nbsp; &gt; Also anyone get
&gt; headaches that aren't because of a&gt; tumor they might
&gt; have??? &gt; &amp;nbsp; &gt; If you have a tumor does that
&gt; necessarily mean any&gt; headaches you get is because of
&gt; it???&amp; nbsp; &gt; &gt; &amp;nbsp; &gt; &gt;
--- On Tue,
&gt; 5/27/08, JAMY Rogers&gt; &amp;lt; jamyrogers@ msn. com&amp;
gt;
&gt; wrote:&gt; &gt; From: JAMY Rogers
&gt; &amp;lt; jamyrogers@ msn. com&amp; gt;& gt; Subject: Re:
&gt; [meningioma] Re: Im new here too...&gt; To:
&gt; meningioma@yahoogro ups.com& gt; Date: Tuesday, May 27, 2008,
&gt; 9:28 PM&gt; &gt; I can say as a gamma knife patient, you are
&gt; correct& gt; ----- Original Message ----- &gt; From: Candy
&gt; Clark&amp; lt; mailto: vfwdiva@bellsout h.&gt; net&amp; gt;
&gt;
&gt; To: meningioma@yahoogro &gt;
&gt; ups.com& amp; lt;mailto: meningioma@ yahoogro ups.com& amp; gt;
&gt; &gt; Sent: Tuesday, May 27, 2008 6:55 PM&gt; Subject: Re:
&gt; [meningioma] Re: Im new here too...&gt; &gt; Below, Don
&gt; stated that he was going to SLU Hospital& gt; in hopes that
&gt; his frontal lobe tumor may be removed& gt; by Gamma
&gt; knife......this is at least twice now that&gt; someone in
&gt; the group has made a comment that they&gt; were going to
&gt; have a tumor removed by Gamma&gt; knife......Well, these
&gt; tumors aren't removed by&gt; having Gamma knife. Gamma
&gt; knife is a dose of&gt; radiation to the tumor that is
&gt; suppose to trick the&gt; DNA in the tumor into stop
&gt; growing, and it can&gt; actually, in some cases, shrink the
&gt; tumor.....but it&gt; does not remove the tumor like it does
&gt; when a&gt; person's head is cut open and the tumor is
&gt; removed.& gt; Am I wrong here in my thinking???& amp; gt; -----
&gt; Original Message ----- &gt; From: renee &gt; To:
&gt; meningioma@yahoogro &gt; ups..com& amp; lt;mailto: meningioma%
&gt; 40yahoogroups. com&amp; gt;& gt; &gt; Sent: Tuesday, May
27,
&gt; 2008 9:10 PM&gt; Subject: Re: [meningioma] Re: Im new here
&gt; too...&gt; &gt; Not always..they tend to be cancerous in
&gt; males&gt; &gt; Breezy &amp;lt; crunchies4e tern
ity@&gt;
&gt; yahoo.com& amp; lt; mailto:crunchies 4e ternity%40yahoo. &gt;
&gt; com&amp; gt;& amp;gt; wrote: i thought menigiomas were
&gt; non&gt; cancerous& gt; &gt; &amp;amp; nbsp; &gt;
&gt; --- On
&gt; Tue, 5/27/08, melinda m&gt; &amp;amp; lt; melindahal@ yahoo.
&gt; com&amp; lt;mailto: melindahal% &gt; 40yahoo..com& amp; amp;
gt;
&gt; &amp;amp; gt; wrote:&gt; &gt; From: melinda m
&gt; &amp;amp; lt; melindahal@ yahoo.&gt;
&gt; com&amp; lt;mailto: melindahal% 40yahoo.com& amp; amp; gt;
&gt; &amp;amp; gt; &gt; Subject: Re: [meningioma] Re: Im new here
&gt; too...&gt; To: meningioma@yahoogro &gt;
&gt; ups.com& amp; lt;mailto: meningioma% 40yahoogroups.
&gt; com&amp; gt;& gt; Date: Tuesday, May 27, 2008, 6:55 PM&gt;
&gt; &gt; HI Don,&gt; Welcome to the group. Chesterfield here. I
&gt; have 2&gt; menningiomas. My Dr. is Keith RIch at the
&gt; Siteman& gt; Cancer Center. He is totally awesome. He might
&gt; be&gt; someone to check into for a second opinion. It
&gt; never&gt; hurts to seek confirmation or another opinion.
&gt; You&gt; will be in my prayers.& gt; Melinda& gt; &gt;
&gt; donlovett_mo &amp;amp; lt; donlovett_ mo@&gt;
&gt; yahoo..com& amp; amp; gt; wrote:&gt; &gt; Thank you all for
&gt; your kind and understanding& amp; gt; responses! And allow me
&gt; to&gt; vent..&gt; &gt; Its still so unbelievable to me I
&gt; hardly know what&gt; think or do.&gt; &gt; This is a
&gt; reoccurrence, But I had my first&gt; craniotomy for the
&gt; meningioma& gt; 34 year ago when I was 15. They reoccurred
&gt; for 3&gt; years almost yearly&gt; when I was 16, 17 and 18.
&gt; The Doctor told my&gt; parents that there was&gt; nothing
&gt; more they could do. At 18 I went to the UCI&gt; Medical
&gt; Center and&gt; they did radiation, removed the tumor and it
&gt; hasn't&gt; come back till&gt; now, and the ct scan shows
&gt; there are 3 -- 1 in the&gt; frontal lobe and 2 in&gt; the
&gt; left side.&gt; &gt; I'm going to SLU Hospital (St Louis
&gt; University)& amp; gt; where the front one&gt; may be able to be
&gt; removed by a gamma knife.&gt; &gt; I have been going to the
&gt; same neurologist for near&gt; 15 years with&gt; occasional
&gt; scans and they were all good, until&gt; recently.& gt; &gt;
&gt; When I was 9, I was diagnosed with peti mal&gt; epilepsy.
&gt; We later learned& gt; that was a misdiagnosis. My doctor
&gt; says that what&gt; they did back then was&gt;
&gt; primitive.& gt; &gt; That's kind of where I come from
&gt; and how I got&gt; here.&gt; &gt; I don't mind saying
&gt; that I scared! I am so glad I&gt; found your group.&gt;
&gt; &gt; --- In meningioma@yahoogro ups.com,
&gt; "donlovett_mo" &gt; &amp;amp; lt; donlovett_ mo@
&gt; ..&amp;amp; gt; &gt; wrote:&gt; &amp;amp; gt; &gt;
&gt; &amp;amp; gt; &gt; &amp;amp; gt; Its nice to have a group
out
&gt; here like&gt; this! Make me feel that im not&gt;
&gt; &amp;amp; gt; alone!&gt; &amp;amp; gt; &gt; &gt;
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&gt; Remember that all messages are the opinion of the author;
&gt; check with your healthcare professional for specific
&gt; medical advice. Please don't repost messages from this
&gt; group anywhere else, or repost forwarded messages here.
&gt; Remember that we are here to support each other. It is
&gt; expected that everyone will respect each others opinions
&gt; and religious viewpoints.
&gt;
&gt; Meningioma Group page:
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&gt; For more information: http://meningioma. intranets. com
&gt; Post message: meningioma@yahoogro ups.com
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