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Please, send me info about meningiomas   Message List  
Reply | Forward Message #5215 of 7277 |
Re: [meningioma] Please, send me info about meningiomas



From my two meingioma surgies and still having a third I have learned the
following. Obviously I am not a doctor nor do I profess to be;

1) What is the medium growing rate of a meningioma? For tumors they are
suppose to be slow growing. They said I had my first one for at least 15
years.

2) What are the treatments indicated for big meningiomas? when a
meningioma can be called a big one? Surgery if in a position they can get at
it. Not sure of what makes it a big one. My first was about 3x4x5 cm and they
said it was huge.

3) Is it true that young people goes better in surgery than old ones? As with
any surgery the younger you are the better.

4) What is considered old for a meningioma surgery? Not sure but while
waiting in a followup, I meet someone who was 93 and hard it. I am 51 and hard
my first at 41.

5) What are the main risks of the surgery? The main risks are loss of brain
function. My memory and word recall has not been the same since I had the
second surgery. Also prone to temper outbursrs.

6) Is it true that sterotactic surgery (radiosurgery) is not
indicated for big meningiomas? I do not know.

7) Is it too risk waiting and observing the tumor for a period of
time before deciding wich kind of treatment will be adopted? This decision
is according to where it is located, how close to other things, and if it is
causing you any affects at the time. My first one was causing me to have
seizures.

8) If surgery is indicated, how should a person choose a surgeon? Ask other
people who have gone through it and go to a big city hospital.

Does he needs to be too experienced? In my opinion DEFINITELY yes, I would
not want to be one a a doctor's first hundred patients.

When a doctor is considered experienced? After 100 surgeries.

There's a number of realized surgeries to be considered
in qualifying a doctor as an experienced one? For me at least 100 and doing
them often.

7) What are the risks of surgery? Other than stated above, there is always
the risk of surgery and being in the hospital along with the amount of time you
will need to recoup.

8) How is the period following the surgery (at hospital and at home)? Both
times I was almost back to normal within the week. However, the doctors and
nurses were surprised how quickly I did recoup.

9) What kinf of neuro problems a person may face as a consequence of
a surgery? That I know of': sieizures, temper outbursts, loss of memory,
loss of sex drive, balance problems, loss of use of parts of body. My memory
and word recall has not been the same since I had the second surgery. Also
prone to temper outbursrs. No other symptons luckily.

10) If a person has a big meningioma and eventually feels headache,
should we take this person imediately to hospital? In my case no but be
careful for a seizure, the person should not drive a car or put themself in any
dangerouse situations.

Is there any sign that this person could be with too high pressure?I do not
know.

ffsflores <ffsflores@...> wrote:
Hi!

A person in my family has a meningioma and we're trying to know more
this disease. We're scared. Doctors had not finished the exams, but
everything indicates that there's a big tumor.

I'm reading all your previsous posts, but I'm afraid of this would
delay too much. I'm really worried and I would be thankful for any
help. Please, if you know something about the following questions,
answer me:

1) What is the medium growing rate of a meningioma?
2) What are the treatments indicated for big meningiomas? when a
meningioma can be called a big one?
3) Is it true that young people goes better in surgery than old ones?
4) What is considered old for a meningioma surgery?
5) What are the main risks of the surgery?
6) Is it true that sterotactic surgery (radiosurgery) is not
indicated for big meningiomas?
7) Is it too risk waiting and observing the tumor for a period of
time before deciding wich kind of treatment will be adopted?
8) If surgery is indicated, how should a person choose a surgeon?
Does he needs to be too experienced? When a doctor is considered
experienced? There's a number of realized surgeries to be considered
in qualifying a doctor as an experienced one?
7) What are the risks of surgery?
8) How is the period following the surgery (at hospital and at home)?
9) What kinf of neuro problems a person may face as a consequence of
a surgery?
10) If a person has a big meningioma and eventually feels headache,
should we take this person imediately to hospital? Is there any sign
that this person could be with too high pressure?

I know you all might be busy persons. But, please, if You can, answer
me.

Thanks.

F.






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Thu Oct 4, 2007 4:13 pm

hollandcat2006
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Forward
Message #5215 of 7277 |
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Hi! A person in my family has a meningioma and we're trying to know more this disease. We're scared. Doctors had not finished the exams, but everything...
ffsflores
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Oct 4, 2007
2:51 pm

I wish I had more time to answer all your questions in depth, but I have to leave here shortly for work. I will try to answer a couple of your questions...
Candy Clark
vfwdiva48
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Oct 4, 2007
3:28 pm

Thank you very much for your answer. Tomorrow, we'll receive some exams results and, reading your post, I got more calm. I need to be calm 'cause I'll have to...
ffsflores
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Oct 4, 2007
4:52 pm

From my two meingioma surgies and still having a third I have learned the following. Obviously I am not a doctor nor do I profess to be; 1) What is the...
Robert Holland
hollandcat2006
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Oct 4, 2007
4:13 pm

You all in this group are great. I've never thought I'd receive an answer as fast as you've sent me. Reading your answers makes me more calm. And as I said...
ffsflores
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Oct 4, 2007
4:58 pm

Thank you, since I answered the questions, what about the person who has it, male or female, married or not, kids and if so, how old? Before it was...
Robert Holland
hollandcat2006
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Oct 4, 2007
5:20 pm

Hi, people! We went to a first doctor and we got more worried. My relative (woman, 65 years old) has a 5 cm x 5,5 cm meningioma (falx and parasagittal). The...
ffsflores
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Oct 10, 2007
8:26 pm

where are you located? are you comfortable with the doctors you are seeing? ... === message truncated === ...
tracy
tkatz1968
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Oct 11, 2007
2:20 am

My mother had a dr in her local small town who did the MRI and found the tumor - she was then referred to a surgeon in a bigger city who was a more wait and...
Suzanne Dunco
duncosuzanne
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Oct 11, 2007
1:55 pm

Hello! Once more, I thank you all for the support. We'll meet the new doctor on Wednesday and if he says the same thing the first one, We've already decided to...
ffsflores
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Oct 11, 2007
3:17 pm

I had stereotactic radiosurgery. My tumor was 2.8 cm. The radiologist told me that he would not have attempted the procedure if my tumor was 3.0 cm or ...
Cheryl Thoreson
citten
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Oct 11, 2007
4:31 pm

how much time do you think i have untill i start to really worry about my 2..4 cm meningioma? i'm planning to keep it as it is for now and later i think......
marian jaikat
mjaikat888
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Oct 4, 2007
7:56 pm

hello, here are some websites to check out when u r calm and in mood to learn some more about the brain tumors - especially the meningioma -: ...
marian jaikat
mjaikat888
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Oct 4, 2007
8:02 pm

I have 1.5 and as a single woman with no family, I opted for gamma radiation one month after I found out, Watch and wait was something I did not want to do....
JAMY Rogers
jamyrogers
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Oct 4, 2007
8:05 pm

Hi, I too have travelled that journey. Please email me at donnalyn@... Good Luck! Don't panic! I am on the other side of this situation. Donna ... ...
Malcolm
malcolm572001
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Oct 5, 2007
10:38 pm

Maybe a gamma knife proceedure or one if the nmewer radistion ssurgeries? I had gamma knife because my health is such that I'd probably not surviver surgery....
Margret Lankford
mamalankford
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Oct 10, 2007
8:44 pm

To you dear F and other new readers, (wow, that F name looks bad) lol I had a 5 cm in diameter meningioma successfully surgically removed twenty one years...
anne91547@...
anne91547
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Oct 11, 2007
6:33 pm

Thank you very much. We'll see a third doctor and I hope soon We'll be able to decide about what to do. F. ... lol ... twenty ... lobe, a spheniod ... temporal...
ffsflores
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Oct 18, 2007
6:52 pm
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