Kathleen,
I had my M removed in 2000. Was not what I had in mind to celebrate the
mellinum. Since then my side affects have made their presence known, constant
vision fluctuation, aphasia (speach problems), some balance problems, the best
thing is my personality returned to what it was prior to the tumor. What has not
returned is my sence of confidence and adventure. I have struggled to over come
this by doing things to build my confidence in my self. A little confidence goes
a long way.
It really helps to have people that understand what you went through and to
support you. Even years later as the side effects keep changing or the same ones
will linger on. People just do not get the trauma the brain experiences from the
tumor and its removal. I have read several post indicating negative reaction of
family members;which I cannot comprehend, since family is what we sould be able
to count on. I hope yours comes to their senses and realize how close they came
to loosing their mother. I hope you find support from friends, church, this
website, as it is good to have others that can relate to what you have been
through.
Good luck.
L. A. In AZ
Kathleen Erickson <boobala22@...> wrote:
Although my meningioma was diagnosed & removed June,1987, @ University
Hospital, Madison, Wi., it's amazing how the effects can be life-long! Since the
tumor had pushed the right rear quadrant of my brain to the left of the median
line my occipital lobes(for eye-motor coordination) were crushed, among other
things; my balance is shot! I've occasionally fallen down stairs; fell flat on
my face at my daughters wedding reception 3/2006. While people may whisper that
I've had too much to drink, I quit drinking over 10 years ago.
Now my daughter doesn't want me to hold my 1st grandchild because of what she
refers to her father & his wife as my clumbsiness. When I mention the tumor, she
asked how long I was going to continue to use that as an excuse! I'd had weeks
of physical therapy just to learn to walk again, not balance on skiis, etc!
Today my neurologist gave me a new MIGRAINE medication called Relpax 40mg. That
waa also something I hadn't had before the tumor diagnoses.
Thanks for listening,
Kathy
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