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Thrilled to be a new member   Message List  
Reply | Forward Message #5105 of 7277 |
Re: [meningioma] Thrilled to be a new member

Kathleen,
I had my M removed in 2000. Was not what I had in mind to celebrate the
mellinum. Since then my side affects have made their presence known, constant
vision fluctuation, aphasia (speach problems), some balance problems, the best
thing is my personality returned to what it was prior to the tumor. What has not
returned is my sence of confidence and adventure. I have struggled to over come
this by doing things to build my confidence in my self. A little confidence goes
a long way.
It really helps to have people that understand what you went through and to
support you. Even years later as the side effects keep changing or the same ones
will linger on. People just do not get the trauma the brain experiences from the
tumor and its removal. I have read several post indicating negative reaction of
family members;which I cannot comprehend, since family is what we sould be able
to count on. I hope yours comes to their senses and realize how close they came
to loosing their mother. I hope you find support from friends, church, this
website, as it is good to have others that can relate to what you have been
through.
Good luck.
L. A. In AZ

Kathleen Erickson <boobala22@...> wrote:
Although my meningioma was diagnosed & removed June,1987, @ University
Hospital, Madison, Wi., it's amazing how the effects can be life-long! Since the
tumor had pushed the right rear quadrant of my brain to the left of the median
line my occipital lobes(for eye-motor coordination) were crushed, among other
things; my balance is shot! I've occasionally fallen down stairs; fell flat on
my face at my daughters wedding reception 3/2006. While people may whisper that
I've had too much to drink, I quit drinking over 10 years ago.
Now my daughter doesn't want me to hold my 1st grandchild because of what she
refers to her father & his wife as my clumbsiness. When I mention the tumor, she
asked how long I was going to continue to use that as an excuse! I'd had weeks
of physical therapy just to learn to walk again, not balance on skiis, etc!
Today my neurologist gave me a new MIGRAINE medication called Relpax 40mg. That
waa also something I hadn't had before the tumor diagnoses.

Thanks for listening,
Kathy

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Sat Jul 7, 2007 4:04 am

princessmarana
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Message #5105 of 7277 |
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Although my meningioma was diagnosed & removed June,1987, @ University Hospital, Madison, Wi., it's amazing how the effects can be life-long! Since the tumor...
Kathleen Erickson
boobala22
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Jun 29, 2007
12:11 am

Kathy, I am so sorry that your daughter cannot understand all of this; but it is true that there are those who have not suffered with this cannot understand...
Debbie W
dswhdl
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Jun 29, 2007
3:23 am

Deja vu--Family can be very hard on our ability to fully recover. My Cranio was 7-11-05, my younger son didn't even bother to come by the hospital, it was out...
Patti Bill
winelovrs1968
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Jun 29, 2007
4:29 pm

Some people can not deal with things that are out of their control. They probably do not even realize it. I have an uncle who moved to Jordan when his mom...
Margret Lankford
mamalankford
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Jun 29, 2007
10:02 pm

Kathy - I live in Madison, WI, and was treated with radiosurgery for my CPA meningioma four years ago. I can empathize with your balance problems, as I suffer...
Cheryl Thoreson
citten
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Jun 30, 2007
1:58 am

Kathleen, I had my M removed in 2000. Was not what I had in mind to celebrate the mellinum. Since then my side affects have made their presence known, constant...
L. A. Lo Cicero
princessmarana
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Jul 7, 2007
4:04 am

Kathy, I know how you feel, I was blind after my tumor removal. But my vision returned. Now I am having significant vision problems. Recently My doctor took...
renee morrow
rmorrow722
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Jul 7, 2007
10:45 pm
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