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A Newbie   Message List  
Reply | Forward Message #4828 of 7275 |
Re: [meningioma] A Newbie

Dear Margret,

Thank you. I too believe that it shouldn't be growing
in my head either. After an 18 year fight to have my
pituitary tumor removed, I don't even want to wait for
this one to be gone also. I went to over 100 doctors
for my pituitary tumor and some of these were the
"best" medical centers in the U.S. None of them
figured it out either. I believe to this day that it
was God who tapped me on the shoulder and told me what
it was.

I am interested in any and all information on sites
and doctors. I don't even mind if I have to travel.
My neurosurgeon told me to wait and have an MRI every
other year. I don't think that is the course of
action I need to take. The MRI I had prior to this
did not show the M (as y'all so cutely refer to it.)
This makes me believe that it has grown within the
last year.

Many thanks again.

Debbie
--- Margret Lankford <mamalank@...> wrote:

> Debbie, the first thing you need to understand is
> that doctors often say your problems are not related
> to the M. However, when the M is gone many symptoms
> disappear. If you have health problems, be sure and
> ask about gamma knife or one of the non surgical
> possibilities. You have a good start , being here
> with we who have survived, can help you. We can
> give suggestions and you need to pick and choose
> what fits you best. I am sure people will have web
> sights for you. I didn't save the ones I used.
> Sorry. Be sure and get two or three opinions or
> more. Don't ignore this critter in your head. It
> shouldn't be there and is causing pressure on your
> brain. Many doctors say wait and watch. you will
> have to decide. I, for one took action anyway as I
> figured its not supposed to be growing there and I
> wanted it stopped. Just my 2 cents worth. Margret
> ----- Original Message -----
> From: Debbie W<mailto:dswhdl@...>
> To:
>
meningioma@yahoogroups.com<mailto:meningioma@yahoogroups.com>
>
> Sent: Friday, February 09, 2007 11:07 PM
> Subject: [meningioma] A Newbie
>
>
> Dear Group,
>
> I am new here and have so many questions. I was
> just
> diagnosed with a meningioma. They found it on a
> routine MRI I had done because of a pituitary
> tumor I
> had removed.
>
> So if you don't mind here are a couple of the
> questions I have for now. First, are there some
> good
> and reliable sites to get some information? Also I
> have been also been looking to see if there is a
> list
> of symptoms. Is there a place I can find these? I
> have other medical problems so I would like to
> know if
> any of the problems I am experiencing could be
> related
> to this.
>
> Thank you in advance for your help and for this
> group.
>
> Sincerely,
>
> Debbie
>
>
>
__________________________________________________________
> No need to miss a message. Get email on-the-go
> with Yahoo! Mail for Mobile. Get started.
>
>
http://mobile.yahoo.com/mail<http://mobile.yahoo.com/mail>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>




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Sat Feb 10, 2007 9:17 pm

dswhdl
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Message #4828 of 7275 |
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Dear Group, I am new here and have so many questions. I was just diagnosed with a meningioma. They found it on a routine MRI I had done because of a...
Debbie W
dswhdl
Online Now Send Email
Feb 10, 2007
5:07 am

Hi Debbie, What size and where is your M located? Debbie W <dswhdl@...> wrote: Dear Group, I am new here and have so many questions. I was just diagnosed...
southern sass
tanner4450
Offline Send Email
Feb 10, 2007
5:36 am

Thank you for your response. To answer your question, the following was on my MRI report: On the post-contrast images, incidental note is made of a possible...
Debbie W
dswhdl
Online Now Send Email
Feb 10, 2007
3:13 pm

Debbie, Try http://www.abta.org they have alot of good information and have links to other sites as well. I have 3 meningiomas and my doctors consider me...
Kimberly Tarbox
kimberly_irish
Offline Send Email
Feb 10, 2007
1:19 pm

Dear Kim, Thank you for the information. I will be checking that out very soon. I am so sorry to hear about your condition. I do understand the frustration...
Debbie W
dswhdl
Online Now Send Email
Feb 10, 2007
3:19 pm

Welcome to our forum. There are many reputable sites. If you are anything like I was you will visit all sites. Soon all the good sites will be posted for you....
sensei angela
elgreca262
Offline Send Email
Feb 10, 2007
5:02 pm

Debbie, the first thing you need to understand is that doctors often say your problems are not related to the M. However, when the M is gone many symptoms...
Margret Lankford
mamalankford
Offline Send Email
Feb 10, 2007
5:36 pm

Dear Margret, Thank you. I too believe that it shouldn't be growing in my head either. After an 18 year fight to have my pituitary tumor removed, I don't...
Debbie W
dswhdl
Online Now Send Email
Feb 10, 2007
9:18 pm

Well, in that case, it probably is not a slow growing tumor as all doctors lead us to believe. Although some things just have to get big and bad enough to get...
Margret Lankford
mamalankford
Offline Send Email
Feb 10, 2007
11:27 pm

Margret, So you have been through the mill too, sorry to hear that. When they removed the M, did all of your symptoms go away? The reason I ask, I too have ...
Debbie W
dswhdl
Online Now Send Email
Feb 11, 2007
3:18 am

Well here's some good news for everyone..i'm pregnant!!! In His service this unworthy servant, angela My worldview tells more about me then any other aspect of...
sensei angela
elgreca262
Offline Send Email
Feb 11, 2007
4:50 am

Congratulations!!! That's wonderful news!...
Cheryl Thoreson
citten
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Feb 11, 2007
5:21 pm

Angela, Congratulations, this is a great blessing. Debbie ... === message truncated === ...
Debbie W
dswhdl
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Feb 11, 2007
8:56 pm

H Debbie! I was diagnosed with an M a little over 4 yrs ago. I was being watched for 17mths and finally had ti removed and I have been fine ever since. I...
Jude6237@...
judy_6237ma
Offline Send Email
Feb 11, 2007
3:17 am

Hi Judy, Thanks for your e-mail. To answer you question, I live southeast of Houston, Tx. However I would definitely travel if I knew I could get this thing ...
Debbie W
dswhdl
Online Now Send Email
Feb 11, 2007
4:26 am

Debbie: I highly recommend UCLA Medical Center in Southern California. There are 2 facilities, one in the Harbor area of Los Angeles, the other in Westwood....
Karen Ceaser
pedrokaren
Offline Send Email
Feb 11, 2007
5:36 am

Karen, Thank you for that information. Would you mind telling me the name of your doctor and the name of your surgeon? The problem I am having is my...
Debbie W
dswhdl
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Feb 11, 2007
9:07 pm

Debbie - since you live near Houston, I'd say MD Anderson would be a great place to start - one of the best in the world, and I am sure they have all options...
maggie_nyc
Offline Send Email
Feb 11, 2007
2:58 pm

Thanks Maggie, Believe it or not I have tried to get into MD Anderson, but they have refused to see me!!!! It seems the endo that told me not to come back...
Debbie W
dswhdl
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Feb 11, 2007
10:04 pm

No, I still have the essential tremor of my head and hands. I have only 33% kidney function left and take mega doses of potassium (UroCit K) 6 1080units pr...
Margret Lankford
mamalankford
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Feb 11, 2007
6:24 am

Margret, I am so sorry to hear all of what you are going though. Is there any hope that as time passes that some of these other problems will go away? Thank...
Debbie W
dswhdl
Online Now Send Email
Feb 11, 2007
9:21 pm

Dear Debbie, The pituitary is the body's master gland, I hope you have a good endocrinologist you have been seeing regularly and I hope he knows about...
anne91547@...
anne91547
Offline Send Email
Feb 11, 2007
7:41 am

Dear Anne, Thank you for your information. I wasn't able to read all of your pages, but something you said in your e-mail concerned me. You stated: "my own...
Debbie W
dswhdl
Online Now Send Email
Feb 11, 2007
9:33 pm

Hi Debbie! Yes, I have the name of a fabulous Dr. but in Boston, Ma. . However, his name is Julian Wu at the New England Medical Center. I know one thing...
Jude6237@...
judy_6237ma
Offline Send Email
Feb 11, 2007
4:55 pm

No, things are as good as I will be. its been about 2 1/2 years since gamma knife. Margret ... From: Debbie W<mailto:dswhdl@...> To:...
Margret Lankford
mamalankford
Offline Send Email
Feb 12, 2007
12:01 am
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