Exactly! And at what point is what you are living with bad enough to
take that risk? And are there any other options - like gamma knife?
Another thing I'm dealing with is we see an internist, we see an
allergist, we see a gastroenterologist, we see a neurootologist, we see
a neurosurgeon.. each of these is prescribing medicines for the problems
that we see them for - who's in charge of making sure that the medicines
aren't interacting and causing other side effects. Yes, our pharmacist
checks for dangerous interactions, but what about things like trembling
or depression?
I feel like I need my own medical degree just to keep up with all of this!
Deby Inguaggiato wrote:
> Cathy:
>
> You are absolutly correct in demanding that any surgeon tell you the
> good and the bad of any surgery. To me opening your brain is a risk
> in itself even before they start trying to remove the tumor. It has
> to leave damage. Either way is not good. If you stay on W&W you
> worry that if the tumor grows or continutes to put pressure on certain
> parts of the brain it will cause damage. The other option surgery,
> you know is going to leave some kind of side affects. They are
> working in your brain. It is basically the computer of your body.
> Damage any part of it and the rest is not going to work correctly. I
> know before I make the decison about any surgery I would take a good
> look at both sides. I know what my limitations are now. After
> surgery they could be anything. Some people have had wonderful
> recoveries but then others have not. So the choice is live with what
> you have and know or go into the unknown.
>
>
> cathy hison <cmh7177@...> wrote:
> Claudia..this surgery is a BIG deal. It is a continual recovery.
> Take it slow and really ask your doctor all the hard questions. Make
> sure they tell you everything. The good AND the bad.
>
> Claudia Lakey <clakey@...> wrote: I completely understand
> how you feel - although that's not necessarily
> accurate because I'm not the one who would have to have surgery. I know
> that right now I feel like no one is really taking our concerns to
> heart, and we aren't being heard. I told my husband that I occasionally
> have these vivid images in my head of me standing in the middle of a
> field, screaming "THIS IS NOT MY LIFE!!"
>
> Claudia
>
>
> Deby Inguaggiato wrote:
> > I've been told that mine is still small. The symptoms I am having are
> > not caused by the M. You know my opinion of that. Right now I am in
> > the process of searching for another N so I can get a different
> > opinion. All they are doing is managing the symptoms for me. Very
> > frustrating. On the one hand surgery scares the death out of me. But
> > I don't like have this in my head. It can grow and cause so many
> > problems. Plus the symptoms have gotten worse over the last 5
> > months. To me it would be the smart choice to deal with this now
> > while it is small and they could have a good shot at removing it all,
> > maybe with minimal side affects.
> >
> > Deb
> >
> > Claudia Lakey <clakey@...> wrote:
> > No removal yet. His dr. says that at this point surgery is a bigger
> > risk than what symptoms we are dealing with. Of course, he doesn't have
> > to deal with any of the symptoms! What was your experience?
> >
> > Claudia
> >
> >
> > cathy hison wrote:
> > > Has he had it removed?
> > >
> > > Claudia Lakey <clakey@...> wrote: This is great information
> > > - thank you so much. My husband's M is near
> > > his hearing nerve on the right side also. He also is having trouble
> > > swallowing, and his tongue is numb. Anyone have suggestions for
> dealing
> > > with that? His dr. says he will learn to compensate!
> > >
> > > Claudia
> > >
> > >
> > > cathy hison wrote:
> > > > Thank you..I had surgery Aug 2003..Dr Gary Jackson..Baptist
> Nashville.
> > > > Am recovery still. Minimal Nerve damage to face, complete
> hearing loss
> > > > in right ear. Could be worse
> > > >
> > > > shilysca95@... wrote: AT Vanderbilt, Dr. Reid Thompson
> is a
> > > > brain tumor neurosurgical
> > > > specialist. He also has several well trained associates.
> > > >
> > > > Paul M. Zeltzer MD
> > > > Neurooncologist
> > > > www.survivingbraincancer.com
> > > >
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<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
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ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
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>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
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ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>>
>
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>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
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ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
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.sig=-WO9UjsJlgtYfOHYjcGl9w
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
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ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>>>>
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<http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=HFCK21385eiVKA-icsCXdg
>
<http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=HFCK21385eiVKA-icsCXdg>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=HFCK21385eiVKA-icsCXdg
>
<http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=HFCK21385eiVKA-icsCXdg>>>
>
> >
> > > Center for health and wellness
> > >
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Article+h\
ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Healt\
h+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6\
&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w
>
<http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Article+h\
ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Healt\
h+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6\
&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Article+h\
ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Healt\
h+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6\
&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w
>
<http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Article+h\
ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Healt\
h+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6\
&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>>>
>
> >
> > > Health and wellness
> > >
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+welln\
ess&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+welln\
ess+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&.sig\
=8Xg1Y8WnIQ8M8RmwiCBfYg
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+welln\
ess&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+welln\
ess+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&.sig\
=8Xg1Y8WnIQ8M8RmwiCBfYg>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+welln\
ess&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+welln\
ess+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&.sig\
=8Xg1Y8WnIQ8M8RmwiCBfYg
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+welln\
ess&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+welln\
ess+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&.sig\
=8Xg1Y8WnIQ8M8RmwiCBfYg>>>
>
> >
> > >
> > > Health and wellness program
> > >
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+heal\
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+a\
nd+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=\
181&.sig=o6A_SwJ7NPKV-vbc2guF8g
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+heal\
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+a\
nd+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=\
181&.sig=o6A_SwJ7NPKV-vbc2guF8g>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+heal\
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+a\
nd+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=\
181&.sig=o6A_SwJ7NPKV-vbc2guF8g
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+heal\
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+a\
nd+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=\
181&.sig=o6A_SwJ7NPKV-vbc2guF8g>>>
>
> >
> > > Health wellness product
> > >
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=T568iKLktVX2LzTlHB8xxA
>
<http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=T568iKLktVX2LzTlHB8xxA>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=T568iKLktVX2LzTlHB8xxA
>
<http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=T568iKLktVX2LzTlHB8xxA>>>
>
> >
> > > Health and wellness job
> > >
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>
>
> >
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>>>
>
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<http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=HFCK21385eiVKA-icsCXdg>
> Center for health and wellness
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<http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Article+h\
ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Healt\
h+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6\
&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>
> Health and wellness
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+welln\
ess&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+welln\
ess+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&.sig\
=8Xg1Y8WnIQ8M8RmwiCBfYg>
>
> Health and wellness program
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+heal\
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+a\
nd+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=\
181&.sig=o6A_SwJ7NPKV-vbc2guF8g>
> Health wellness product
>
<http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=T568iKLktVX2LzTlHB8xxA>
> Health and wellness job
>
<http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+health+w\
ellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+w\
ellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=181&\
.sig=-WO9UjsJlgtYfOHYjcGl9w>
>
>
>
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