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Trigeminal Nerve Meningioma   Message List  
Reply | Forward Message #1782 of 7277 |
Re: [meningioma] Re: Trigeminal Nerve Meningioma

I have a question, so there are 3 of us on here now with a trigeminal
meningioma on the left? Karen


On Fri, 7 Jan 2005 00:04:07 -0500, Karen Catlin <karen.catlin@...> wrote:
> Hi Rebecca, Yes the laxative is because of the other medications.
> LOL dont forget it, it is very important.
> I was in horrible pain. The pains come now rarely and I am well
> satisfied with pain level.
> The problem is getting me back to work.
> Everyone thinks I can work but me. I am on so many things and work
> with numbers and I really mess up on numbers on here and letters too
> for that matter.
> I asked how long I would be on drugs. No One knows.
> I dont have much pain now but have to work the rest of my life back
> around this..hmm
> Of course one day of having no pain for 8 straight days the pain was
> back just like it was not being treated. Medications were increased
> and the pain was under control again.
> This is something though. Karen
>
> On Thu, 06 Jan 2005 22:42:53 -0000, rebeccamkarol
> <rebeccakarol@...> wrote:
> >
> > Dear Karen,
> >
> > Thank you so much for your reply. I will ask the neurologist about
> > those meds when we go back on the 11th.
> >
> > If you don't mind my asking, how are the meds working for you? Are
> > the meds just keeping the pain to a bearable level, getting rid of
> > the pain, or are you still in great discomfort?
> >
> > Also, on a slightly more personal level... the laxative, is that
> > because of all the other medications?
> >
> > thanks again!!
> > -Rebecca-
> >
> >
> >
> >
> >
> >
> > Remember that all messages are the opinion of the author; check with your
> > healthcare professional for specific medical advice. Please don't repost
> > messages from this group anywhere else, or repost forwarded messages here.
> > Remember that we are here to support each other. It is expected that
> > everyone will respect each others opinions and religious viewpoints.
> >
> > Meningioma Group page: http://groups.yahoo.com/group/meningioma
> > For more information: http://meningioma.intranets.com
> > Post message: meningioma@yahoogroups.com
> > Subscribe: meningioma-subscribe@yahoogroups.com
> > Unsubscribe: meningioma-unsubscribe@yahoogroups.com
> > List owner: meningioma-owner@yahoogroups.com
> >
> >
> >
> >
> > ________________________________
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> >
>
> --
> I dropped a tear in the ocean, and when I find it I will quit thinking of you.
>


--
I dropped a tear in the ocean, and when I find it I will quit thinking of you.



Fri Jan 7, 2005 5:06 am

nitcorvair
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Forward
Message #1782 of 7277 |
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Dear Group, I have yet another question to add to the postings. My mother, to add to all of her other health problems, was recently diagnosed with a meningioma...
rebeccamkarol
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Jan 5, 2005
6:20 am

Hi Rebecca, I have a meningioma on the left trigeminal and pons inside of Meckles Cave. To control my pain the following meds are used 400mg of Tegretol 3 x...
Karen Catlin
nitcorvair
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Jan 6, 2005
7:30 pm

Dear Karen, Thank you so much for your reply. I will ask the neurologist about those meds when we go back on the 11th. If you don't mind my asking, how are the...
rebeccamkarol
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Jan 6, 2005
10:44 pm

Hi Rebecca, Yes the laxative is because of the other medications. LOL dont forget it, it is very important. I was in horrible pain. The pains come now rarely...
Karen Catlin
nitcorvair
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Jan 7, 2005
5:04 am

I have a question, so there are 3 of us on here now with a trigeminal meningioma on the left? Karen ... -- I dropped a tear in the ocean, and when I find it I...
Karen Catlin
nitcorvair
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Jan 7, 2005
5:06 am

Dear Karen, Thanks again for responding. And to answer your question, yes, my mother's meningioma is on her left trigeminal nerve. The poor thing is still in...
rebeccamkarol
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Jan 7, 2005
5:20 am

Hi Rebecca, I have balance issues, like when I put on a pair of pants have to hold on and do one leg at a time, remember how we used the curb for a tightrope...
Karen Catlin
nitcorvair
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Jan 7, 2005
6:35 am

Hello Karen, I am very curious about your meningioma. I have one on my left side pressing on the pons and affecting my 5th cranial nerve. I have only...
weislido
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Jan 7, 2005
3:29 am

Hi Ed, My original symptom was left side face numbness, corner of eye, left nostril, side of tongue, upper palate and lower left gum in Sept of 2001. My...
Karen Catlin
nitcorvair
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Jan 7, 2005
4:32 am

Karen, I would be very interested in a copy of Ann Breen's list of questions to ask the neurosurgeon and radiation oncologist. I go in for consult Jan 12 and...
Barbara Seaman
wheatchild2
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Jan 7, 2005
2:28 pm

Dear Meningimates, (my affectionate term for all of us) Please look up the ABTA centrally located in Chicago at www.abta.org Call and ask for all their free...
Karen Catlin
nitcorvair
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Jan 7, 2005
4:11 pm

Hello Karen, It is amazing, but I have the exact symptoms you mentioned you have except for the lightheadedness. I do seem to be more tired than usual. I don't...
weislido
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Jan 8, 2005
11:37 pm

Dear Meningimates, (my affectionate term for all of us) Please look up the ABTA centrally located in Chicago at www.abta.org Call and ask for all their free...
Karen Catlin
nitcorvair
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Jan 9, 2005
3:15 am

Hi Ed, I couldnt remember if I answered this before. I am 48 years old. I live in Tampa Florida. Yes I am pretty tired. These pills wipe you out more. It...
Karen Catlin
nitcorvair
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Jan 9, 2005
3:39 am

Hi Rebecca, I'm in the East Bay too and had my Meningioma removed at UCSF hospital last May. I haven't seen your other posts but wondered if your mother saw...
134emily
emilyduffyuu
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Nov 11, 2005
2:18 am

... HI REBECCA I TOO HAD A TUMOR ON MY TRIGEMIAL I HAVE LASTING PAIN IN MY EYE ALL THE TIME I TAKE NEURONTIN BUT IT MAKES ME DROWSY MY NEURO JUST INCREASED IT...
Kathy Adamcio
sba324
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Nov 11, 2005
8:36 pm
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