Hi, Melodie. I am fairly new to this site, and have had some problems keeping
up with it, since my teenagers need the computer after school most days. I will
add you to my prayer list. It has to be hard to deal with things yourself, as a
widow, and take care of your children. I depend on my family for much since my
surgery.
Sharon
MELODIE BUSH <melnijcan@...> wrote:
Hi, I have been on this site for about 6 months, and
told of my symptoms, I am 45, and have a small
meningioma, but huge problems from it! I have wanted
to learn more about this thru all of you, but never
seem to get any responces, I pray for each of you, and
ask of your prayers for me. I am a widow, with 2 small
children. God Bless, and happy new year!! Melodie.
--- cindy wrote:
---------------------------------
Paual I am so sorry to hear of your drama, and to
think it was normal..
That is awful..
To be jolted awake like that must be very very
frightening...
Sweetie, what is PMLD...I am not familiar with it..I
had never heard of
Meningioma's until 2 weeks ago..
You are a very sensible person to work out all your
food that was upsetting
you...
That is great...You seem to have it all mapped
out...So positive..!!!!
Please fill me in as to what is RLS too Hun:)
Sorry for being so ignorant on your Symptoms..:(
I feel really bad about not being able to help you
Hun:)
I was dx with a Middle Cranial Fossa...After suffering
severe sight problems
.. IE Double Vision etc.I have a paralyses left side
of my face, dizziness,
and headaches that wake me of a morning...That
diminishes to a slight
feeling of head fullness all day..I have had a lot of
memory problems too
over the years..
I am 62 from Australia...
You take good care of yourself Hun, and ty for posting
to me...Love Cindy
-------Original Message-------
From: meningioma@yahoogroups.com
Date: 12/27/04 13:56:48
To: meningioma@yahoogroups.com
Subject: Re: [meningioma] Everyone must be
resting/Cindy
In a message dated 12/26/04 9:36:16 PM Eastern
Standard Time,
cindy51@... writes:
Happy new year Paula, I have just been reading the
posts too Hun..
I am newly dx...And scared stiff...
I hope you have a happy New year hun..Huggs, all the
way from Australia...
Love Cindy
********** Hi Cindy. I was diagnosed two years ago
but all my life thought
it was normal to have this. I have it very mild
compare to most that post
here
so you don't hear much from me. I keep up on the
posts so I am aware of
what
is being done for us. Mine usually kicks in about 3
to 4 times a year. It
lasts a couple of days and for the next few weeks my
legs are weird but I do
get to sleep after the first few nights. I also have
PLMD that comes and
goes
when it wants. I am usually just falling asleep when
I get a complete body
jerk and I feel like my whole body jumps off the bed.
That is scary and now
that
I know what it is I deal better with it. Let me know
a little about you and
how you realized you had RLS? I figured out I had it
when my doctor sent
out
a news letter on RLS and how many don't know what it
is and that they have
it.
I remember reading it and saying wow I have had this
all my life and never
mentioned it to a doctor as I thought it was normal
and just me doing
something
I was not supposed to do. I have figured out a few
things though. When I
eat strawberries, watermelon, marshmallows, corn,
papaya, mango and a lot of
salt. (I took salt out my diet years ago as I had a
problem with it) I
always
have an attack that night. I have taken all those
foods out of my diet and
my
salt is only what occurs naturally or very limited.
IM going on the theory
that
our enzymes are affected and then we have an attack?
I know if it was that
easy we would have a cure for RLS but it works for me
cutting out those
foods
that make me have an attack. It took me awhile to
figure them out but I
watched everything that went into my mouth and saw
when my attacks happened.
Well,
enough of me. Let me know about you.
Paula in Massachusetts RLS/PLMD
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