Congratulations!!!! I am so glad that your home and
feeling better. Continued improvements!

Your friend Reenie


--- Tori <tori_m@...> wrote:
> Update:
>
> I had surgery as scheduled on 6/2. I made it
> home tonight 6/3
> (yes ok I had to get nasty to be released but they
> were not doing
> anything so I saw no need to be there.) ok, so I am
> a bad patient
> what can I say?
>
> Dr. Brem (Johns Hopkins) removed something from
> my brain. He said
> it was kind if like a piece of bone though I was not
> missing any
> bone. He does think this will make me better. I feel
> pretty good
> right now. A little tired and dizzy but it has been
> a long day.
>
> I remember crying almost all the way down I70
> Wednesday morning,
> then I remember pre-op and being wheeled into the
> OR. Mom said it was
> a 6 hour surgery. I woke up in the neural ICU
> yesterday afternoon. I
> asked for food and they said I could eat so mom went
> and got me
> mashed potatoes and ice cream (yes I ate it all).
> Dr. Brem came in
> about 8:30 and said how amazing it was. They are not
> calling it a
> brain tumor anymore (though the effects are the
> same). He said it
> looked and felt like a piece of bone. Pathology will
> not be done for
> a while yet so that part is wait and see but he
> seriously doubts that
> it is anything but benign. I slept fitfully last
> night being awaken
> numerous times for medication and vital signs.
> Thursday morning I
> woke up at 5am waited for breakfast at 9, Dr. Brem
> was supposed to
> come in at 8 to 8:30 to discuss my leaving but did
> not show up. After
> breakfast, they got me ready to go to the regular
> room and told me I
> could shower up there. When I got to the new room,
> they did not know
> if I could bathe and said they had to call Dr. Brem.
> Well, I am still
> waiting for that response amongst others. During the
> day I concerned
> myself with checking off the list of things he told
> me would get me
> home tonight (bathroom things, walking around, etc).
> At 7:30 poor Dr
> Lee (One of Dr. Brems staff) showed up. Since it was
> now almost 24
> hours since I had heard any word from them I was to
> say the least
> upset and he received my full thrust. But I told him
> I thought that
> it was unacceptable for me to lay there 24 hours and
> not know
> anything. He told me I could go in the morning and I
> said no. There
> were no lines left in me, the nurses had stopped
> doing anything (I
> measured my output and wrote it down the last time)
> so there was no
> reason for me to stay and be upset all night (and
> stressed). When I
> was obviously quite capable of taking care of
> myself. So Dr. Lee
> called Dr. Brem and they sent me home. :) We made
> it here about
> midnight.
>
> I am home feeling better than I thought I could
> have. My head
> hurts a little but a lot less than the headaches
> (which though
> constant were not that painful). My temples hurt, my
> vision seems a
> bit lacking and I hear noises (this may or may not
> go away with time
> but if that is the price I pay to be able to be
> myself and feel good
> again than it is a small price indeed.) All in all I
> feel pretty
> good. Tonight I am tired and dizzy but it has been a
> long day I am
> just too tired to sleep right now so I though I
> would update everyone.
>
> Huggs everyone and thanks for your support
> Tori
>
>





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