This group is associated with the "Meningioma Support and Information" web site. I have not kept the links in it up-to-date, but it can be a starting point to research more information on meningiomas.
This is a place to share our stories, our hopes, our questions, our triumphs, and our frustrations about meningioma brain tumors. Isolation can be as hard to deal with as the tumor itself. This site is here to help ease the effects of isolation, and to help people get on with their life after diagnosis. Please let us hear from you. You will need to join the group to post a message. Any message you post will be sent to all the members who have elected to receive them. A copy of each message is available here at the web site. If you prefer a bulletin board format for a discussion, visit "Meningioma Talk". If you are familiar with the MSN style group and would prefer that format, visit "MSN group Meningioma".
Commercial solicitations, flaming, or other disrespect of anyone on or off this list is not allowed. Please do not post chain letters or other forwarded messages that ask you to "send this to ten other people". Except for occasional on-topic forwarded announcements, posts should be original questions, comments or responses from members of the group. Let me know if you have any suggestions or comments about this group. May God be with each of you.
Hello Annette, Â Â 6 years is a terribly long time to be in so much pain! What have your doctors done to try to find a cause for it? I was having severe pain
I have it too. My docs (after 6 years of this) just told me there are no good options left for my TN. They say even morphne type drugs won't help this type
I am on gabapentin and Tylenol. My primary doc is pretty conservative and since gabapentin has the fewest side effects, left me on it. I really don't think it
Does anyone have nerve pain in their legs? My tumor was on the right side, with left side weakness as a symptom. Ever since the surgery last November, I