Hey - it's another one of those 'is this normal' posts.? Sorry.
So life goes on and I'm slowly coming out of this 'fog'.? The ringing in my ears
persist and there's this sense of a low hum that coats the inside of my
skull....a reminder of the roaring dizziness of two weeks ago.? I spend alot of
my time wondering if this is how it is for everyone.? Clarity peeks through and
a little voice whispers, 'It was just another 'one time thing'. After all - how
long has it been since you've had one this bad again?'
I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/years
since my last attack.'
I wonder about the countless?events I've had prior to this, which pale so much
in comparison that I wonder, 'Maybe this isn't even related'. 'm aware that I so
desperately want this to be behind me?that I'm willing to?pooh-pooh it away as
just another fluke and chalk up this not-dizzy-but-I-could-quick-get-that-way
feeling as just me, aging (I'm 46)?and becoming loopy.? Some people, after all,
just aren't all that steady.?
And so...please tell me about your aftermaths.? I've only once - and many years
ago, experienced this prolonged un-rightness and I think I need to hear what
others might be feeling.
MJ in Missouri, USA
[Non-text portions of this message have been removed]
I think it's pretty much different with everyone. While the core symptoms are
universal, every Meniere's person has their own sets of symptoms and triggers,
as well. I have experienced that 'fog', as you term it, but to a lesser degree,
and that constant feeling that the dizziness can return in an instant is my
normal. So is the ringing and buzzing in my ears. I'm not a doctor, and I
would encourage you to ask a medical professional for confirmation, but it seems
to me that it could be an 'episode' consisting of your own Meniere's symptoms.
And don't be sorry; it's things like this that this site is here for. I hope
you get to feeling better. Here's to dizzy free days!
--- In menieresdiseaseclub@yahoogroups.com, Mes4Coeurs@... wrote:
>
> Hey - it's another one of those 'is this normal' posts.? Sorry.
>
> So life goes on and I'm slowly coming out of this 'fog'.? The ringing in my
ears persist and there's this sense of a low hum that coats the inside of my
skull....a reminder of the roaring dizziness of two weeks ago.? I spend alot of
my time wondering if this is how it is for everyone.? Clarity peeks through and
a little voice whispers, 'It was just another 'one time thing'. After all - how
long has it been since you've had one this bad again?'
>
> I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/years
since my last attack.'
>
> I wonder about the countless?events I've had prior to this, which pale so much
in comparison that I wonder, 'Maybe this isn't even related'. 'm aware that I so
desperately want this to be behind me?that I'm willing to?pooh-pooh it away as
just another fluke and chalk up this not-dizzy-but-I-could-quick-get-that-way
feeling as just me, aging (I'm 46)?and becoming loopy.? Some people, after all,
just aren't all that steady.?
>
> And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to hear
what others might be feeling.
>
> MJ in Missouri, USA
>
>
> [Non-text portions of this message have been removed]
>
I have an appointment with my Neuro-Oto on Wednesday.
Now you make a point that I've somehow missed along the way.? See - I considered
the 'attacks', by which I mean a sudden and severe case of ceiling-spinning
vertigo, to be what the tentative dx of Meniere's so long ago, was all about.?
Meniere's - a disease of remitting bouts of vertigo.? What I'm hearing is that
this 'aftermath' that I'm experiencing is, for some, a constant?
:quelching panic:? This state of being is frightening to me.? The very thought
of it possibly becoming a constant....good God!!!
MJ
MO, USA
-----Original Message-----
From: tboyd_12 <tboyd_12@...>
To: menieresdiseaseclub@yahoogroups.com
Sent: Sat, Jul 11, 2009 1:16 pm
Subject: [Meniere's Disease Club] Re: Two Weeks After the 'Big One' - please
help
I think it's pretty much different with everyone. While the core symptoms are
universal, every Meniere's person has their own sets of symptoms and triggers,
as well. I have experienced that 'fog', as you term it, but to a lesser degree,
and that constant feeling that the dizziness can return in an instant is my
normal. So is the ringing and buzzing in my ears. I'm not a doctor, and I would
encourage you to ask a medical professional for confirmation, but it seems to me
that it could be an 'episode' consisting of your own Meniere's symptoms. And
don't be sorry; it's things like this that this site is here for. I hope you get
to feeling better. Here's to dizzy free days!
--- In menieresdiseaseclub@yahoogroups.com, Mes4Coeurs@... wrote:
>
> Hey - it's another one of those 'is this normal' posts.? Sorry.
>
> So life goes on and I'm slowly coming out of this 'fog'.? The ringing in my
ears persist and there's this sense of a low hum that coats the inside of my
skull....a reminder of the roaring dizziness of two weeks ago.? I spend alot of
my time wondering if this is how it is for everyone.? Clarity peeks through and
a little voice whispers, 'It was just another 'one time thing'. After all - how
long has it been since you've had one this bad again?'
>
> I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/years
since my last attack.'
>
> I wonder about the countless?events I've had prior to this, which pale so much
in comparison that I wonder, 'Maybe this isn't even related'. 'm aware that I so
desperately want this to be behind me?that I'm willing to?pooh-pooh it away as
just another fluke and chalk up this not-dizzy-but-I-could-quick-get-that-way
feeling as just me, aging (I'm 46)?and becoming loopy.? Some people, after all,
just aren't all that steady.?
>
> And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to hear
what others might be feeling.
>
> MJ in Missouri, USA
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
For some people it is constant, but not everybody, so there's hope! It's
frustrating, I know; I think frustration and apprehension are things all
Meniere's people learn to live with after awhile. I've learned that my
tinnitus(noises in the ears) fluctuates with my sodium intake, which is
something everyone with Meniere's is supposed to be watching anyway. If I'm not
careful about how much sodium I'm taking into my body, the tinnitus gets worse,
and for me that is always a sure sign that I'll be having an attack soon.
Sometimes it comes on quickly, and sometimes it drags out, with the dizziness
getting worse day by day until the attack hits. But tinnitus is one of the
common symptoms of all Meniere's people, and to my knowledge, all experience it.
And like I said earlier, each individual also has thier own triggers and
symptoms aside from the common ones. One thing that will have me spinning and
vomiting immediatley is water or moisture in my ears. It makes showering quite
interesting, to say the least, and my swimming days are long over.
Unfortunately, ear plugs don't work for me, because then my ear drums sweat,
causing the same problem. I'm curious- have your 'aftermaths' included fatigue,
or a feeling of extreme exhaustion for awhile? I tend to experience that right
before and right after many of my attacks, and I know some people do, but I
havnen't found many. I hope your 'aftermath' symptoms aren't long-term or
constant, because I agree that it's a frightening prospect. Sometimes my
'after-attack' symptoms hang on for a few days, and I'm always grateful when
they finally fade away until the next time. I'm sure you will leave your
appointment Wednesday with a head full of info, and I hope some of it helps to
alleviate your worries, if possible. Your doc might even be able to prescribe
you something to help some of your symptoms; some people luck out that way. Not
me, of course, lol. No meds have helped me. One thing I've learned is that
Meniere's patients often have to choose thier meds wisely, depending on which
symptoms they'd rather deal with in favor of lessening others. Good luck, and
I'll be interested in hearing the outcome of your appointment!
--- In menieresdiseaseclub@yahoogroups.com, Mes4Coeurs@... wrote:
>
> Thanks, Tboyd.?
>
> I have an appointment with my Neuro-Oto on Wednesday.
>
> Now you make a point that I've somehow missed along the way.? See - I
considered the 'attacks', by which I mean a sudden and severe case of
ceiling-spinning vertigo, to be what the tentative dx of Meniere's so long ago,
was all about.? Meniere's - a disease of remitting bouts of vertigo.? What I'm
hearing is that this 'aftermath' that I'm experiencing is, for some, a constant?
>
> :quelching panic:? This state of being is frightening to me.? The very thought
of it possibly becoming a constant....good God!!!
>
> MJ
> MO, USA
>
>
> -----Original Message-----
> From: tboyd_12 <tboyd_12@...>
> To: menieresdiseaseclub@yahoogroups.com
> Sent: Sat, Jul 11, 2009 1:16 pm
> Subject: [Meniere's Disease Club] Re: Two Weeks After the 'Big One' - please
help
>
>
>
>
>
>
>
>
>
> I think it's pretty much different with everyone. While the core symptoms are
universal, every Meniere's person has their own sets of symptoms and triggers,
as well. I have experienced that 'fog', as you term it, but to a lesser degree,
and that constant feeling that the dizziness can return in an instant is my
normal. So is the ringing and buzzing in my ears. I'm not a doctor, and I would
encourage you to ask a medical professional for confirmation, but it seems to me
that it could be an 'episode' consisting of your own Meniere's symptoms. And
don't be sorry; it's things like this that this site is here for. I hope you get
to feeling better. Here's to dizzy free days!
>
> --- In menieresdiseaseclub@yahoogroups.com, Mes4Coeurs@ wrote:
> >
> > Hey - it's another one of those 'is this normal' posts.? Sorry.
> >
> > So life goes on and I'm slowly coming out of this 'fog'.? The ringing in my
ears persist and there's this sense of a low hum that coats the inside of my
skull....a reminder of the roaring dizziness of two weeks ago.? I spend alot of
my time wondering if this is how it is for everyone.? Clarity peeks through and
a little voice whispers, 'It was just another 'one time thing'. After all - how
long has it been since you've had one this bad again?'
> >
> > I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/years
since my last attack.'
> >
> > I wonder about the countless?events I've had prior to this, which pale so
much in comparison that I wonder, 'Maybe this isn't even related'. 'm aware that
I so desperately want this to be behind me?that I'm willing to?pooh-pooh it away
as just another fluke and chalk up this not-dizzy-but-I-could-quick-get-that-way
feeling as just me, aging (I'm 46)?and becoming loopy.? Some people, after all,
just aren't all that steady.?
> >
> > And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to hear
what others might be feeling.
> >
> > MJ in Missouri, USA
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
Dear MJ,
Welcome to this site! I used to go years in between "spells". Even got
into denial. But have had a relapse since second week in January and am
just now getting back to "normal" (that's a laugh---as if I was ever normal
in the first place). I think I am feeling better because the weather has
stopped changing every five seconds. I take it one day at a time. I know upon
awakening if it is to be a productive day or one where I just sit like a
big bird staring into space. I hurry and take advantage of the days when I
feel like doing something and get into gratitude for the good ones and also
that I don't have something "worser". Where in Missouri are you? I am
originally an Oklahoma gal. Love and hugs, Lou (Yorba Linda, Ca).
In a message dated 7/11/2009 10:29:05 A.M. Pacific Daylight Time, Mes4Coeurs@... writes:
Hey - it's another one of those 'is this normal' posts.? Sorry.
So life goes on and I'm slowly coming out of this 'fog'.? The ringing in
my ears persist and there's this sense of a low hum that coats the inside of
my skull....a reminder of the roaring dizziness of two weeks ago.? I spend
alot of my time wondering if this is how it is for everyone.? Clarity
peeks through and a little voice whispers, 'It was just another 'one time
thing'. After all - how long has it been since you've had one this bad again?'
I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/I
imagine meetings, 'Hi, my
I wonder about the countless?events I've had prior to this, which pale so
much in comparison that I wonder, 'Maybe this isn't even related'. 'm aware
that I so desperately want this to be behind me?that I'm willing
to?pooh-pooh it away as just another fluke and chalk up this not-dizzy-but-I
wonder
aboutI wonder I wonder about the countless?events I've had prior to this,
which pale so much in comparison that I wonder, 'Maybe th
And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to
hear what others might be feeling.
MJ in Missouri, USA
[Non-text portions of this message have been removed]
I've given up on 'normal' years ago. LOL? I am looking forward to, perhaps some
day, going back to regularly work out.? This inactivity for fear of tilting the
world is annoying!
I SO totally get? the 'staring into space' thing.? I get that way and suddenly
realize that I'm standing next to a quite offended husband, child or friend, who
thinks I'm purposely ignoring them when what I'm really trying to do is make
sense of them talking AND what's going on in the world around me AT THE SAME
TIME.? Suddenly, there's no more skipping roap.? Everything is DOUBLE DUTCH!
MJ
MO (20 miles south of Kansas City but raised in Montreal)
-----Original Message-----
From: bowerslou@...
To: menieresdiseaseclub@yahoogroups.com
Sent: Sat, Jul 11, 2009 3:11 pm
Subject: Re: [Meniere's Disease Club] Two Weeks After the 'Big One' - please
help
Dear MJ,
Welcome to this site! I used to go years in between "spells". Even got
into denial. But have had a relapse since second week in January and am
just now getting back to "normal" (that's a laugh---as if I was ever normal
in the first place). I think I am feeling better because the weather has
stopped changing every five seconds. I take it one day at a time. I know upon
awakening if it is to be a productive day or one where I just sit like a
big bird staring into space. I hurry and take advantage of the days when I
feel like doing something and get into gratitude for the good ones and also
that I don't have something "worser". Where in Missouri are you? I am
originally an Oklahoma gal. Love and hugs, Lou (Yorba Linda, Ca).
In a message dated 7/11/2009 10:29:05 A.M. Pacific Daylight Time, Mes4Coeurs@... writes:
Hey - it's another one of those 'is this normal' posts.? Sorry.
So life goes on and I'm slowly coming out of this 'fog'.? The ringing in
my ears persist and there's this sense of a low hum that coats the inside of
my skull....a reminder of the roaring dizziness of two weeks ago.? I spend
alot of my time wondering if this is how it is for everyone.? Clarity
peeks through and a little voice whispers, 'It was just another 'one time
thing'. After all - how long has it been since you've had one this bad again?'
I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/I
imagine meetings, 'Hi, my
I wonder about the countless?events I've had prior to this, which pale so
much in comparison that I wonder, 'Maybe this isn't even related'. 'm aware
that I so desperately want this to be behind me?that I'm willing
to?pooh-pooh it away as just another fluke and chalk up this not-dizzy-but-I
wonder
aboutI wonder I wonder about the countless?events I've had prior to this,
which pale so much in comparison that I wonder, 'Maybe th
And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to
hear what others might be feeling.
MJ in Missouri, USA
[Non-text portions of this message have been removed]
Dear MJ,
Thanks for the newsy message. Double Dutch, that makes me think of
home and childhood! When you talk about "going back to work out". Do you mean
like exercise? If so, I am finally able to walk in the mornings before it
gets too hot. I haven't been able to return to aerobics or yoga because
doing the poses wreaks havoc on my balance. Love and hugs, Lou
In a message dated 7/11/2009 3:30:35 P.M. Pacific Daylight Time, Mes4Coeurs@... writes:
Thanks, Lou.
I've given up on 'normal' years ago. LOL? I am looking forward to, perhaps
some day, going back to regularly work out.? This inactivity for fear of
tilting the world is annoying!
I SO totally get? the 'staring into space' thing.? I get that way and
suddenly realize that I'm standing next to a quite offended husband, child or
friend, who thinks I'm purposely ignoring them when what I'm really trying
to do is make sense of them talking AND what's going on in the world around
me AT THE SAME TIME.? Suddenly, there's no more skipping roap.? Everything
is DOUBLE DUTCH!
MJ
MO (20 miles south of Kansas City but raised in Montreal)
-----Original Message-----
From: _bowerslou@..._ (mailto:bowerslou@...)
To: _menieresdiseaseclubmenieresdiseamen_
(mailto:menieresdiseaseclub@yahoogroups.com)
Sent: Sat, Jul 11, 2009 3:11 pm
Subject: Re: [Meniere's Disease Club] Two Weeks After the 'Big One' -
please help
Dear MJ,
Welcome to this site! I used to go years in between "spells". Even got
into denial. But have had a relapse since second week in January and am
just now getting back to "normal" (that's a laugh---as if I was ever
normal
in the first place). I think I am feeling better because the weather has
stopped changing every five seconds. I take it one day at a time. I know
upon
awakening if it is to be a productive day or one where I just sit like a
big bird staring into space. I hurry and take advantage of the days when I
feel like doing something and get into gratitude for the good ones and
also
that I don't have something "worser". Where in Missouri are you? I am
originally an Oklahoma gal. Love and hugs, Lou (Yorba Linda, Ca).
Hey - it's another one of those 'is this normal' posts.? Sorry.
So life goes on and I'm slowly coming out of this 'fog'.? The ringing in
my ears persist and there's this sense of a low hum that coats the inside
of
my skull....a reminder of the roaring dizziness of two weeks ago.? I spend
alot of my time wondering if this is how it is for everyone.? Clarity
peeks through and a little voice whispers, 'It was just another 'one time
thing'. After all - how long has it been since you've had one this bad
again?'
I imagine meetings, 'Hi, my name is MJ and it's been?____ weeks/months/I
imagine meetings, 'Hi, my
I wonder about the countless?events I've had prior to this, which pale so
much in comparison that I wonder, 'Maybe this isn't even related'. 'm
aware
that I so desperately want this to be behind me?that I'm willing
to?pooh-pooh it away as just another fluke and chalk up this
not-dizzy-but-to?pooh-p
aboutI wonder I wonder about the countless?events I've had prior to this,
which pale so much in comparison that I wonder, 'Maybe th
And so...please tell me about your aftermaths.? I've only once - and many
years ago, experienced this prolonged un-rightness and I think I need to
hear what others might be feeling.
MJ in Missouri, USA
[Non-text portions of this message have been removed]