Hi,



My name is MJ.



About 15 years ago, I began to have repeted bouts of labyrinthitis until finally

my FP sent me to be tested.  Many tests later, the results were inconlusive.  My

first attack of 'labyrinthitis' had me in bed for 3 days.  The Sit'n'Spin only

lasted for the first day.  The second day, I slept though the entire day.  I was

too exhausted to move.  On the third day, the fog begn to lift.  I've been

plagued with bouts of vertigo and tinnitis with a sense of 'disconect' many

times since then.



Last week, I was climbing stairs with my daughter and suddenly the tinnitus I'd

learned to live with began booming.  The world and every noun that exists within

it sort of half-shifted.  I drank more water thinking I might be dehydrated.  I

walked on eggshells for the rest of the day. Eventually, however, I had to lie

down.



I couldn't focus my eyes on anything.  As if pulled by strings, they listed to

the right.  God, the nausea and even shock.



Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting.  But that night, I began seeing flashing lights.



These were not floaters (I play floater tag during breaks).  These were fuzzy

white circles along the edges of my vision.



A trip to my eye doctor who gave my eyes a clen bill of health.

A trip to my FP, who gave me a shot of Phenegren.

And on day three, a trip to the Otorhinolaryngologist.



Among the symptoms I've mentioned here, the dr also noticed one pupil as being

slightly larger than the other and that I have a very slight head tremor.



I'll be undergoing testing a week from Wednesday.  Meanwhile, I'm on Dyazide to

help reduce any fluids I might have in my ears.



Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.



And so...here we are, one week later.  My balance is almost completely back to

normal though I'm not up for dancing.  And my head feels like it was reattached

by an amateur.

Meant to say, in the beginning that I ws tested for MENIERE'S. See?  Disconnect!



--- In menieresdiseaseclub@yahoogroups.com, "mesuniverse" <Mes4Coeurs@...>

wrote:

>

> Hi,

>

> My name is MJ.

>

> About 15 years ago, I began to have repeted bouts of labyrinthitis until

finally my FP sent me to be tested.  Many tests later, the results were

inconlusive.  My first attack of 'labyrinthitis' had me in bed for 3 days.  The

Sit'n'Spin only lasted for the first day.  The second day, I slept though the

entire day.  I was too exhausted to move.  On the third day, the fog begn to

lift.  I've been plagued with bouts of vertigo and tinnitis with a sense of

'disconect' many times since then.

>

> Last week, I was climbing stairs with my daughter and suddenly the tinnitus

I'd learned to live with began booming.  The world and every noun that exists

within it sort of half-shifted.  I drank more water thinking I might be

dehydrated.  I walked on eggshells for the rest of the day. Eventually, however,

I had to lie down.

>

> I couldn't focus my eyes on anything.  As if pulled by strings, they listed to

the right.  God, the nausea and even shock.

>

> Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting.  But that night, I began seeing flashing lights.

>

> These were not floaters (I play floater tag during breaks).  These were fuzzy

white circles along the edges of my vision.

>

> A trip to my eye doctor who gave my eyes a clen bill of health.

> A trip to my FP, who gave me a shot of Phenegren.

> And on day three, a trip to the Otorhinolaryngologist.

>

> Among the symptoms I've mentioned here, the dr also noticed one pupil as being

slightly larger than the other and that I have a very slight head tremor.

>

> I'll be undergoing testing a week from Wednesday.  Meanwhile, I'm on Dyazide

to help reduce any fluids I might have in my ears.

>

> Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.

>

> And so...here we are, one week later.  My balance is almost completely back to

normal though I'm not up for dancing.  And my head feels like it was reattached

by an amateur.

>

I must say, I'm intrigued by the neck tremor and lights. I also have a neck

tic/tremor, have for years. They said it was from my OCD. And the lights from

Migraines. Makes me wonder though



--- In menieresdiseaseclub@yahoogroups.com, "mesuniverse" <Mes4Coeurs@...>

wrote:

>

> Meant to say, in the beginning that I ws tested for MENIERE'S. See? 

Disconnect!

>

> --- In menieresdiseaseclub@yahoogroups.com, "mesuniverse" <Mes4Coeurs@> wrote:

> >

> > Hi,

> >

> > My name is MJ.

> >

> > About 15 years ago, I began to have repeted bouts of labyrinthitis until

finally my FP sent me to be tested.  Many tests later, the results were

inconlusive.  My first attack of 'labyrinthitis' had me in bed for 3 days.  The

Sit'n'Spin only lasted for the first day.  The second day, I slept though the

entire day.  I was too exhausted to move.  On the third day, the fog begn to

lift.  I've been plagued with bouts of vertigo and tinnitis with a sense of

'disconect' many times since then.

> >

> > Last week, I was climbing stairs with my daughter and suddenly the tinnitus

I'd learned to live with began booming.  The world and every noun that exists

within it sort of half-shifted.  I drank more water thinking I might be

dehydrated.  I walked on eggshells for the rest of the day. Eventually, however,

I had to lie down.

> >

> > I couldn't focus my eyes on anything.  As if pulled by strings, they listed

to the right.  God, the nausea and even shock.

> >

> > Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting.  But that night, I began seeing flashing lights.

> >

> > These were not floaters (I play floater tag during breaks).  These were

fuzzy white circles along the edges of my vision.

> >

> > A trip to my eye doctor who gave my eyes a clen bill of health.

> > A trip to my FP, who gave me a shot of Phenegren.

> > And on day three, a trip to the Otorhinolaryngologist.

> >

> > Among the symptoms I've mentioned here, the dr also noticed one pupil as

being slightly larger than the other and that I have a very slight head tremor.

> >

> > I'll be undergoing testing a week from Wednesday.  Meanwhile, I'm on Dyazide

to help reduce any fluids I might have in my ears.

> >

> > Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.

> >

> > And so...here we are, one week later.  My balance is almost completely back

to normal though I'm not up for dancing.  And my head feels like it was

reattached by an amateur.

> >

>

Ask your doctors about superior canal dehiscience syndrome. If they don't know

how to test for it, check into going to Johns Hopkins in Baltimore to see Dr.

Minor or Dr. Carey.



--- In menieresdiseaseclub@yahoogroups.com, "mesuniverse" <Mes4Coeurs@...>

wrote:

>

> Hi,

>

> My name is MJ.

>

> About 15 years ago, I began to have repeted bouts of labyrinthitis until

finally my FP sent me to be tested.  Many tests later, the results were

inconlusive.  My first attack of 'labyrinthitis' had me in bed for 3 days.  The

Sit'n'Spin only lasted for the first day.  The second day, I slept though the

entire day.  I was too exhausted to move.  On the third day, the fog begn to

lift.  I've been plagued with bouts of vertigo and tinnitis with a sense of

'disconect' many times since then.

>

> Last week, I was climbing stairs with my daughter and suddenly the tinnitus

I'd learned to live with began booming.  The world and every noun that exists

within it sort of half-shifted.  I drank more water thinking I might be

dehydrated.  I walked on eggshells for the rest of the day. Eventually, however,

I had to lie down.

>

> I couldn't focus my eyes on anything.  As if pulled by strings, they listed to

the right.  God, the nausea and even shock.

>

> Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting.  But that night, I began seeing flashing lights.

>

> These were not floaters (I play floater tag during breaks).  These were fuzzy

white circles along the edges of my vision.

>

> A trip to my eye doctor who gave my eyes a clen bill of health.

> A trip to my FP, who gave me a shot of Phenegren.

> And on day three, a trip to the Otorhinolaryngologist.

>

> Among the symptoms I've mentioned here, the dr also noticed one pupil as being

slightly larger than the other and that I have a very slight head tremor.

>

> I'll be undergoing testing a week from Wednesday.  Meanwhile, I'm on Dyazide

to help reduce any fluids I might have in my ears.

>

> Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.

>

> And so...here we are, one week later.  My balance is almost completely back to

normal though I'm not up for dancing.  And my head feels like it was reattached

by an amateur.

>

Thank you for the suggestion. I did look this up on Google and read several

articles describing it and the tests and I don't fit into most of the

categories. Mine isn't brought on by loud noises, but sometimes when I'm having

a bad day, loud noises just make me more sensitive but are relieved if I plug my

ears for awhile. I don't get Vertigo--yet-- anyway, and the focus thing I tried

myself and my eyes are able to stay on an object, even with moving my head back

and forth so I'll mention it to my doctor but don't think I have that problem.





--- On Mon, 7/6/09, bluestarsettlements <roxanne@...> wrote:





From: bluestarsettlements <roxanne@...>

Subject: [Meniere's Disease Club] Re: Meniere's - Inconclusive - Upcoming

Retest...my story

To: menieresdiseaseclub@yahoogroups.com

Date: Monday, July 6, 2009, 7:07 AM

















Ask your doctors about superior canal dehiscience syndrome. If they don't know

how to test for it, check into going to Johns Hopkins in Baltimore to see Dr.

Minor or Dr. Carey.



--- In menieresdiseaseclub @yahoogroups. com, "mesuniverse" <Mes4Coeurs@ ...>

wrote:

>

> Hi,

>

> My name is MJ.

>

> About 15 years ago, I began to have repeted bouts of labyrinthitis until

finally my FP sent me to be tested. Many tests later, the results were

inconlusive. My first attack of 'labyrinthitis' had me in bed for 3 days. The

Sit'n'Spin only lasted for the first day. The second day, I slept though the

entire day. I was too exhausted to move. On the third day, the fog begn to lift.

I've been plagued with bouts of vertigo and tinnitis with a sense of 'disconect'

many times since then.

>

> Last week, I was climbing stairs with my daughter and suddenly the tinnitus

I'd learned to live with began booming. The world and every noun that exists

within it sort of half-shifted. I drank more water thinking I might be

dehydrated. I walked on eggshells for the rest of the day. Eventually, however,

I had to lie down.

>

> I couldn't focus my eyes on anything. As if pulled by strings, they listed to

the right. God, the nausea and even shock.

>

> Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting. But that night, I began seeing flashing lights.

>

> These were not floaters (I play floater tag during breaks). These were fuzzy

white circles along the edges of my vision.

>

> A trip to my eye doctor who gave my eyes a clen bill of health.

> A trip to my FP, who gave me a shot of Phenegren.

> And on day three, a trip to the Otorhinolaryngologi st.

>

> Among the symptoms I've mentioned here, the dr also noticed one pupil as being

slightly larger than the other and that I have a very slight head tremor.

>

> I'll be undergoing testing a week from Wednesday. Meanwhile, I'm on Dyazide to

help reduce any fluids I might have in my ears.

>

> Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.

>

> And so...here we are, one week later. My balance is almost completely back to

normal though I'm not up for dancing. And my head feels like it was reattached

by an amateur.

>

































[Non-text portions of this message have been removed]

Where do you live? Johns Hopkins is having great success in treating Meniere's

and similiar conditions.



--- In menieresdiseaseclub@yahoogroups.com, Janet and Tom <jstr54@...> wrote:

>

> Thank you for the suggestion. I did look this up on Google and read several

articles describing it and the tests and I don't fit into most of the

categories. Mine isn't brought on by loud noises, but sometimes when I'm having

a bad day, loud noises just make me more sensitive but are relieved if I plug my

ears for awhile. I don't get Vertigo--yet-- anyway, and the focus thing I tried

myself and my eyes are able to stay on an object, even with moving my head back

and forth so I'll mention it to my doctor but don't think I have that problem.

>

>

> --- On Mon, 7/6/09, bluestarsettlements <roxanne@...> wrote:

>

>

> From: bluestarsettlements <roxanne@...>

> Subject: [Meniere's Disease Club] Re: Meniere's - Inconclusive - Upcoming

Retest...my story

> To: menieresdiseaseclub@yahoogroups.com

> Date: Monday, July 6, 2009, 7:07 AM

>

>

>

>

>

>

>

>

> Ask your doctors about superior canal dehiscience syndrome. If they don't know

how to test for it, check into going to Johns Hopkins in Baltimore to see Dr.

Minor or Dr. Carey.

>

> --- In menieresdiseaseclub @yahoogroups. com, "mesuniverse" <Mes4Coeurs@ ...>

wrote:

> >

> > Hi,

> >

> > My name is MJ.

> >

> > About 15 years ago, I began to have repeted bouts of labyrinthitis until

finally my FP sent me to be tested. Many tests later, the results were

inconlusive. My first attack of 'labyrinthitis' had me in bed for 3 days. The

Sit'n'Spin only lasted for the first day. The second day, I slept though the

entire day. I was too exhausted to move. On the third day, the fog begn to lift.

I've been plagued with bouts of vertigo and tinnitis with a sense of 'disconect'

many times since then.

> >

> > Last week, I was climbing stairs with my daughter and suddenly the tinnitus

I'd learned to live with began booming. The world and every noun that exists

within it sort of half-shifted. I drank more water thinking I might be

dehydrated. I walked on eggshells for the rest of the day. Eventually, however,

I had to lie down.

> >

> > I couldn't focus my eyes on anything. As if pulled by strings, they listed

to the right. God, the nausea and even shock.

> >

> > Day 2, the vertigo was still with me though I could get the ceiling to stop

shifting. But that night, I began seeing flashing lights.

> >

> > These were not floaters (I play floater tag during breaks). These were fuzzy

white circles along the edges of my vision.

> >

> > A trip to my eye doctor who gave my eyes a clen bill of health.

> > A trip to my FP, who gave me a shot of Phenegren.

> > And on day three, a trip to the Otorhinolaryngologi st.

> >

> > Among the symptoms I've mentioned here, the dr also noticed one pupil as

being slightly larger than the other and that I have a very slight head tremor.

> >

> > I'll be undergoing testing a week from Wednesday. Meanwhile, I'm on Dyazide

to help reduce any fluids I might have in my ears.

> >

> > Aside from testing for Meniere's - he said something about brain stem issues

that should be looked at.

> >

> > And so...here we are, one week later. My balance is almost completely back

to normal though I'm not up for dancing. And my head feels like it was

reattached by an amateur.

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>