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Meniere's - Inconclusive - Upcoming Retest...my story   Message List  
Reply | Forward Message #45510 of 45686 |
Hi,

My name is MJ.

About 15 years ago, I began to have repeted bouts of labyrinthitis until finally
my FP sent me to be tested. Many tests later, the results were inconlusive. My
first attack of 'labyrinthitis' had me in bed for 3 days. The Sit'n'Spin only
lasted for the first day. The second day, I slept though the entire day. I was
too exhausted to move. On the third day, the fog begn to lift. I've been
plagued with bouts of vertigo and tinnitis with a sense of 'disconect' many
times since then.

Last week, I was climbing stairs with my daughter and suddenly the tinnitus I'd
learned to live with began booming. The world and every noun that exists within
it sort of half-shifted. I drank more water thinking I might be dehydrated. I
walked on eggshells for the rest of the day. Eventually, however, I had to lie
down.

I couldn't focus my eyes on anything. As if pulled by strings, they listed to
the right. God, the nausea and even shock.

Day 2, the vertigo was still with me though I could get the ceiling to stop
shifting. But that night, I began seeing flashing lights.

These were not floaters (I play floater tag during breaks). These were fuzzy
white circles along the edges of my vision.

A trip to my eye doctor who gave my eyes a clen bill of health.
A trip to my FP, who gave me a shot of Phenegren.
And on day three, a trip to the Otorhinolaryngologist.

Among the symptoms I've mentioned here, the dr also noticed one pupil as being
slightly larger than the other and that I have a very slight head tremor.

I'll be undergoing testing a week from Wednesday. Meanwhile, I'm on Dyazide to
help reduce any fluids I might have in my ears.

Aside from testing for Meniere's - he said something about brain stem issues
that should be looked at.

And so...here we are, one week later. My balance is almost completely back to
normal though I'm not up for dancing. And my head feels like it was reattached
by an amateur.






Mon Jul 6, 2009 3:16 am

mesuniverse
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Forward
Message #45510 of 45686 |
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Hi, My name is MJ. About 15 years ago, I began to have repeted bouts of labyrinthitis until finally my FP sent me to be tested. Many tests later, the results...
mesuniverse
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Jul 6, 2009
3:17 am

Meant to say, in the beginning that I ws tested for MENIERE'S. See? Disconnect!...
mesuniverse
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Jul 6, 2009
3:21 am

I must say, I'm intrigued by the neck tremor and lights. I also have a neck tic/tremor, have for years. They said it was from my OCD. And the lights from...
Becka
beckas_lily_...
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Jul 6, 2009
10:01 pm

Ask your doctors about superior canal dehiscience syndrome. If they don't know how to test for it, check into going to Johns Hopkins in Baltimore to see Dr....
bluestarsettlements
bluestarsett...
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Jul 6, 2009
12:07 pm

Thank you for the suggestion. I did look this up on Google and read several articles describing it and the tests and I don't fit into most of the categories....
Janet and Tom
jstr54...
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Jul 6, 2009
5:07 pm

Where do you live? Johns Hopkins is having great success in treating Meniere's and similiar conditions....
bluestarsettlements
bluestarsett...
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Jul 6, 2009
5:29 pm
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