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HELP ME PLEASE   Message List  
Reply | Forward Message #44687 of 45718 |
Re: HELP ME PLEASE

HI Missy:

I have had the same awful symptoms and have crawled up my stairs to
my second floor apartment quite a few times.

Please look into the gentamyacin shots. I am getting my second one
this week, and for me the shot stopped the spins. My doctor from
Massachusetts Eyes and Ear Infirmary in Boston said it helps 70-90 %
of Menieres patients.

I was as depressed as you, but refused to believe there was nothing
out there. I bought the Menneits Device and but unfortunately I got
bad attacks months later, so i htink i was in remission when i
boughtit. it just didnt work for me. There are of course surgeries
but i implore youto try the shots first.

Please know it might take alot of trial and error but there is
usallysomething out there that can take away the spins.

Good Luck and please keep us posted.


--- In menieresdiseaseclub@yahoogroups.com, "missi1031"
<missi1031@...> wrote:
>
> I guess I will just start from the beginning. On December 2007 I
> noticed that I had this sound in my ear, the best way for me to
> explain it is, you know in the middle of the hot summer, and it is
so
> quiet and all you can hear is the buzzing of a transfromer on the
> street, well that is the sound I experienced in my ear, followed
the
> a poof and it became muffled, and then I walked sideways for 3-4
> days, and was unable to drive. I was good besides my right eye
> flickered rapidly for no reason after that, and it has since. I
was
> good no sounds in the ear, walking was fine and then March 15th
2008
> I heard that noise in my right ear again followed by a poof, and it
> felt like I had just gone deaf in that ear, I even mentioned it to
a
> co-worker, but we both just ignored it, and I went on with my day.
> March 26th 2008 My eyes felt like they were floating in the back of
> my head, no matter how I moved my head whether it be down, right,
> left, or back I felt sick to the point where I would vomit, and I
was
> dizzy, and felt the sensation that I would just drop to the floor.
> On my way home I had the sensation to pull over multiple times to
> vomit, but I pushed on to get home, once home, I barely parked the
> car, and cad to hold the stairs and pretty much crawl to get into
my
> apartment, aneighbor was concerned, and asked if I was alright. I
> just kept saying I had to get inside, once inside I lay on the
couch,
> and the room spun for hours.
> I went to the Doctor the next day, and was given Meclizine,
Allegra,
> and Steroid Pack, none that helped the symptoms. It all got really
> bad after that: Full right ear, ringing in that right ear, light
> sensitivity with floaters, migraines, vertigo, right eye
flickering,
> exhaustion, extreme anxiety wich made walking unbearable,
> disequilibrium where it felt like I was on ice skates, and the
worst
> at it, I couldn't even sit in a chair without holding the sides of
> the arms in fear I would fall over, and was unable to be left
alone,
> was walked to the bathroom.
> I have had every test known to man/woman I have seen a Neurologist,
> ENT and my PCP all seem to think it sounds like Menieres Disease.
> I have had an MRI, CAT-scan, and numerous blood work, along with an
> Audiology exam, but this exam was well after all the symptoms had
> subsided quite a bit.
> My dizziness has not been as bad, my right eye barely flickers, my
> migraines are not every day now, my right ear still feels full but
> not as bad, but my disequilibrium comes and goes, especially when I
> have an anxiety attack that comes on, because I am full of anxiety,
> so I have to walk with a cane, and they all say I should have a
> walker at home in case. I haven't driven, worked, gone out in
public
> except for the Doctors appointments in 5 weeks, I feel depressed,
and
> now I cry on the drop of a dime for hours, and I can not stop it
once
> it starts, I feel like I am losing my sanity. Any advise please???
>





Sun May 4, 2008 7:52 am

rhianonn29
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Forward
Message #44687 of 45718 |
Expand Messages Author Sort by Date

I guess I will just start from the beginning. On December 2007 I noticed that I had this sound in my ear, the best way for me to explain it is, you know in the...
missi1031
Offline Send Email
May 3, 2008
2:26 pm

Hi, I am Elaine. I have had menieres for 21 years. I had my first attack while preg. with my 3rd child. It sounds alot like yours. I was afraid I would never ...
elaine hardaway
ehardawayfl
Offline Send Email
May 3, 2008
3:39 pm

Hi, I am Elaine. I have had menieres for 21 years. I had my first attack while preg. with my 3rd child. It sounds alot like yours. I was afraid I would never ...
elaine hardaway
ehardawayfl
Offline Send Email
May 3, 2008
3:40 pm

Hi, Just wanted to let you know what you are experiencing I have also experienced with the exception of the migranes, which definetly goes along with...
Becky
bbroadway79
Offline Send Email
May 3, 2008
4:08 pm

Hello Becky, Thank you so much. I think the worst is the not knowing what it is, all the Doctors said from the beginning that it sounds like Meniere's, but...
Melissa Boelzner
missi1031
Offline Send Email
May 3, 2008
4:50 pm

Hi, Missi - Fluctuating hearing loss is one of the 4 main symptoms of Meniere's. I've had it for more than 15 years and for a long time I was almost deaf,...
Penny Antine
pennyantine
Offline Send Email
May 3, 2008
6:37 pm

Hi Missi, I do remember reading a post on here where someone stated that their audio exam was normal so their ENT wanted to rule out meniere's. However this...
Becky
bbroadway79
Offline Send Email
May 4, 2008
1:55 am

Dear Missi....You are not alone with all these symptoms,....I have the eye thing with the flickering and constant dizziness so known there are...
katiedid312
Offline Send Email
May 3, 2008
5:53 pm

Hi missi, I really feel for you. My Meniere's started with a bang also. It certainly wasn't a gradual thing. I have experienced all your symptoms except the...
Brenda
brendapurden
Offline Send Email
May 3, 2008
7:06 pm

HI Missy: I have had the same awful symptoms and have crawled up my stairs to my second floor apartment quite a few times. Please look into the gentamyacin...
rhianonn29
Offline Send Email
May 4, 2008
7:52 am

I so far rarely get the attacks, but when I do they do last for hours, is there something I can take that will stop the attack once its happened? ...
patrick
jhjkohjkuiou...
Offline Send Email
May 5, 2008
1:15 pm

Hi, Patrick - Our doctors usually prescribe meclazine, which will stop a vertigo attack once it has started. My experience, however, is that it took about 2...
Penny Antine
pennyantine
Offline Send Email
May 5, 2008
2:38 pm

Dear Missi, Just a little note of encouragement Hang in there And I will pray for you. I would still be on the couch if it wasn't for the Lord. Might sound...
j p
pjasonswife
Offline Send Email
May 5, 2008
4:57 pm

Missy, Did you get my e-mail about the gent shots? j p <pjasonswife@...> wrote: Dear Missi, Just a little note of...
Lori lyons
rhianonn29
Offline Send Email
May 5, 2008
5:04 pm
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