Hello Joanne and Sarah,
Thank you so much for the messages. When I first found out what this was I felt
so all alone and out there. I eventually went to Iowa City Clinics in Iowa
City, Ia. They really helped me alot. My own local doctor said I'd be wasting
my money but I needed to talk to a specialist for my own piece of mind. Thank
goodness I didn't listen to him and insisted. They (Iowa City) immediately put
me on a low sodium diet (1500 Mg.) and I think it helps some but not
completely. I thought I was so abused at first until I got used to it. I really
liked salty foods. They gave me a book called "Low-Salt Diet for Meniere's
Disease" by Brian F. McCabe, M.D. It is a small book and very handy until you
become familier with what you can eat and what you can't. Since I had the nerve
section they told me the salt wouldn't make any difference but now to watch my
diet more as a precaution for not getting in the other ear. I still watch it
very closely and pray alot.
They also put me on a diuretick but that depletes my potassium so I need to take
supplements each day.
Some days I feel so guilty because it is so much better than it was and I know
it could be a lot worse but that doesn't help me with the constant fear of
getting on the other side.
You're right in that I hope they will find some kind of relief someday soon.
Lovell
sjmentore <sjmentore@...> wrote:Hi Love,

My name is Sarah. Unfortunately, I have the disease in both ears. I
have been suffering form the disease since 1987, but was not diagnosed
with Meniere's until April 2002. In fact, it was only after my
research that my doctor was able to tell me what I have. Now, isn't
that a laugh! Hang in there. I can only hope and pray that one day
there will be true relief for this disease.



--- In menieresdiseaseclub@yahoogroups.com, Joanne Brady
<joannejoey1999@y...> wrote:
> Hi Lovell,
>
> My name is Joanne. I too have had this disease in my
> right ear only. I don't have a shunt because my ear
> doctor told me that they don't work. (sorry for those
> who have them and it works I don't mean to offend
> anyone). My doctor told me that if I have it in one
> ear there is a good chance that I will never get it in
> the other ear. Some cases I guess are different from
> everyone else. Right now I am just on medication for
> it. It has been helping somewhat but the next step
> would be surgery of some kind. I know how you feel
> with the dizziness and being off balance. If you need
> to chat feel free to email me.
>
> Good Luck,
> Joanne
> --- "lovelllee <lovelllee@y...>"
> <lovelllee@y...> wrote:
> > Hello everyone,
> > My name is Lovell. I live in the midwest and don't
> > have much
> > opportunity for support groups which I could
> > certainly use. I've
> > had Meniere's apparently since 1988. It wasn't
> > diagnosed, however
> > until 1993. I've been through what alot of you have
> > been.
> > Hopefully, I only have it in my left ear but that
> > has been about all
> > I can take! I've had a shunt that seemed to work
> > for about a year
> > and then came back even worse. (I hate to say that
> > for the ones who
> > have had a shunt and works for them). I then had a
> > vestibular nerve
> > section which, thankfully, relieved the vertigo. I
> > still have a
> > feeling of dizziness but just not with the spinning.
> > Also, the other
> > symptoms like tinnitus, fullness, blurred vision
> > etc.
> > Now I live with the fear of getting it in the other
> > ear. If that
> > should happen I would probably loose the hearing in
> > that ear also,
> > but they couldn't to another nerve section because
> > then I would have
> > no balance. This scares me more that loosing all of
> > my hearing. I
> > wake up at night with dizzy feeling and now almost
> > as a reflex, have
> > panic attacks. I think it must be kind of like post
> > traumatic
> > syndrome. It's like a nightmare you can't wake up
> > from. I've been
> > to a psychologist and several medical doctor's all
> > trying to help
> > me. The psychologist mostly suggested to keep busy
> > which I do and
> > does seem to help some but not always. Some of the
> > drugs I have
> > tried only seem to make the meniere's worse in
> > different ways like
> > the tinnitus. I am now on Prozac and that seems to
> > help some but not
> > much and would be open to trying any other
> > suggestions.
> >
> > My question is, have any of you tried anything that
> > helps you. Any
> > drugs that help?
> >
> > My heart goes out to anyone that has this disease.
> > It may not kill
> > you---it just drives you nuts!
> > '
> > HELP!
> >
> > Lovell
> > I'm on Prozac now and it does seem to help some.
> >
> >
>
>
> __________________________________________________
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