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Vestibular nerve section---now what?   Message List  
Reply | Forward Message #23367 of 45707 |
Hello everyone,
My name is Lovell. I live in the midwest and don't have much
opportunity for support groups which I could certainly use. I've
had Meniere's apparently since 1988. It wasn't diagnosed, however
until 1993. I've been through what alot of you have been.
Hopefully, I only have it in my left ear but that has been about all
I can take! I've had a shunt that seemed to work for about a year
and then came back even worse. (I hate to say that for the ones who
have had a shunt and works for them). I then had a vestibular nerve
section which, thankfully, relieved the vertigo. I still have a
feeling of dizziness but just not with the spinning. Also, the other
symptoms like tinnitus, fullness, blurred vision etc.
Now I live with the fear of getting it in the other ear. If that
should happen I would probably loose the hearing in that ear also,
but they couldn't to another nerve section because then I would have
no balance. This scares me more that loosing all of my hearing. I
wake up at night with dizzy feeling and now almost as a reflex, have
panic attacks. I think it must be kind of like post traumatic
syndrome. It's like a nightmare you can't wake up from. I've been
to a psychologist and several medical doctor's all trying to help
me. The psychologist mostly suggested to keep busy which I do and
does seem to help some but not always. Some of the drugs I have
tried only seem to make the meniere's worse in different ways like
the tinnitus. I am now on Prozac and that seems to help some but not
much and would be open to trying any other suggestions.

My question is, have any of you tried anything that helps you. Any
drugs that help?

My heart goes out to anyone that has this disease. It may not kill
you---it just drives you nuts!
'
HELP!

Lovell
I'm on Prozac now and it does seem to help some.




Mon Mar 3, 2003 5:13 pm

lovelllee
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Message #23367 of 45707 |
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Hello everyone, My name is Lovell. I live in the midwest and don't have much opportunity for support groups which I could certainly use. I've had Meniere's...
lovelllee <lovelllee@...
lovelllee
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Mar 3, 2003
5:14 pm

Hi Lovell, My name is Joanne. I too have had this disease in my right ear only. I don't have a shunt because my ear doctor told me that they don't work. (sorry...
Joanne Brady
joannejoey1999
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Mar 4, 2003
4:21 pm

Hi Love, My name is Sarah. Unfortunately, I have the disease in both ears. I have been suffering form the disease since 1987, but was not diagnosed with...
sjmentore
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Mar 5, 2003
9:33 pm

Hello Joanne and Sarah, Thank you so much for the messages. When I first found out what this was I felt so all alone and out there. I eventually went to Iowa...
lovell caraway
lovelllee
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Mar 5, 2003
10:01 pm
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