The US Dept of Health and Human Services approved yesterday that oxymetry become part of the universal protocol for newborn screening. The 46 pg report has a...
724
Amy Basken
amybasken
Oct 8, 2010 4:04 pm
Isn't this so exciting?! Erin- your link is the recommendation that came from the review Committee. Do you know if Secretary Sebelius has ruled on it yet?...
725
Jodi Lemacks
jodilemacks
Oct 13, 2010 1:54 pm
This article is about one of our MLH of Jacksonville kiddos: http://www.virtualonlinepubs.com/publication/?i=45789 ...
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Jodi Lemacks
jodilemacks
Oct 13, 2010 1:59 pm
This was posted on pdheart, and I thought it was a very interesting article http://news.yahoo.com/s/nm/20101012/us_nm/us_heart_pump. It raises some difficult...
727
Jaime
jaimeolsen...
Nov 11, 2010 4:58 pm
I have a teen/young adult that is getting an ICD and is looking for a support. Does anyone have a group or website that you can recommend? Jaime Olsen Chicago...
Hoping all of you have a wonderful Christmas and a fabulous, healthy New Year! Hugs, Tammy (cp TylerCurtis) Hoping all of you have a wonderful Christmas and a...
730
Jodi Lemacks
jodilemacks
Dec 22, 2010 11:12 pm
How adorable! Thanks for sharing. Jodi Lemacks Mended Little Hearts, National Program Director jodi.lemacks@... 214-224-0817 ...
731
Misty Swingle
pixydust614977
Dec 22, 2010 11:31 pm
aww, wonderful pictures tammy!!!    Merry Christmas to you and everyone else out there in our mended little hearts community from the Swingle's. Here...
732
Tammy Sears
tylercurtiss...
Jan 6, 2011 6:42 pm
For those who may not have gotten this invite, I'd thought I'd share. Hugs, Tammy (cp TylerCurtis) ... From: ACHA Webinars <ACHA_Webinars@...> To:...
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lenandcandida@...
candidaschendel
Feb 1, 2011 3:09 am
Dear friends, family, and acquaintances: I am sending a message to everyone in our address book because it has come to our attention that erroneous emails...
734
Susan Vanderpool
mlhtulsa
Feb 10, 2011 2:39 pm
I just have to brag on one of our coordinators, Joanna Ricketts, she got two billboards donated here in Tulsa for CHD awareness week.
Joanna, YOU ARE SO...
735
Christy Davis
twospecialgirls
Feb 10, 2011 3:39 pm
This is fantastic!!! Christy Davis From the Heart Images email: fromtheheartimages@... Website: http://fromtheheartimages.com/ ...
736
karincoulter
Feb 12, 2011 4:37 pm
SB-65 Relative to Screening of Newborns will be on the Health Calendar next week. The committee meets on Wednesday, February 16, in Committee Rm 12 at 11:00am...
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Vanessa West
tucson_littl...
Feb 13, 2011 4:35 am
That is AWESOME!!! Vanessa WestProgram CoordinatorMended Little Hearts of TucsonTucsonAz@... Little hearts hold BIG...
738
Kim Baratz
mjnkk
Apr 16, 2011 3:31 pm
http://puff24.pu.funpic.de/url11.php...
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Kim Baratz
mjnkk
Apr 17, 2011 3:00 am
Please disregard any email(s) you may have received from me. I did NOT send it/them. I guess I was hacked. Sorry. Kim Baratz Mom to Seth, 8, TGA SURVIVOR ...
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Kim Baratz
mjnkk
Apr 22, 2011 12:07 am
http://expain.es/url11.php...
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karincoulter
Apr 22, 2011 8:57 am
Do any of the MLH coordinators need surgery care packages? I currently have 10 boxes of 10 care packages each that are ready to ship if you need them. Please...
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Carrie Poe
cheerio_78
Apr 22, 2011 1:18 pm
Hi  That sounds like a nice idea. Wish we would have known we had our 2nd heart surgery in January.  PS I don't have a coordinator in our area (Kansas) so...
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Amy Basken
amybasken
May 11, 2011 1:14 pm
I've updated our blog to include the upcoming CHD Walks: http://wp.me/pJIc8-3L Check it out and please consider posting the following on your social media ...
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Erin Taylor
andreaatbeach
Jul 15, 2011 1:53 pm
http://www.socialsecurity.gov/compassionateallowances/conditions.htm: Visit here and see that HLHS, transplant conditions and several others have been added! ...
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Amy Basken
amybasken
Jul 15, 2011 2:26 pm
Yes!! Many kudos to the efforts of Mended Little Hearts for their role in making this a reality! ... -- National Advocacy Chairperson Mended Little Hearts ...
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Tammy Sears
tylercurtiss...
Jul 15, 2011 2:38 pm
Excuse my ignorance, but what does that mean? Can Tyler now get social security benefits without my income being considered? Thanks, Tammy (cp TylerCurtis) ...
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Amy Basken
amybasken
Jul 15, 2011 3:27 pm
Based on what I have read, I am not entirely certain. I would say it is definitely worth looking into! Here's the website: ...
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Tammy Sears
tylercurtiss...
Jul 15, 2011 3:37 pm
Thanks, after looking online and then calling the social security administration, I still make too much for Tyler to qualify currently. But from what I can...
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ter
tdv1994
Jul 15, 2011 8:48 pm
Thank you both for all the information! Dixie Varns Mended Little Hearts/Thumpers Coordinator National Awareness Committee www.mendedlittlehearts.org Little...
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sasha
tink09belle
Aug 9, 2011 2:39 pm
Anybody have or know anything about vascular ring? I have a cousin who was diagnosed as an infant but nothing was done at the time. She has recently looked...
751
kimberly lester
kimberly-les...
Aug 9, 2011 3:54 pm
Hello all, I have a question have any of you ever did FMLA when your child was having an angioplastic done.? PLease let me know. Thanks Kimberly Flowers mother...
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Joanna Ricketts
joannaricket...
Aug 9, 2011 4:11 pm
I have used FMLA for a variety of heart related issues (but not that specific one). All I had to do was have his doctor fill out an initial request and mark...
