Tashina,     How old is your son?  Are you thinking of getting the repair before he gets older or do you want to wait?  My son had surgery at 16...
363
Jodi Lemacks
jodilemacks
Mar 2, 2010 9:33 pm
Folks, We now have a CHD Awareness car entered in the Toyoto competition. We need as many votes as possible so the car wins. This would do a lot for ...
364
MichelleATierney@...
prdmum2_4
Mar 3, 2010 12:08 am
That's pretty cool. In a message dated 3/2/2010 4:33:09 P.M. Eastern Standard Time, jlemacks@... writes: Folks, We now have a CHD Awareness car entered...
365
Cheyenne Gibbs
cheycry21
Mar 3, 2010 12:29 am
Does anyone know the website where a couple of months ago you were able to sign your child up with a picture in hopes they will be placed in the...
366
Tashina Baldridge
tbaldridge13
Mar 3, 2010 12:57 am
Cayden is 17 months old he has the bicuspid aortic valve and a coarctation of the aorta I know his cardiologist wants to fix the coart when he is 4 or 5 but he...
367
Jodi Lemacks
jodilemacks
Mar 3, 2010 1:02 am
It was Karin Coulter of Saving Little Hearts. They provide care packages for many MLH groups. She already did produce that calendar, but she does one every...
368
Andrea Baer
baer4548
Mar 3, 2010 1:04 am
I know that Saving Little Hearts does a Calendar. I'm not sure how they get their pics but you could check their site out and see. Andrea Baer Local...
369
Vanessa West
tucson_littl...
Mar 3, 2010 1:49 am
This is the one I know about. http://www.savinglittlehearts.org/ Vanessa West Program Coordinator Mended Little Hearts of Tucson ...
370
Jodi Lemacks
jodilemacks
Mar 3, 2010 2:11 am
It is actually www.savinglittlehearts.com. Jodi Lemacks Mended Little Hearts, National Program Coordinator jodi.lemacks@... 804-378-8053 ...
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Amy Basken
amybasken
Mar 3, 2010 2:24 am
Nick was born with severe coarc and what was thought to be a bicuspid valve. At the time, the doctor told us he needed to repair the coarc immediately and...
372
Margareta Barrs
margiemiakian
Mar 3, 2010 2:52 am
Hi I always thought the oldest living adult was Bryan Rothlein but found out today there is some one older. I dont know how old this post is as it doesn't say....
373
Erin
andreaatbeach
Mar 3, 2010 4:08 pm
And a few of us are transplant survivors either having undergone the fontan surgeries (like we did) or skipping them all together Sent from my iPhone On Mar 3,...
374
Margareta Barrs
margiemiakian
Mar 4, 2010 1:26 am
Hi Heart Family, Just thought I would share a couple of pictures of Kian and his HLHS Bear. 1st Pic - Kian and Bear. 2nd Pic - HLHS Bear with Chest Zipper...
375
Andrea Baer
baer4548
Mar 4, 2010 1:51 am
I love the pics! The bear is soooo cute!!! And Kian...well he's a doll for sure! what an awesome bear to have. Andrea Baer Local Coordinator Mended Little...
376
Margareta Barrs
margiemiakian
Mar 4, 2010 1:59 am
http://www.bummerbears.com/shop/product.php?productid=16135 Bummer Bears - American Company. I wanted one for Kian, we were the first UK order xxx Margie Mia...
377
Kim Baratz
mjnkk
Mar 4, 2010 2:46 am
What great pics!! My son Seth has this bear too and he LOVES it!!! Kim Baratz Mom to Seth, 7, TGA SURVIVOR Co-coordinator Little Hearts Lifeline - Mended...
378
Vanessa West
tucson_littl...
Mar 4, 2010 5:57 am
I LOVE this bear! I just ordered one for Arianna. :) Thanks for sharing the pictures. I'm so excited to give this to my daughter. Vanessa West ...
379
Megan Setzer
cmsetzer02
Mar 4, 2010 12:41 pm
For some reason I can't view the pictures and I am still having issues with the group page. :( I would love to see the pics Margie. Would you email them to...
380
lara barnhouse
heartmom08
Mar 4, 2010 1:41 pm
Kian is so cute w/ his bear-he is precious. The bear is cute too.where did u order it from? do they just specify HLHS or do u think they make them for any...
381
tcsears@...
tylercurtiss...
Mar 4, 2010 2:27 pm
Tyler and his Bummer Bear. This picture is actually on the Bummer Bear website. Hugs, Tammy (cp TylerCurtis) ... ...
382
tcsears@...
tylercurtiss...
Mar 4, 2010 2:38 pm
What a cutie patootie!!!! Great pictures! Hugs, Tammy (cp TylerCurtis) ... Hi Heart Family, Just thought I would share a couple of pictures of Kian and his...
383
Andrea Baer
baer4548
Mar 4, 2010 2:54 pm
AWWWW....I love it!!!! I really love seeing our kiddos. Andrea Baer Local Coordinator Mended Little Hearts of Southwestern, PA www.mendedlittleheartsofswpa.com...
384
Erin Taylor
andreaatbeach
Mar 4, 2010 5:02 pm
http://newsok.com/multimedia/photos/gallery/600481/31/871940?custom_click=search Picture of Henry in Daily Oklahoman after he was a ribbon cutter for The Zone...
385
Andrea Baer
baer4548
Mar 4, 2010 5:31 pm
LOL, I had to laugh Erin about the comment "I'm a vampire." HaHa How wonderful! I love all the awareness and news coverage CHD is getting. Andrea Baer Local...
386
Margareta Barrs
margiemiakian
Mar 4, 2010 7:12 pm
Hi Lara, Here is the Link where I had the bear from: http://www.bummerbears.com/shop/product.php?productid=16135 The Bear on the website is actually called a...
387
Margareta Barrs
margiemiakian
Mar 4, 2010 7:17 pm
Hi Tammy, I saw this picture when you posted it a while back and that is when I decided to get Kian his for his Birthday xxx Margie Mia HH (4) and Kian HLHS...
388
tcsears@...
tylercurtiss...
Mar 5, 2010 2:33 pm
I wanted to share some really great books I have read (I have become a medical junky, but only the stuff that is easy and interesting to read). The first book...
389
Amy Basken
amybasken
Mar 5, 2010 6:29 pm
I thought this looked very interesting for our young adult and adult members - please share: Amy B. [image: ACHALogo_B_R.jpg] *How to Have Fun Saturday Night...
390
Sandy Briggs
sandybriggs36
Mar 10, 2010 6:39 pm
Hi Everyone- It has been a while since we were all on this board and I thought maybe it would be a good time to find something to talk about. Lets do something...
391
Andrea Baer
baer4548
Mar 10, 2010 10:26 pm
How fun! OK...I have two answers. HaHa If I was a Genie I'd have a way to clean my house with the twitch of my nose If I was a millionaire I'd have a way to...
