Hi all My name's Jo, I'm 40 and live near Penrith. Have had ME for nearly 16 years, 6 spent severely affected and bedridden but now moderately affected. I'm...
Here is a link to the ME in Eden District website http://www.me- ed.co.uk/ It is an online information resource for people with M.E. in Penrith, Eden District...
Link to the ME Information Portal website: http://www.me-portal.co.uk/displayItem.asp?Name=Home This is a very useful site written from an academic and...
CFS services have been established in Cumbria for two or three years, they are currently based in Keswick. As I understand it, the service they offer includes...
There is some background info on the CFS/ME Clinic on the MEED website at http://www.me-ed.co.uk/nhs.htm#lmdt and also details of how to get a referral. I have...
I have just come back from a meeting with Cumbria library who have agreed to running a promotion on ME in some of the libraries in Cumbria. It is health and...
Through the Carlisle ME/CFS Support Group, we have contact details of lots of people who have ME/CFS throughout Cumbria, including Whitehaven, Workington,...
Cumbria library have ordered 3 sets of books on Me from a book list I have supplied. I'm unsure how quickly they will arrive and of course they will need to be...
I saw him 15 years ago. It was Gavin Spickett that confirmed my diagnosis of ME. He's an immunologist and the Clinical Networking Champion for the NHS ME/CFS...
Just to confirm that not only have I got 25 libraries in Cumbria involved in promoting ME in May but now 7 libraries in Blackpool and 25 in Lancashire!...
Thanks, Jo, I couldn't remember who you've seen. I went to see my GP a few weeks ago, and basically had a moan that I haven't been very well lately and that my...
Sorry to hear you still haven't picked up. My energy has gone awol too since my relapse last Nov - it's such a monumental effort to get out of bed most of the...
Yes, well done Linda that's brilliant :-) I'm actually appearing in a book on ME for ME Awareness in May, so if I get a copy I'll forward it to you for the...
Thanks I have a collection of posters and leaflets from national charities, some clinical guidelines which I've bought from our resources and the librray has...
Great news. I went last year but have not booked for this year, I've had a rough month and am watching health rather than gadding around too much. ... if I get...
There is always the DVD's of the conference, available here for £15 http://www.investinme.org/index.htm They are supposed to be very good. I'm not sure when...
Hi, I'm sorry I didn't get to the last support meeting. I wondered what was hsppening in July and August, if there were any meetings and where they were. Hope...
Hiya, No worries about this month's meeting. We had a nice chit chat session, so you didn't miss any specific information as such. There is going to be a...
Hi The only group covering South Cumbria I can think of is the Morecombe Bay Group. They have a website at: http://www.bayme.org/ Jo [Non-text portions of...
Thank you so much, Jo. I'll contact them Best Regards Viv From: meincumbria@yahoogroups.com [mailto:meincumbria@yahoogroups.com] On Behalf Of Jo Sent: 11 June...
Here's a link to the full list of local groups on the ME Association website: http://www.meassociation.org.uk/component/option,com_contxtd/catid,91/Itemid,177/...
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