Hi, I'm 32 and live near Carlisle with my long term boyfriend, I've had ME for 11 years, I was a civil engineer before turning ill professionally a few years...
Carlisle ME/CFS Support Group holds meetings on the second Saturday of the month at 2pm at Wigton Road Methodist Church hall. The group is still fairly new and...
Hi all My name's Jo, I'm 40 and live near Penrith. Have had ME for nearly 16 years, 6 spent severely affected and bedridden but now moderately affected. I'm...
Here is a link to the ME in Eden District website http://www.me- ed.co.uk/ It is an online information resource for people with M.E. in Penrith, Eden District...
Link to the ME Information Portal website: http://www.me-portal.co.uk/displayItem.asp?Name=Home This is a very useful site written from an academic and...
CFS services have been established in Cumbria for two or three years, they are currently based in Keswick. As I understand it, the service they offer includes...
There is some background info on the CFS/ME Clinic on the MEED website at http://www.me-ed.co.uk/nhs.htm#lmdt and also details of how to get a referral. I have...
I have just come back from a meeting with Cumbria library who have agreed to running a promotion on ME in some of the libraries in Cumbria. It is health and...
Through the Carlisle ME/CFS Support Group, we have contact details of lots of people who have ME/CFS throughout Cumbria, including Whitehaven, Workington,...
Cumbria library have ordered 3 sets of books on Me from a book list I have supplied. I'm unsure how quickly they will arrive and of course they will need to be...
I saw him 15 years ago. It was Gavin Spickett that confirmed my diagnosis of ME. He's an immunologist and the Clinical Networking Champion for the NHS ME/CFS...
Just to confirm that not only have I got 25 libraries in Cumbria involved in promoting ME in May but now 7 libraries in Blackpool and 25 in Lancashire!...
Thanks, Jo, I couldn't remember who you've seen. I went to see my GP a few weeks ago, and basically had a moan that I haven't been very well lately and that my...
Sorry to hear you still haven't picked up. My energy has gone awol too since my relapse last Nov - it's such a monumental effort to get out of bed most of the...
Yes, well done Linda that's brilliant :-) I'm actually appearing in a book on ME for ME Awareness in May, so if I get a copy I'll forward it to you for the...
Thanks I have a collection of posters and leaflets from national charities, some clinical guidelines which I've bought from our resources and the librray has...
Great news. I went last year but have not booked for this year, I've had a rough month and am watching health rather than gadding around too much. ... if I get...
There is always the DVD's of the conference, available here for £15 http://www.investinme.org/index.htm They are supposed to be very good. I'm not sure when...
Hi, I'm sorry I didn't get to the last support meeting. I wondered what was hsppening in July and August, if there were any meetings and where they were. Hope...
Hiya, No worries about this month's meeting. We had a nice chit chat session, so you didn't miss any specific information as such. There is going to be a...
Hi The only group covering South Cumbria I can think of is the Morecombe Bay Group. They have a website at: http://www.bayme.org/ Jo [Non-text portions of...
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