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NHS CFS Services in Cumbria   Message List  
Reply | Forward Message #8 of 33 |
Re: NHS CFS Services in Cumbria

There is some background info on the CFS/ME Clinic on the MEED
website at
http://www.me-ed.co.uk/nhs.htm#lmdt
and also details of how to get a referral.

I have reservations about the CBT/GE treatments on offer, especially
for the more severely affected. I know they've had an awful job
trying to recruit a GP with special interest to join the team and
don't know if they have yet succeeded - a specialist GP would be such
an asset, as from personal experience my own GP is often totally
stuck as to which drugs to give me, especially as I'm incredibly drug
intolerant. The GP would also have been able to refer for tertiary
(ie. hospital) care if that were needed.

However, I have met the team (I went to a couple of early meetings
when they were setting the clinic up) and they are very nice and
willing to listen.

I only know one person who has been referred. She has had severe ME
for over ten years. There is little they could physically do for
her, but did help to get her a specialist reclining wheelchair so
that she could go outside in her garden (she can't sit upright at all
which has been a real problem for getting out and about).

Jo





Tue Mar 18, 2008 1:48 pm

jak_online
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Message #8 of 33 |
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CFS services have been established in Cumbria for two or three years, they are currently based in Keswick. As I understand it, the service they offer includes...
moletteuk
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Mar 17, 2008
7:20 pm

There is some background info on the CFS/ME Clinic on the MEED website at http://www.me-ed.co.uk/nhs.htm#lmdt and also details of how to get a referral. I have...
Jo
jak_online
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Mar 18, 2008
1:49 pm
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