Welcome to the support group for those suffering from MdDS (Mal de Debarquement Syndrome). If you suspect you have MdDS, sign up for a free membership and review or search the thousands of messages from those who suffer from MdDS (Sponsored by the MdDS Balance Disorder FDN.)
MdDS is typically diagnosed when a person reports a persistent rocking feeling (though they are not necessarily rocking). This usually follows a cruise or other motion experience. Your doctor(s) may throw up their hands because your vestibular tests all prove negative. Many doctors believe this came about when your brain did not return to a normal sense of balance after adapting to a motion experience. A major indicator is that most of us feel BETTER while driving or riding in a car.
Here, you will find caring people who understand what it's like to live with this rare balance disorder. This is a public site but requires that you subscribe by indicating why you believe you have MdDS. Our members are welcomed from many countries, so feel free to contact us.
To join, send an email to:
mdds_support-subscribe@yahoogroups.com
You will also find substantial information about Mal de Debarquement Syndrome at our public site at: www.mddsfoundation.org
The MdDS Balance Disorder Foundation is a 501(c)(3) nonprofit foundation primarily operated by volunteers who have the disorder. Donations will support our efforts to promote international awareness of Mal de Debarquement Syndrome (MdDS). We seek research toward treatments and a cure for people suffering from this disorder.
To donate using PayPal or a credit card visit www.mddsfoundation.org or please make out your checks to MdDS Balance Disorder Foundation and send them to the Treasurer at:
Marilyn Josselyn
MdDS Balance Disorder Foundation
255 Copper Beech Drive,
Blue Bell, PA 19422.
We do not diagnose or offer medical advice. Please consult with your doctor to develop a plan of action.