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mdds_support · Mal de Debarquement Syndrome

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8 New Members - 182 New Messages

Description

Welcome to the support group for those suffering from Mal de Debarquement Syndrome ,a rare neurological disorder. If you suspect you have MdDS, sign up for a free membership and review or search the thousands of messages from those who suffer from MdDS (Sponsored by the MdDS Balance Disorder FDN.)

MdDS is typically diagnosed when a person reports a persistent rocking feeling (though they are not necessarily rocking). This usually follows a cruise or other motion experience. Your doctor(s) may throw up their hands because your vestibular tests all prove negative. Many doctors believe this came about when your brain did not return to a normal sense of balance after adapting to a motion experience. A major indicator is that most of us feel BETTER while driving or riding in a car.

Here, you will find caring people who understand what it's like to live with this rare neurological disorder. This is a public site but requires that you subscribe by indicating why you believe you have MdDS. Our members are welcomed from many countries, so feel free to contact us.

To join, send an email to:
mdds_support-subscribe@yahoogroups.com

You will also find substantial information about Mal de Debarquement Syndrome at our public site at: www.mddsfoundation.org

The MdDS Balance Disorder Foundation is a 501(c)(3) nonprofit foundation operated by volunteers who have the disorder. Donations will support our efforts to promote international awareness of Mal de Debarquement Syndrome (MdDS). We seek research toward treatments and a cure for people suffering from this disorder.

To donate access www.firstgiving.com/mddsfoundation or use PayPal by visiting www.mddsfoundation.org or make out your checks to MdDS Balance Disorder Foundation and send them to:
MdDS Balance Disorder Foundation
c/o Marilyn Josselyn
22406 Shannondell Drive
Audubon, PA 19403

We do not diagnose or offer medical advice. Please consult with your doctor to develop a plan of action.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 873 845 954 921 745
2011 969 590 515 567 798 622 547 566 397 297 388 581
2010 475 976 656 724 620 678 605 808 929 896 856 492
2009 891 756 569 770 768 866 837 836 728 621 472 528
2008 776 560 660 670 1134 682 494 703 539 717 970 924
2007 774 901 924 810 625 770 579 612 752 692 579 458
2006 604 643 1177 707 597 675 455 732 453 473 297 196
2005 571 553 492 622 870 726 712 859 721 531 1223 584
2004 173 310 230 223 227 386 298 341 550 392 339 274
2003 78 436 265

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