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Activity within 7 days:

14 New Messages

Description

Helping families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion to "Live. Thrive. Survive". Based in the UK, supporting families worldwide. Funding research, providing information to families and professionals in health, education and social care; operating a major annual UK conference; developing the first global consensus document standardising management of VCFS-type conditions.

Our services are free to all members. We provide both a toll-free 0800 UK phone number and email support. We have direct fundraising and merchandise available from our website - http://www.maxappeal.org.uk.

We hope you enjoy using this forum and find it to be valuable. We believe that 22q11 deletion syndrome is a lifelong condition that generally supports a good prognosis, and that the spirit of this forum shall be similarly optimistic and humourous!

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 48 38 100 35 48 103 94 40 45 136 20
2008 119 41 119 84 134 60 35 50 59 43 28 4
2007 1 3 17 19 28 17 5 16 30 20 38 69
2006 1

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