Activity within 7 days:
1 New Member
- 2 New Messages
Description
Helping families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion to "Live. Thrive. Survive". Based in the UK, supporting families worldwide. Funding research, providing information to families and professionals in health, education and social care; operating a major annual UK conference; developing the first global consensus document standardising management of VCFS-type conditions.
Our services are free to all members. We provide both a toll-free 0800 UK phone number and email support. We have direct fundraising and merchandise available from our website - http://www.maxappeal.org.uk.
We hope you enjoy using this forum and find it to be valuable. We believe that 22q11 deletion syndrome is a lifelong condition that generally supports a good prognosis, and that the spirit of this forum shall be similarly optimistic and humourous!
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Group Email Addresses
| Related Link: |
http://www.maxappeal.org.uk/ |
| Post message: |
maxappeal@yahoogroups.com |
| Subscribe: |
maxappeal-subscribe@yahoogroups.com |
| Unsubscribe: |
maxappeal-unsubscribe@yahoogroups.com |
| List owner: |
maxappeal-owner@yahoogroups.com |