Hello all, Sunday night chat is opening in a half hour as scheduled. I did think of canceling the chat due to the Superbowl. But not all of us are from the...
Cant seem to get the chat room up as I try to get in, I never seem to connect to the room. Will keep on trying and keep you all posted. I think it is yahoo,...
Tonight's Chat will be at: http://www.freewebs.com/marfs/MARF-CHAT.htm because yahoo isn't being very cooperative at the moment,copy and paste the link into...
Due to the slow going of this chat night and the technical problems of yahoo, we have closed this chat early. We will be back next week at the same time. Hope...
Hello Everyone, My husband has recently been diagnosed with Marfans. It has been a long hard road to getting a diagnoses. Marfans was mentioned to him by...
Hi there I read your e mail on our marfans site and thought I'd let you know I too was diagnosed recently and since then 2 of my 3 kids also have it. It is...
Hi ..I am used to talking to my ducks and chickens ...and getting no answer, but I am not answering myself here. Please come and help keep me sane ... Join in...
Hi and first of all, welcome to the group. I am so glad you found us as well. There are many great resources here at the group. We offer, two chats a week. The...
what time would tuesday chat be in New Zealand? ... Hi ..I am used to talking to my ducks and chickens ...and getting no answer, but I am not answering myself...
Hi Sue ... unless I counted wrong .. It would be between 6 and 8 AM on Wed. mornings for you. I for one would enjoy seeing you there, but I realize you have to...
hi guys here is the article on me and the kids. A few things weren't accurate and the titles took a bit of explaining to the kids. I guess thats magazines for ...
Hi. I was reading about TMJ on the internet and saw a link to Marfans and I wonder if I have it. I'm 5:6, 105 lbs, have always been thin, very long arms and...
Hi Helen, Welcome to the group. National Marfan Foundation has a lot of information about the diagnosis and treatment of Marfans on their web site, or by ...
So far so good, yahoo seems to be working for us. I want to extend my usual invitation to you all to join us tonight for chat. We will be in the group's chat...
Hi Helen, NMF just changed servers so their web page is brand new. They expect problems for a while, so be sure to check back to see if the links problem has...
Thanks so much for the information about the website. I'm not sure if I have Marfan's or just a constellation of milder similar symptoms. I measured my armspan...
Hi Helen; you might also read up on other genetic collagen disorders: Hypermobility Ehlers-Danlos Syndrome, Sticklers Syndrome, Osteogensis Imperfecta type 1 ...
Tuesday Chat is now closed.. I want to thank Mike and Bob and Carl and BigOle Boy for joining me chat.... It was great.. I think that Tuesday chat is starting...
Hi, My sister is holding a Coffee morning on 26 February all the proceeds of which will be going to the Marfan Association UK. If there is anyone out there...
Hi Everyone I won't be here for chat this Sunday night I have to go to my mom's and babysit the mean cats this weekend,don't know when I'll be back! Mike...
i hate cats too. I got 3 of them and I hate them all. ... Hi Everyone I won't be here for chat this Sunday night I have to go to my mom's and babysit the mean...
Hey Mike, thanks for the warning that you will be back sometime, lol. JUST KIDDING!!! You will definately be missed this week. You are a big part of the chat...
Hi suzie!! thank you for the article on you an your kids. Now if i coul;d only read it! I screwed it up some how when i doown loaded it to wrong file an now...
LOL. We will miss ya Mike for sure. Ok all it is that time of the week again. Time for us to all meet in the chat room and have a good discussion amongst...
I am hoping Bob or Mike of one of those other lovelys we all love so much here can take over chat tonight. I was planning on being here but my mother in law in...
