Hello all, hope you had a fabulous week. Sunday night chat is now open from 8-11 pm eastern time. Come in and join us. I will be available on yahoo messanger...
My mom who was running the chat, has moved and is no longer available for the chats. Her new establishment does not have phone hook up yet, and it will be a...
So nice to meet you, I was hoping ot see you in chat tonight. I missed you. I do believe I saw you last week there. I hope all is well with you. If you ever...
It won't hurt for someone to see if someone is there, the room will be open and you can use it freely. There will just not be anyone running it for now. Sorry...
This site is for marfan syndrome issues only. There will be no advertising at this site, if you advertise here, I will be forced to ban you from the group. If...
i have sent no ads to my knowledge...if i have please tell me thanks liz want2bteacher <want2bteacher@...> wrote:This site is for marfan syndrome issues...
It is not you Liz, you are fine. Someone joined the site today and put an ad on the message board. I have deleted that post as no one should profit from our...
ok take care Connie Snyder <want2bteacher@...> wrote:It is not you Liz, you are fine. Someone joined the site today and put an ad on the message board. I...
Hey everyone, just wanted to know if our chat schedule is changing. On another note I wanted to say that John Ritters passing was a shocker. I have been...
We are open for chat business. We will be here from 8-11pm eastern time. We hope to see you all there. Have a great week if we don't see you. God bless. Connie...
Hi, My name is Lisa ,and I am a 23 year old female.I found out over the summer that i had Marfans syndrome,and had aortic valve sergery in June. I am trieng to...
Hey Lisa, hope all is well. I am glad they caught it before it was too late. Having Magfans myself I have been through the difficult times. I had my open heart...
Keven, I am 6'0. My mum is only 5'2,and my dad was 5'8. They never knew what to make of it. I KNOW! about the doctor visits. I go very week for a blood test. ...
hi everyone this is nat...i found out around june that i might have marfans. i had a heart problem before and had four heart surgeries until it was finally...
Hello there and welcome to the group. My daughter is ten years old and has Marfan. I think you need to read the physical guidelines for people with Marfan. ...
Hello all, we are in Sunday night chat mode. Come on in and if you need any help as usual I am available on yahoo messanger for those that need any assistance....
This came to another group but thought I would pass it on ...Sue is a big part of this group. Bob From: Sue Hi I am sorry to report that last night Suzannes...
Just an Update on Sue.... From: Sue Thank you all very much for your support, Suzanne was taken off the respirator today and woken from her drug induced sleep....
Can you please tell me how old Sue is? And what symptoms she experienced before the surgery.Also, please add me to the list of well wishers for her.My prayers...
Please pass on to Sue our love and support in this trying time. Tell her to get better as soon as she can as we will miss her. She is always at our Sunday...
Ok, I give, after hours and hours of searching on the internet, I am unable to find any shoes for Jessica. Can anyone tell me where online I might be able to...
I just wanted to share my delight at my daughter's birthday coming up on Monday. She will be eleven years old. We can only do a few things for her this year....
Hi Connie, this site claims to have aaaa sizes. I entered "narrow womens shoes" into the google search box and hundreds of possibilities. Good luck, John ...
Hi, my name is Mike, I am 21, and i was diagnosed with marfans syndrome less than a year ago. I'm still in denial that i have it, because i have very few...
Hello and welcome to the group. We have weekly chats on Sunday night just to let you know and formally invite you. The chats are from 8-11pm stop in sometime...
I really appreciate the help, John. Unfortunately, the site did not have a search engine of it's own to help tell me what shoes were in extra narrow. That is...
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