Come on, come all. Time for sunday night chat. I am available on yahoo messanger if you need help getting in. My ID is want2bteacher. See you in chat. The chat...
Hello everyone. I just joined the group. I am very scared right now ... I think my boyfriend might have Marfan Syndrome. He seems awfully worried himself. He...
Hello and welcome to the group. I want you to know you can email me offline if you need, I am always available to help you anyway I can. My email is...
Hello all, I am posting the Sunday night chat reminder early. I might be a few minutes late to the chat room tonight as I am taking my mother in law to church...
Sunday night chat is going on, I had an emergency with a child and I will be right back. I will be on as soon as I can, until then you all chat and keep the...
http://www.tcpalm.com/tcp/columnist/0,1651,TCP_1205_3557,00.html Ellen Gillette: Walk funds study of syndrome By Ellen Gillette correspondent August 9, 2003 ...
Stuart News/Port St. Lucie News (FL) Date: May 1, 2003 Section: Today on the Treasure Coast Edition: Martin County SYNDROME GENERATES HEARTACHE Byline: Ellen...
Palm Beach Post Saturday, August 16 Family remembers by educating others By Will Vash, Palm Beach Post Staff Writer Saturday, August 16, 2003 PORT ST. LUCIE --...
It is time again for our weekly Sunday night chat. Feel free to join me and the others, the time runs from 8-11pm eastern time. I hope you all had a good week....
Well I just closed the chat room for this Sunday night chat. Wow, what a terrific week in chat. For those of you that missed it, join us next week for a...
Hi I would like to be able to join in these chats but I am from UK and dont know what 8 - 11 Eastern time is over here? Probably the middle of the night with...
Hi Jo The Uk is plus 5 hours on Eastern time zone. So yes Sunday nights would be middle of night for you, but Tuesday's would be 7 pm to 9 pm for you....
Hiya ... sorry that I haven't replied in so long. I thought I might as well give a quick update. My boyfriend hasn't been to the doctors yet, but he promised...
Hi there, Why don't u come to one of our chat sessions and maybe after u see how it is others with the disease, u can even get him to come. then he can...
My boyfriend isn't a member of the group ... he doesn't even know that I joined. If he knew, he would probably get upset ... I don't think he wants to admit...
I was under the impression that those with Marfan are not to participate in any contact sports. I was told today when we took our daughter to the genetic...
I am trying to see if my post goes through. Because I wasn't checking the mail in this group, my old email address wasn't updated when I updated my other...
Alright, I can see that my message must have posted but I am unable to read it. I have opted for reading online rather than getting individual or digest email...
The counter says 24 messages have been posted this month, but none are available on the group's home page. It would be helpful to be able to review the posts...
I was shocked to see your post, but I am here at the group and all messages are here posted still, did you try going to messages?? Maybe the problem is on your...
I see your post loud and clear. I guess you and John are both having troubles. It might be some sort of bug in the system, yahoo cant be all bad right now or I...
I forgot to point out that on members screen there is no option for messages ... only clicking on the table and that doesn't get the messages either. on right...
Ok sorry, I did not know this problem was occuring for regular members. I will change that setting now. The only reason I had put it to moderators only, is we...
Connie, You might think about joining the group using a different email address so you can see what we do, or don't see. All of the other Yahoo groups I ...